| Author |
Message |
 Topic: Tysabri Bound! |
Stoli
Replies: 4
Views: 1036
|
 Forum: Introductions Posted: Mon Jan 17, 2005 9:41 pm Subject: Tysabri Bound! |
when you've read the book let me know what you think.  |
| Topic: did you tell everyone? |
Stoli
Replies: 11
Views: 1325
|
Forum: General Discussion Posted: Thu Jan 06, 2005 11:34 pm Subject: did you tell everyone? |
| Majority of my friends know. Also my family including 5th cousins twice removed, thanks to my mother. Once my mother found out she used it for her own sympathy ( I had to ask her to stop telling eve ... |
| Topic: When is your Birthday |
Stoli
Replies: 25
Views: 1884
|
Forum: General Discussion Posted: Thu Jan 06, 2005 11:10 pm Subject: When is your Birthday |
June 13
Happy Birthday Xenova
Happy Brthday to you....
Hippray Hippray Hippray  |
| Topic: Fish oil? |
Stoli
Replies: 21
Views: 1774
|
Forum: General Discussion Posted: Thu Jan 06, 2005 11:07 pm Subject: Fish oil? |
they are anti inflammatory and assist with swelling..
It is also a polyunstaurated oil (?) and therefore not hard at room temperature like saturated fats such as butter. 
It was once exla ... |
| Topic: Tysabri Bound! |
Stoli
Replies: 4
Views: 1036
|
Forum: Introductions Posted: Thu Jan 06, 2005 10:54 pm Subject: Tysabri Bound! |
Right leg foot drop ??? - ME TOO 
I tripped over a couple of times whilst trekking in Nepal in 2000- it steadily got worse and I was dxd in 02.  I've been on copaxone since. On a bad ... |
| Topic: A LITTLE HELP |
Stoli
Replies: 10
Views: 1510
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Thu Jan 06, 2005 7:20 pm Subject: A LITTLE HELP |
not sure if this is the correct place to post this 
went to my neuro yesterday, whilst Tysabri is not available here yet (about 12-18 months away) my neuro told me that whereas the CRABs reduc ... |
| Topic: Copax+ |
Stoli
Replies: 7
Views: 1895
|
Forum: Regimens Posted: Wed Jan 05, 2005 4:04 pm Subject: Copax+ |
 Well hello there Karen
I am so glad to hear that you are feeling much better, I hope your positive karma rubs off on the rest of us !
After 18months on copax. I seem to be only OK. ... |
| Topic: What make you feel better/worse (short terms) |
Stoli
Replies: 12
Views: 1493
|
Forum: General Discussion Posted: Fri Oct 29, 2004 1:02 am Subject: What make you feel better/worse (short terms) |
Worse - heat, humidity, alcohol 
Better - cool and if I knew of anything else I'd be doing it ! 
Take Care
Stoli |
| Topic: New Aimspro Page |
Stoli
Replies: 3
Views: 1527
|
Forum: Aimspro Posted: Thu Oct 21, 2004 7:10 pm Subject: New Aimspro Page |
Thanks for the update. Lookin' good
Stoli |
| Topic: Are You Able To Exercise? |
Stoli
Replies: 39
Views: 8280
|
Forum: Accountabili-Body Posted: Thu Oct 21, 2004 7:03 pm Subject: Are You Able To Exercise? |
I really wish I had the energy to exercise more effectively 
I was very keen on Yoga, but my balance isn't much and I find it more frustrating than relaxing and useful. Swimming is about the ... |
| Topic: Copax+ |
Stoli
Replies: 7
Views: 1895
|
Forum: Regimens Posted: Thu Oct 21, 2004 6:52 pm Subject: Copax+ |
| It took about 2 months for me to notice an improvement; that was abpout 18 months ago and all had been good up to about 3 weeks ago. Feeling like a great big sloth - very fatigued ! Hopefully it wil ... |
| Topic: I am a new one... |
Stoli
Replies: 10
Views: 1227
|
Forum: Introductions Posted: Thu Oct 21, 2004 6:49 pm Subject: I am a new one... |
Hi DaisyH
I've been on copaxone for 2 years. Tolerate it OK. Some side effects, such as lipoatrophy, injection site hardness, but nothing too drastic.
I also try and follow the Swank diet, which ... |
| Topic: Cost of Copaxone |
Stoli
Replies: 13
Views: 3814
|
Forum: Copaxone Posted: Thu Oct 21, 2004 6:44 pm Subject: Cost of Copaxone |
A friend of mine in the USA told me she pays about $100 for her copaxone, is this per week or month ? Either way OUCH !
In Australia we a fortunate for it to be government subsidised and it costs ... |
| Topic: Glad to be 'e'board |
Stoli
Replies: 3
Views: 644
|
Forum: Introductions Posted: Fri Oct 01, 2004 12:21 am Subject: Glad to be 'e'board |
Hi all
Just a little introduction, .dxd 02/02, Copaxone with reasonable ability to stick to Swank diet. Fatigue and gait problems among other charming symptoms which I won't go into here.
... |
| Topic: Copaxone and Lipoatrophy (skin indentations) |
Stoli
Replies: 22
Views: 7634
|
Forum: Copaxone Posted: Fri Oct 01, 2004 12:09 am Subject: Copaxone and Lipoatrophy (skin indentations) |
| I also suffer from this problem and I am relieved and disturbed to know that I am not alone. I only have it on my right leg in an area where I haven't injected too often; so I don't think it i ... |
| |
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