| Author |
Message |
 Topic: HiCy Relieves MS Symptoms |
ssmme
Replies: 38
Views: 833
|
 Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Fri Sep 05, 2008 9:12 pm Subject: HiCy Relieves MS Symptoms |
| No matter what treatment you bring up there will always be someone who "throws stones at it". This one is no different, If your not impressed and you don't have any hard facts to back up your posi ... |
| Topic: HiCy Relieves MS Symptoms |
ssmme
Replies: 38
Views: 833
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Fri Sep 05, 2008 1:39 pm Subject: HiCy Relieves MS Symptoms |
| You have to put this into context Kyle. These people do not have MS anymore but the initial ms damage has already been done. Most of the patients that are in this treatment decided that the other tr ... |
| Topic: Too First Step |
ssmme
Replies: 1
Views: 139
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Thu Sep 04, 2008 12:31 pm Subject: Too First Step |
I took the first step and sent an e-mail to Carrie Trekker's assistant asking for the info to start the process for getting accepted into the program.
I'm very excited about getting the list of r ... |
| Topic: HiCy Relieves MS Symptoms |
ssmme
Replies: 38
Views: 833
|
Forum: Revimmune (cyclophosphamide or cytoxan) Posted: Thu Sep 04, 2008 5:32 am Subject: HiCy Relieves MS Symptoms |
Wow Jaime,
This is awesome. I am becoming more and more convinced to go with hicy. Maybe I'll make the call today  .
Marcia |
| Topic: Amantadine |
ssmme
Replies: 18
Views: 627
|
Forum: General Discussion Posted: Thu Aug 28, 2008 8:54 am Subject: Amantadine |
Thanks so much Dom! I will keep taking it a little longer but I sure wish the effects were immediate.
Marcia |
| Topic: stolen |
ssmme
Replies: 27
Views: 765
|
Forum: Daily Life Posted: Thu Aug 28, 2008 7:33 am Subject: stolen |
| If we make guns illegal then only the criminals will have guns. |
| Topic: Tovaxin Open Label Extension Schedules |
ssmme
Replies: 68
Views: 3366
|
Forum: Tovaxin Posted: Thu Aug 28, 2008 7:30 am Subject: Tovaxin Open Label Extension Schedules |
| Bob I'm so sorry. It's like road block after road block. Hopefully it won't lead to a dead end. Geez! You would think that a half pint would still allow them to get a bunch of cells. I wish Jaime ... |
| Topic: Amantadine |
ssmme
Replies: 18
Views: 627
|
Forum: General Discussion Posted: Thu Aug 28, 2008 7:25 am Subject: Amantadine |
I got a script for amantadine for fatigue and started taking 100mg in the morning and at night. I haven't noticed any changes yet. Has anyone else taken this and does it work?
Marcia |
| Topic: mononucleosis and ms |
ssmme
Replies: 21
Views: 2240
|
Forum: General Discussion Posted: Wed Aug 27, 2008 7:59 am Subject: mononucleosis and ms |
| I had mono at the age of 12. Was out of school for about 6 weeks. It's been years ago so I don't remember the details. Afterwards I got shingles (I already had chicken pox) when chicken pox was goi ... |
| Topic: Anyone in extension study feel like crap after vaccine? |
ssmme
Replies: 6
Views: 239
|
Forum: Tovaxin Posted: Sat Aug 23, 2008 12:44 pm Subject: Anyone in extension study feel like crap after vaccine? |
| It's been a little over a week since I got my first vaccine and I feel like complete crapola. I'm not sick...no fever, sore throat, aches, pains, etc. Just extremely tired, no energy either mentally ... |
| Topic: Seasonal MS attacks |
ssmme
Replies: 10
Views: 311
|
Forum: General Discussion Posted: Thu Aug 21, 2008 1:51 pm Subject: Seasonal MS attacks |
| I don't get what I consider real attacks either...it's only in hindsight that I realize that what I've been experiencing could have been an attack. The worst time I ever had was after my lumbar punct ... |
| Topic: Uninsured and Unsure |
ssmme
Replies: 13
Views: 446
|
Forum: General Discussion Posted: Sun Aug 17, 2008 10:53 am Subject: Uninsured and Unsure |
| My husband and I are self-employed which means we have to have our own coverage...no large group policy. When we got our renewal this year the monthly premium went through the roof. My insurance rep ... |
| Topic: Dew Point Temperature/Humidity and Spasticity |
ssmme
Replies: 20
Views: 885
|
Forum: General Discussion Posted: Sat Aug 16, 2008 12:58 pm Subject: Dew Point Temperature/Humidity and Spasticity |
We are now moving there to retire because I always feel better in Arizona no matter what the temp is. The lack of humidity makes a big difference with me.
My questions are...
To all you ms-ers ... |
| Topic: Tovaxin Open Label Extension Schedules |
ssmme
Replies: 68
Views: 3366
|
Forum: Tovaxin Posted: Fri Aug 15, 2008 2:06 pm Subject: Tovaxin Open Label Extension Schedules |
I got dosed today finally. Now the count down to the 100th day begins.
I didn't do any peg or math tests only the long walk. The vial content looked slightly murky/cloudy unlike during IIb when i ... |
| Topic: Titanium AFO's |
ssmme
Replies: 5
Views: 294
|
Forum: General Discussion Posted: Sun Aug 03, 2008 10:44 am Subject: Titanium AFO's |
| I googled this on the internet but didn't see a stock item by any manufacturer that fit your dr's description. My brother-in-law sells afo's and I will ask him about this when I see him later today.
... |
| |
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