| Author |
Message |
Topic: Recent research |
TheTysabriBull
Replies: 28
Views: 2538
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Forum: Tysabri (Antegren or Natalizumab) Posted: Fri Oct 27, 2006 1:40 pm Subject: Harry, quit backpeddling about conflicts of interest. |
| I think most people who have followed Tysabri know that Dr. Steinman works for another, competitive company. Most "expert" opinions given on behalf of a particular drug by a doctor have the drug compa ... |
Topic: Recent research |
TheTysabriBull
Replies: 28
Views: 2538
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Fri Oct 27, 2006 10:24 am Subject: Amelia, I agree. It is all about well informed "choice |
| You also have a choice of who you select to be your physician or specialist. My typically conservative and cautious neuro, who is currently TOUCH certified, had also given in to my eagerness to be pr ... |
Topic: Recent research |
TheTysabriBull
Replies: 28
Views: 2538
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Fri Oct 27, 2006 7:59 am Subject: Harry, thanks for mentioning smiling Dr. Larry Steinman. |
| There is no doubt in my mind that Dr. Larry Steinman is one of many professional thought leaders in the field of MS research. However, lets take a closer look at his previous role in the development ... |
Topic: Recent research |
TheTysabriBull
Replies: 28
Views: 2538
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Thu Oct 26, 2006 7:24 pm Subject: Harry Z, I thought this thread was about research? |
Harry,
The conflicted and biased research study you refered to was ORIGINALLY and COINCIDENTALLY presented just prior to the Tysabri FDA AC meeting in March. It's old F.U.D which I think was spons ... |
Topic: Recent research |
TheTysabriBull
Replies: 28
Views: 2538
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Thu Oct 26, 2006 5:21 pm Subject: Shooting Harry Z's biased research full of holes. |
| First of all, a clinically diagnosed, treatment naive MSer has too many infiltrating or cascading WBCs in their CSF. An AIDs patient has a severely degraded immune system and poor immune suveillance i ... |
Topic: The USFDA needs your emails or faxes by February 28, 2006! |
TheTysabriBull
Replies: 0
Views: 728
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Forum: Tysabri (Antegren or Natalizumab) Posted: Thu Feb 09, 2006 4:33 pm Subject: The USFDA needs your emails or faxes by February 28, 2006! |
For information how you can support our worthy cause and join our spirit rally on March 7th please visit this website at:
http://mspatientsforchoice.org/index.htm
It's not about just any old, in ... |
Topic: Clinical effectiveness |
TheTysabriBull
Replies: 18
Views: 5317
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Forum: Betaseron Posted: Fri Dec 02, 2005 9:50 am Subject: Amelia I totally agree with you about MS therapies. |
| If a therapy or med is working for that patient it's all well and good. Too bad way too many of us veterans can't get that satisfaction. I am in a well connected and informed group of MSers who will g ... |
Topic: Clinical effectiveness |
TheTysabriBull
Replies: 18
Views: 5317
|
Forum: Betaseron Posted: Wed Nov 30, 2005 8:51 pm Subject: Betaseron washout now at 13 months. |
| I quit Betaseron in Oct2004 after almost 10 years of therapy in preparation to go on Tysabri earlier this year. Oddly enough, an exacerbation that had appearred in mid 2004 followed by more relapses l ... |
Topic: View on Tysabri |
TheTysabriBull
Replies: 51
Views: 5928
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Forum: Tysabri (Antegren or Natalizumab) Posted: Thu Nov 17, 2005 1:49 pm Subject: Thank you, Harry. But, PML has occurred in MSers. |
| MS patients didn't hear about PML until Tysabri came along. This drug is a powerful, immune system altering medication and it needs a lot more study done on it....far more than Biogen/Elan gave it pri ... |
Topic: View on Tysabri |
TheTysabriBull
Replies: 51
Views: 5928
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Thu Nov 17, 2005 6:53 am Subject: Harry, Tysabri cured active MS in many AFFIRM patients. > |
| Harry, nice one. I wasn't trying to convince you of something you already knew. I was trying to tell you something new. I reworded my previous question into a statement. Now read it again and tell me ... |
Topic: View on Tysabri |
TheTysabriBull
Replies: 51
Views: 5928
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Wed Nov 16, 2005 1:45 pm Subject: Harry, that doesn't fly. |
Comparing the data and endpoints with other mutually exclusive clinical trials is unscientific methodology.
Please show me where any of the ABCR drugs showed 28% SUSTAINED disease reversal by 100 ... |
Topic: View on Tysabri |
TheTysabriBull
Replies: 51
Views: 5928
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Wed Nov 16, 2005 12:52 pm Subject: Amelia-my experience on two doses of Tysabri |
I intentionally quit Betaseron therapy in Oct 2004 in anticipation of starting Tysabri therapy as soon as it was commercially avialable after FDA approval.
When I received my first dose of Tysabri ... |
Topic: View on Tysabri |
TheTysabriBull
Replies: 51
Views: 5928
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Forum: Tysabri (Antegren or Natalizumab) Posted: Wed Nov 16, 2005 11:24 am Subject: Biogen may have been strong-armed to halt clinical dosing. |
| Yep, the new drug was selling like hotcakes right out of the chute. I also was in full support of the suspension of the drug from commercial distribution and the Sentinel clinical study when the safet ... |
Topic: View on Tysabri |
TheTysabriBull
Replies: 51
Views: 5928
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Forum: Tysabri (Antegren or Natalizumab) Posted: Wed Nov 16, 2005 9:12 am Subject: Bromeley, well said. |
| Many of us Msers are already at 100% risk of further disability and disease progression. The CRABs are a dismal failure for many of us. And along comes a brand new drug that offers us some hope and th ... |
Topic: View on Tysabri |
TheTysabriBull
Replies: 51
Views: 5928
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Tue Nov 15, 2005 11:08 pm Subject: Hello Harry |
| I have to agree to disagree with you on one of your comments. The mechanism of action of natalizumab therapy comes much closer to mitigating the precursory inflammatory stage of MS than any of the exi ... |
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