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Search found 17 matches
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Author Message
  Topic: Provigil for fatigue
nenebird

Replies: 12
Views: 445
 PostForum: General Discussion   Posted: Fri Aug 15, 2008 6:44 pm   Subject: Provigil for fatigue
Initially mine refused but my Dr. intervened and its approved now.
  Topic: Miscarriage
nenebird

Replies: 9
Views: 392
 PostForum: General Discussion   Posted: Tue Jul 15, 2008 9:01 pm   Subject: Miscarriage
I am RH negative too. Take the shot. its no problem.

Good luck getting pregnant again.
  Topic: Autopsy
nenebird

Replies: 34
Views: 1467
 PostForum: General Discussion   Posted: Mon Jul 14, 2008 8:37 pm   Subject: Autopsy
I have been dx'd with PPMS. My spine is looked at alot due to my major issue appears to be in my spine which I have heard is not unusual in PPMS. My spine doesn't have lesions but degeneration per my ...
  Topic: does rrms lead to ppms?
nenebird

Replies: 16
Views: 670
 PostForum: General Discussion   Posted: Thu Jul 03, 2008 9:27 pm   Subject: does rrms lead to ppms?
What I have read is RRMS can progress to SPMS. PPMS is another kettle of fish.

Its the one I have.
  Topic: Support Group?
nenebird

Replies: 9
Views: 393
 PostForum: General Discussion   Posted: Wed Jul 02, 2008 11:31 pm   Subject: Support Group?
I think it therapeutic to be involved in a support group. Yes, there will always be whiners, but what can you do?

I go to a group and we have one who always pipes up about specific issues like no ...
  Topic: PPMS - does it always mean the patient will end up bedbound?
nenebird

Replies: 12
Views: 736
 PostForum: General Discussion   Posted: Wed Jul 02, 2008 11:24 pm   Subject: PPMS - does it always mean the patient will end up bedbound?
There is lots of hope. I too got dx'd with PPMS. I immediately started the Swank diet. You can look it up on line, but basically its pretty radical. Has it helped? I think so. I have less numbness i ...
  Topic: Anyone done Rituxan?
nenebird

Replies: 1
Views: 305
 PostForum: General Discussion   Posted: Tue Jun 24, 2008 9:12 pm   Subject: Anyone done Rituxan?
What were your results? did your insurance pay? Did it stop your progression?

thanks
  Topic: How do you tell your co-workers? Or do you?
nenebird

Replies: 31
Views: 1301
 PostForum: General Discussion   Posted: Fri Jun 06, 2008 8:04 pm   Subject: How do you tell your co-workers? Or do you?
Just remember you can't control how people will react.

I told my staff because I am pretty tired all the time and its obvious I am not acting my normal self. Not noticeable symptoms yet.

Go ...
  Topic: Experience Project
nenebird

Replies: 4
Views: 490
 PostForum: General Discussion   Posted: Sat May 24, 2008 5:26 pm   Subject: Experience Project
Very clever person!!

Another site I enjoy is Postsecret.com. Its were they post post cards mailed into the site where people tell the most private of secrets. Its really profound.
  Topic: Concrete sandwich and concussion
nenebird

Replies: 12
Views: 677
 PostForum: General Discussion   Posted: Mon Apr 28, 2008 9:03 pm   Subject: Concrete sandwich and concussion
This makes my head hurt just reading this. I had a concussion about 5 years ago from slipping on algae in a stream. Went back full on and hit my head on a rock...I felt like one of those cartoon char ...
  Topic: What has helped you with fatigue?
nenebird

Replies: 5
Views: 554
 PostForum: General Discussion   Posted: Thu Apr 24, 2008 12:55 pm   Subject: What has helped you with fatigue?
My worst symptom so far is the fatigue. What has helped you with your fatigue?

I have PPMS, a mild case, not yet affecting me physically (legs and arms) too much. The fatigue is kicking my behin ...
  Topic: rr vs spms and ppms
nenebird

Replies: 84
Views: 3611
 PostForum: General Discussion   Posted: Sun Apr 13, 2008 12:40 pm   Subject: rr vs spms and ppms
these are all great questions...


I have been recently diagnosed with PPMS. Of course I have been researching and reading like a fiend to figure out exactly what does that mean. Many think PPMS ...
  Topic: The Fight Against MS- Friday, April 11 on Montel
nenebird

Replies: 23
Views: 1613
 PostForum: General Discussion   Posted: Sat Apr 12, 2008 11:32 am   Subject: The Fight Against MS- Friday, April 11 on Montel
Well, I saw the show and was kind of disappointed. It really didn't have any new ideas, suggestions. Lots of promo for Clay Walker but nothing really earth shaking.

I wish Montel would have talke ...
  Topic: Girlfriend keeps pushing me away
nenebird

Replies: 6
Views: 574
 PostForum: General Discussion   Posted: Fri Apr 04, 2008 9:46 am   Subject: Girlfriend keeps pushing me away
I understand how she feels. I fear being a burden to family and hubby more than anything. But if you really love her, just hang in there. She'll get over it. She is dealing with alot right now. Is s ...
  Topic: Greetings from San Diego County
nenebird

Replies: 0
Views: 406
 PostForum: Introductions   Posted: Mon Mar 31, 2008 11:35 am   Subject: Greetings from San Diego County
Just dx'd with PPMS. Yuck!!!

PPMS'ers - interested in yacking with you. How are you doing? What are you doing, since there is no treatment?

Toodles
 
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