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Author Message
  Topic: I am just asking......
carolsue

Replies: 8
Views: 608

PostForum: Rebif   Posted: Fri May 30, 2008 3:04 pm   Subject: I am just asking......
Anita,
Your language is good enough.

When I started taking Rebif I did not have symptoms, so it is not easy to guess when it started working. About 4 months later, I had some very minor numbness ...
  Topic: Weird Bruising
carolsue

Replies: 2
Views: 383

PostForum: General Discussion   Posted: Fri Apr 25, 2008 2:43 pm   Subject: Weird Bruising
I suspect it's more likely your body's response to the interferon. Get your blood tested--which is probably recommended after starting Betaseron anyway. Interferons can reduce platelet levels, and inc ...
  Topic: MS and Insurance issues
carolsue

Replies: 7
Views: 582

PostForum: General Discussion   Posted: Tue Apr 15, 2008 4:05 pm   Subject: MS and Insurance issues
I am lucky. My employer's health insurance plan (Blue Cross) offers full spousal coverage and as long as I am their employee, there is no such thing as a pre-existing condition for either me or my spo ...
  Topic: Does she really have MS?
carolsue

Replies: 21
Views: 1760

PostForum: General Discussion   Posted: Mon Mar 17, 2008 5:42 pm   Subject: Does she really have MS?
equally important: if she DOES have MS, what will that mean???

the two of you apparently don't have the trust necessary to enter a healthy marriage.

period.
  Topic: rebif and emotional disturbance
carolsue

Replies: 12
Views: 1512

PostForum: Rebif   Posted: Sun Mar 16, 2008 11:09 am   Subject: rebif and emotional disturbance
no experience with the anxiety, sorry. maybe yoga, or breathing exercises? hang in there. I'm sure your friend appreciates the support you're giving.
  Topic: Question about Relapses
carolsue

Replies: 6
Views: 2272

PostForum: Rebif   Posted: Thu Mar 13, 2008 3:43 pm   Subject: Question about Relapses
I have reported minor tingling that lasts more than a day or two. In my view, mild flares help tell us whether the MS is active and may be cause for a followup MRI.

I've never heard of waiting for ...
  Topic: Should I switch to rebif?(Only honest opinions please)
carolsue

Replies: 4
Views: 743

PostForum: Rebif   Posted: Thu Mar 13, 2008 3:35 pm   Subject: Should I switch to rebif?(Only honest opinions please)
I'm another one who does not suffer from the flu-like side effects from Rebif. I have felt them a couple of times in the 4 yrs I've been on it, but in those cases, 2 ibuprofen have provided relief. L ...
  Topic: Reiki
carolsue

Replies: 26
Views: 1403

PostForum: General Discussion   Posted: Wed Feb 27, 2008 4:25 pm   Subject: Reiki
gwa:
I kill watch batteries too...I wonder how many of us are out there.

carolsue
  Topic: I have never felt this bad in my life. Is this the Rebif?
carolsue

Replies: 16
Views: 2369

PostForum: Rebif   Posted: Thu Feb 21, 2008 6:47 pm   Subject: I have never felt this bad in my life. Is this the Rebif?
some people, like you, have bad side effects to beta interferon, while others don't. so for some people, yes, what you're experiencing is typical. good luck finding a therapy that will work for you.
  Topic: Axonal Degeneration & Sodium Density
carolsue

Replies: 18
Views: 1710

PostForum: General Discussion   Posted: Tue Dec 11, 2007 1:16 pm   Subject: Axonal Degeneration & Sodium Density
thanks bromley!
  Topic: Axonal Degeneration & Sodium Density
carolsue

Replies: 18
Views: 1710

PostForum: General Discussion   Posted: Mon Dec 10, 2007 7:30 pm   Subject: Axonal Degeneration & Sodium Density
Picking this thread up because I have to consider going on meds to lower blood pressure. Apparently, one category of meds are calcium channel blockers. It would seem that I might derive some neuroprot ...
  Topic: Faulty syringes
carolsue

Replies: 8
Views: 1158

PostForum: Rebif   Posted: Sun Dec 02, 2007 6:50 pm   Subject: Faulty syringes
I know the conversation here is about subcutaneous injection, but I was very interested to learn that the danger of air bubbles for IV injections has been overstated. I learned this when I having an I ...
  Topic: Good News
carolsue

Replies: 3
Views: 1060

PostForum: Rebif   Posted: Thu Nov 15, 2007 9:41 pm   Subject: Good News
great news to hear! I have a similar story. I've been on it for 3.5 years, and have had a couple of follow-ups with no new lesions or activity. So I'm staying with rebif, grinning and bearing what are ...
  Topic: Finally diagnosed...
carolsue

Replies: 15
Views: 1262

PostForum: General Discussion   Posted: Thu Nov 08, 2007 9:54 am   Subject: Finally diagnosed...
now I remember a little more clearly. the "study" I was referring to was actually just an analysis from long term data of copaxone users (not the betaseron trial discussed above). I saw this data anal ...
  Topic: Finally diagnosed...
carolsue

Replies: 15
Views: 1262

PostForum: General Discussion   Posted: Wed Nov 07, 2007 5:19 pm   Subject: Finally diagnosed...
My symptoms were very mild too, and easily could have ignored them. but I didnt' and had the MRI and was diagnosed. when I was deciding what course to take, I decided to try an interferon because of s ...
 
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