| Author |
Message |
 Topic: Cellcept |
amelia
Replies: 11
Views: 1619
|
 Forum: Drug Pipeline Posted: Sat Mar 15, 2008 1:36 pm Subject: Cellcept |
Sometimes you don't know how good you really feel, until you feel bad.  |
| Topic: Cellcept |
amelia
Replies: 11
Views: 1619
|
Forum: Drug Pipeline Posted: Mon Feb 25, 2008 9:16 am Subject: Cellcept |
| Cellcept is very slow to work. Neuro told Gary it would take about 6-9 months to really be doing its full potential. It took about 2 months to see any results. He also was taking a solumedrol shot twi ... |
| Topic: Cellcept |
amelia
Replies: 11
Views: 1619
|
Forum: Drug Pipeline Posted: Sun Feb 24, 2008 4:42 pm Subject: Cellcept |
| My husband Gary has Devic's, but dx'd with MS for many years. Same stuff different name basically. We asked for Cellcept. What you read in side effects are based on a person with a normal, healthy imm ... |
| Topic: I love Tysabri!! |
amelia
Replies: 13
Views: 2765
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Thu Feb 15, 2007 1:57 pm Subject: I love Tysabri!! |
| Is there anyone whom Tysabri is not working for, even getting worse, that has an "unusual" type of MS. One that has not responded to much of anything? Look into Devic's Disease; NMO. Search it on the ... |
| Topic: Tysabri Infusion Experiences (2006) |
amelia
Replies: 85
Views: 12451
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Wed Jan 31, 2007 3:42 pm Subject: Tysabri Infusion Experiences (2006) |
I just have no tolerance for something(MS) or somebody telling me I can't do it.
Amen Pete!
Gary has been told so many times that he would never walk again. Sorry to all the DRs, but he does. With ... |
| Topic: Tysabri Infusion Experiences (2006) |
amelia
Replies: 85
Views: 12451
|
Forum: Tysabri (Antegren or Natalizumab) Posted: Wed Jan 31, 2007 10:39 am Subject: Tysabri Infusion Experiences (2006) |
Pete,
It is really odd the changes you mention. We have a friend that just has #1 infusuion 2 weeks ago. Things that were going on before Ty: MASSIVE amounts of urine produced. Bladder would fill up ... |
| Topic: I eliminated my post |
amelia
Replies: 51
Views: 3378
|
Forum: General Discussion Posted: Fri Jan 19, 2007 3:38 pm Subject: I eliminated my post |
| actually we eat sugar. I know that may be bad in some eyes, but you're damned if you do and damned if you don't. Our money is LIMITED so buying too much special stuff is out of the question. Also, G ... |
| Topic: I eliminated my post |
amelia
Replies: 51
Views: 3378
|
Forum: General Discussion Posted: Fri Jan 19, 2007 2:32 pm Subject: I eliminated my post |
thanks Dave
It is a subject that many do not want to talk about. But it is a problem that all who have had bad bouts with MS/ Devic's or anything nerve wise has dealt with this. Gary started the fla ... |
| Topic: I eliminated my post |
amelia
Replies: 51
Views: 3378
|
Forum: General Discussion Posted: Wed Jan 17, 2007 7:05 pm Subject: I eliminated my post |
AMEN Melody,
I don't have the disease directly, but yes I have Gary's disease. I gave up my dreams to take care of him. I give up every day and I don't have anything wrong with me, directly. I hurt w ... |
| Topic: I eliminated my post |
amelia
Replies: 51
Views: 3378
|
Forum: General Discussion Posted: Wed Jan 17, 2007 6:07 pm Subject: I eliminated my post |
DAve,
Gary has tried the flax seed capsules before, but we didn't watch for this type of "help". I'll get him back on them and watch. He took the Fiber Choice tablets. Before you said anything, we ... |
| Topic: I eliminated my post |
amelia
Replies: 51
Views: 3378
|
Forum: General Discussion Posted: Wed Jan 17, 2007 11:13 am Subject: I eliminated my post |
| I remember the bee sting cure. Gary is allergic to bees and I got disgusted telling that to well meaning people OVER AND OVER AGAIN. Also, there was this person that rode horse back and was cured. ... |
| Topic: I eliminated my post |
amelia
Replies: 51
Views: 3378
|
Forum: General Discussion Posted: Tue Jan 16, 2007 5:29 pm Subject: I eliminated my post |
| As some know, Gary has Devic's not MS. It is MSs evil twin sister. BUT the difference comes in how each are affected. In MS, lesions and axonal damage are the disability. In Devic's, spinal stenosis a ... |
| Topic: I eliminated my post |
amelia
Replies: 51
Views: 3378
|
Forum: General Discussion Posted: Tue Jan 16, 2007 2:10 pm Subject: I eliminated my post |
| I don't read up on much, but here is my stupid guess as far as the yeast is concerned. With MS, Devics, and other neuro stuff, the whole digestion system slows down leaving "stuff" in the bowels that ... |
| Topic: Botox for the bladder anyone had it done? |
amelia
Replies: 7
Views: 481
|
Forum: General Discussion Posted: Sat Jan 13, 2007 2:11 pm Subject: Botox for the bladder anyone had it done? |
Isnt it only for the initial treatment? That is, the botox injection is applied using a cath.
Yes, it is only for the actual injection, from what I have read. When you self cath all the time, you g ... |
| Topic: Botox for the bladder anyone had it done? |
amelia
Replies: 7
Views: 481
|
Forum: General Discussion Posted: Fri Jan 12, 2007 5:53 pm Subject: Botox for the bladder anyone had it done? |
| He is on 4AP. Been on it for some time. This bladder issue wasn't found out until about 2 years ago, but we realize it had been going on for years before. Heads up for anybody with voiding problems. ... |
| |
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