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Author Message
  Topic: tysabri worsening MS?
lollipop

Replies: 23
Views: 2635
 PostForum: Tysabri (Antegren or Natalizumab)   Posted: Tue May 06, 2008 5:52 am   Subject: tysabri worsening MS?
Hi Stathis,
I think age is irrelevant when deciding to try Novantrone. Some patients are young, others older. I'm 40 and I have exhausted all other meds, so this is the one that's left to try. I h ...
  Topic: tysabri worsening MS?
lollipop

Replies: 23
Views: 2635
 PostForum: Tysabri (Antegren or Natalizumab)   Posted: Mon May 05, 2008 6:07 pm   Subject: tysabri worsening MS?
ooops... had my last infusion in early March not April, for those of you counting. Had 8 total. Confused
  Topic: tysabri worsening MS?
lollipop

Replies: 23
Views: 2635
 PostForum: Tysabri (Antegren or Natalizumab)   Posted: Mon May 05, 2008 2:16 pm   Subject: tysabri worsening MS?
Hi Belge,
Yes, I stopped Ty and I'm not sure if that was the best thing?! Had my last infusion in early April... but now I can't stand up straight anymore. Even swim classes (for MS'ers) are very d ...
  Topic: pressure sores, WC bound
lollipop

Replies: 8
Views: 668
 PostForum: General Discussion   Posted: Fri Apr 18, 2008 2:48 pm   Subject: pressure sores, WC bound
Muu and everybody else,
Thanks for your suggestions! Appreciate them. I can still stand when supported, just not walk. So, since sitting is a neccessity... we'll see how I do. Hope to prevent wor ...
  Topic: pressure sores, WC bound
lollipop

Replies: 8
Views: 668
 PostForum: General Discussion   Posted: Tue Apr 15, 2008 11:12 pm   Subject: pressure sores, WC bound
Well, what can be done to reduce the pressure from sitting on your bum all day... when "moving around" is not an option?? Rolling Eyes
  Topic: Tysabri and progressive MS
lollipop

Replies: 8
Views: 1257
 PostForum: Tysabri (Antegren or Natalizumab)   Posted: Thu Apr 03, 2008 7:45 pm   Subject: Tysabri and progressive MS
Went to see neuro. He explained that he thought Tysabri hasn't worked for me because my MS isn't really inflammation, but rather scarring. What?? Then he went on to say that Rituxan hasn't been appr ...
  Topic: Tysabri and progressive MS
lollipop

Replies: 8
Views: 1257
 PostForum: Tysabri (Antegren or Natalizumab)   Posted: Wed Apr 02, 2008 10:02 am   Subject: Tysabri and progressive MS
I have taken Tysabri 7 times now with no improvement. Going to see neuro today to discuss other options... if there are any. Otherwise, I guess I'll have to accept my future Crying or Very sad .
  Topic: Tysabri and LDN
lollipop

Replies: 15
Views: 2040
 PostForum: Tysabri (Antegren or Natalizumab)   Posted: Tue Feb 19, 2008 1:47 pm   Subject: Tysabri and LDN
Well Harry... here we go. Another question:

I'm considering buying a Theracycle for exercise. Any input on that? Very expensive, but people tell me it's worth it! Is there a place for this ques ...
  Topic: Tysabri and LDN
lollipop

Replies: 15
Views: 2040
 PostForum: Tysabri (Antegren or Natalizumab)   Posted: Tue Feb 19, 2008 12:14 pm   Subject: Tysabri and LDN
Harry,
Thanks for your advice. It means a lot that you care enough to talk to a stranger!!!
  Topic: Tysabri and LDN
lollipop

Replies: 15
Views: 2040
 PostForum: Tysabri (Antegren or Natalizumab)   Posted: Tue Feb 19, 2008 10:05 am   Subject: Tysabri and LDN
Harry,
Doesn't it just "alter" the immune response and not actually suppress it? It seems to be more of an immunomodulator... Just want to be sure that a combo treatment with LDN isn't detrimental ...
  Topic: Tysabri and LDN
lollipop

Replies: 15
Views: 2040
 PostForum: Tysabri (Antegren or Natalizumab)   Posted: Mon Feb 18, 2008 7:40 pm   Subject: Tysabri and LDN
hmmm... made some calls and both my neuro and infusion nurse state that Tysabri is not classified as an immunosuppressant. What gives?
  Topic: Tysabri and LDN
lollipop

Replies: 15
Views: 2040
 PostForum: Tysabri (Antegren or Natalizumab)   Posted: Sat Feb 16, 2008 7:42 pm   Subject: Tysabri and LDN
I thought Tysabri is a monoclonal antibody that decreases inflammatory cells in the brain? It is not an immunosuppressant, but I could be wrong...
  Topic: Tysabri and LDN
lollipop

Replies: 15
Views: 2040
 PostForum: Tysabri (Antegren or Natalizumab)   Posted: Fri Feb 15, 2008 5:11 pm   Subject: Tysabri and LDN
Has anybody tried taking both meds at the same time? What are your results?
  Topic: looking for testimonies
lollipop

Replies: 1
Views: 848
 PostForum: Tysabri (Antegren or Natalizumab)   Posted: Tue May 22, 2007 7:58 pm   Subject: looking for testimonies
Rene,
I am glad you are so optimistic about Melissa's situation. That is most of the battle! Hope all is well? I did try Tysabri, but felt that I was getting worse. I gave the drug 5 infusions to ...
  Topic: Discontinuing Tysabri due to worsening
lollipop

Replies: 2
Views: 1409
 PostForum: Tysabri (Antegren or Natalizumab)   Posted: Fri Feb 23, 2007 9:32 am   Subject: Discontinuing Tysabri due to worsening
It's great that everybody is having such good results with Ty, but I have just decided to STOP after 5 infusions, because of continued worsening of symptoms. No improvements at all... not even a tiny ...
 
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