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Author Message
  Topic: Brain stem lesions
scoobyjude

Replies: 14
Views: 951

PostForum: General Discussion   Posted: Thu Jun 12, 2008 7:25 pm   Subject: Brain stem lesions
Nenu, just wanted to let you know my story. I presented with a rather large brain stem lesion 4 years ago that got worse before it got better. As of my last MRI in February it is virtually indetectabl ...
  Topic: How do you tell your co-workers? Or do you?
scoobyjude

Replies: 31
Views: 1297

PostForum: General Discussion   Posted: Thu Jun 12, 2008 7:14 pm   Subject: How do you tell your co-workers? Or do you?
I told my immediate co-workers and boss but have not told the whole office. I really don't feel that there is any need. If I am having a relapse and can't walk good I tell anyone who asks that I have ...
  Topic: c-Jun protein
scoobyjude

Replies: 1
Views: 199

PostForum: General Discussion   Posted: Sun Jun 01, 2008 8:25 pm   Subject: c-Jun protein
Possible - Regeneration For The Central Nervous System
by multiplesclerosis on Sun 01 Jun 2008 12:00 AM CST
Regenerative Activity In The Peripheral Nervous System Could Mean Regeneration For The C ...
  Topic: PI-2301
scoobyjude

Replies: 1
Views: 553

PostForum: Drug Pipeline   Posted: Sat Mar 22, 2008 10:22 pm   Subject: PI-2301
Peptide Copolymer Study Completed For Multiple Sclerosis Treatment - Disease

Written on March 21, 2008 – 11:59 pm | by admin

Peptimmune has completed its first clinical trial to evaluate the saf ...
  Topic: ABS-75
scoobyjude

Replies: 1
Views: 408

PostForum: General Discussion   Posted: Thu Mar 13, 2008 9:44 pm   Subject: ABS-75
I know it's mice but.....

New Drug Protects Nerve Cells From Damage In Mice
ScienceDaily (Mar. 13, 2008) —

Individuals with multiple sclerosis develop progressive neurological disability that ...
  Topic: New formulation of Rebif
scoobyjude

Replies: 28
Views: 4205

PostForum: Rebif   Posted: Fri Mar 07, 2008 10:05 pm   Subject: New formulation of Rebif
Bebe, it was MS Lifelines that I called and that's what they had to say. The woman didn't even suggest replacement. I was kind of surprised. It was almost as if she thought I was overreacting or somet ...
  Topic: Leeches not worms
scoobyjude

Replies: 5
Views: 377

PostForum: General Discussion   Posted: Wed Feb 27, 2008 8:41 pm   Subject: Leeches not worms
Prof Steinman says that tests could start "Within the next year or so, as they are already approved drugs with known toxicity profiles."


I like it when we don't have to wait forever to know if th ...
  Topic: New formulation of Rebif
scoobyjude

Replies: 28
Views: 4205

PostForum: Rebif   Posted: Sun Feb 10, 2008 10:03 pm   Subject: New formulation of Rebif
Totally understand what you're saying. Let us know how it goes for future shots.
  Topic: New formulation of Rebif
scoobyjude

Replies: 28
Views: 4205

PostForum: Rebif   Posted: Wed Feb 06, 2008 10:25 pm   Subject: New formulation of Rebif
Dignan, is that an improvement for you or just the norm?
  Topic: Molecular Mimicry-thanks, NHE
scoobyjude

Replies: 1
Views: 339

PostForum: General Discussion   Posted: Sun Feb 03, 2008 3:12 pm   Subject: Molecular Mimicry-thanks, NHE
A C, your dedication to your husband and trying to "fix" him is extremely heartwarming and admirable. My boyfriend would rather not know all the scary things MS can include and I can't say that I blam ...
  Topic: Injection location and side effects
scoobyjude

Replies: 2
Views: 662

PostForum: Rebif   Posted: Wed Jan 30, 2008 9:23 pm   Subject: Injection location and side effects
Punchy, I too felt more achey and tired the next day after leg shots. I assumed that maybe I have more muscle than fat and that had something to do with it. I really haven't noticed a pattern with my ...
  Topic: recommend a neurologist
scoobyjude

Replies: 2
Views: 404

PostForum: General Discussion   Posted: Sat Jan 26, 2008 2:39 am   Subject: recommend a neurologist
Cas, I'm from the southwest suburbs so I can't exactly help you cause my neuro is not downtown but try the National MS Society Greater Illinois Chaper page and they have listings all over.

http://w ...
  Topic: surface skin numbness
scoobyjude

Replies: 3
Views: 784

PostForum: Rebif   Posted: Wed Jan 23, 2008 8:34 pm   Subject: surface skin numbness
Markd, I have had a few shots where the spot went numb for a few minutes. I figured like you that maybe I had hit a nerve. It does sound like it might be nerve related for you also. Man, you must hit ...
  Topic: Exercise and MS
scoobyjude

Replies: 7
Views: 539

PostForum: General Discussion   Posted: Sat Jan 19, 2008 9:19 pm   Subject: Exercise and MS
Bob, reading articles like these were exactly why I got back on my elliptical. I don't know how much it will help but it can't hurt.
  Topic: TNF
scoobyjude

Replies: 2
Views: 560

PostForum: Drug Pipeline   Posted: Sun Jan 13, 2008 5:18 pm   Subject: TNF
Dignan, I love to read about studies that had positive results with real human beings!! Thanks
 
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