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Author Message
  Topic: moving
Wonderfulworld

Replies: 17
Views: 383

PostForum: General Discussion   Posted: Fri Sep 05, 2008 2:04 pm   Subject: moving
Very Happy OOOHHH who said PIMMS?
Im with you on that MrsGeorge!
It bucketed rain all day today in Dublin but a nice cool glass of Pimms would have gone down a treat. Must remind myself to buy a bottle some ...
  Topic: moving
Wonderfulworld

Replies: 17
Views: 383

PostForum: General Discussion   Posted: Thu Sep 04, 2008 2:31 pm   Subject: moving
Good luck with the move Mrs George. Gwa is right - it will really help your fatigue. We have also been looking at moving but we can't quite afford it - perhaps next year. I would also love a bungalow, ...
  Topic: Amantadine
Wonderfulworld

Replies: 18
Views: 640

PostForum: General Discussion   Posted: Wed Sep 03, 2008 3:24 pm   Subject: Amantadine
Shocked Eek! I hope not, I'm only 36, although it's possible.

I visited my Mum yesterday and she noticed I was talking way too fast and worrying about everything - she thought I was in an odd mood, so ...
  Topic: Amantadine
Wonderfulworld

Replies: 18
Views: 640

PostForum: General Discussion   Posted: Wed Sep 03, 2008 3:07 am   Subject: Amantadine
I took 100mg of amantadine yesterday morning at 10am.
Last night I woke at 2am and could not sleep at all. I was drenched in sweat and roasting - normally I am freezing cold. I wonder did the amanta ...
  Topic: Amantadine
Wonderfulworld

Replies: 18
Views: 640

PostForum: General Discussion   Posted: Mon Sep 01, 2008 2:14 am   Subject: Amantadine
After taking it for three days, I woke up on the fourth morning and my legs were so weak that I literally had to crawl to the bath room. My husband came home from work to take care of me that day and ...
  Topic: Going off Copaxone a few days? Good or Bad idea
Wonderfulworld

Replies: 7
Views: 281

PostForum: Copaxone   Posted: Sat Aug 30, 2008 1:11 pm   Subject: Going off Copaxone a few days? Good or Bad idea
Hi TT
sorry to hear you're not feeling good.

I agree with AC above - if you've just started Copaxone I'd check with your GP - I felt it took Copaxone 6 months to work for me (although any relapses ...
  Topic: Dramtic decrease in EDSS with Liver Transplant ? Why ?
Wonderfulworld

Replies: 31
Views: 1009

PostForum: General Discussion   Posted: Sat Aug 30, 2008 1:08 pm   Subject: Dramtic decrease in EDSS with Liver Transplant ? Why ?
This is really fascinating.

Obviously the effect of the immunosupressive drugs have to be ruled out, but it really makes me go "hmmm"?

At age 18 I developed glandular fever (epstein-barr/mono) ...
  Topic: Amantadine
Wonderfulworld

Replies: 18
Views: 640

PostForum: General Discussion   Posted: Sat Aug 30, 2008 1:03 pm   Subject: Amantadine
Dom
that's very interesting that you found it took 6 months to reach full effect. I gave up on it before the 6 months. Maybe it's time to revisit it again....


Can I ask for those of you who are, ...
  Topic: Gluten-free Diet
Wonderfulworld

Replies: 4
Views: 295

PostForum: Diet   Posted: Sun Aug 24, 2008 12:50 pm   Subject: Gluten-free Diet
I have been on a gluten-free diet for the last 5 years. I found out I was a coeliac - I have had MS 10 years.
It is easy to get a blood test from your GP to see if you are a coeliac.
In the last 5 ...
  Topic: Once relapse starts, anyone halted it?
Wonderfulworld

Replies: 5
Views: 303

PostForum: General Discussion   Posted: Sun Aug 24, 2008 11:59 am   Subject: Once relapse starts, anyone halted it?
Thanks for the reply Lynda. No my sinuses are ok at the moment. I usually get hay fever in June, and I get a reaction to damp houses but no sinus problem at the moment.

The autumnal equinox, and t ...
  Topic: Once relapse starts, anyone halted it?
Wonderfulworld

Replies: 5
Views: 303

PostForum: General Discussion   Posted: Sun Aug 24, 2008 4:40 am   Subject: Once relapse starts, anyone halted it?
Hi
now is the time when my brain goes to mush and all the strategies I normally have, I forget. Fear sets in.

Noticed a heaviness in my limbs last week, now I see the familiar strong reddish/purpl ...
  Topic: Got the flu,scared of relapse
Wonderfulworld

Replies: 6
Views: 242

PostForum: General Discussion   Posted: Sat Aug 23, 2008 7:30 am   Subject: Got the flu,scared of relapse
I seem to remember that Symmetral which is used for MS fatigue, is also anti-viral and is indicated for influenza. Ask your GP or neuro but I think you have to take it early on when you get flu.
Hope ...
  Topic: Anyone had >2 month relapse?
Wonderfulworld

Replies: 13
Views: 528

PostForum: General Discussion   Posted: Fri Aug 22, 2008 2:18 am   Subject: Anyone had >2 month relapse?
Hi Grumpster
10 years ago during my biggest relapse I had severe vertigo. It lasted 3 months and I was on seasickness meds. It really is the most horrible feeling, I empathise completely. It took abo ...
  Topic: Copaxone and Lipoatrophy - when to stop?
Wonderfulworld

Replies: 6
Views: 416

PostForum: General Discussion   Posted: Mon Aug 18, 2008 1:38 pm   Subject: Copaxone and Lipoatrophy - when to stop?
Thanks for the reply Dom.

It seems that for some people damage stopped occurring when they stopped injecting at that site, or injected every other day, but sadly that doesn't seem to apply to you. ...
  Topic: Weight Gain on Copaxone?
Wonderfulworld

Replies: 5
Views: 296

PostForum: Copaxone   Posted: Fri Aug 15, 2008 1:58 pm   Subject: Weight Gain on Copaxone?
I suppose that I am about 14lbs heavier than pre-Copaxone days but to be honest a bit of weight gain pales into insignificance if you're faced with serious relapses without it like I was.

What's a ...
 
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