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Posted: Thu Apr 07, 2005 11:53 am Post subject: Did somebody try LDN for very first drug ?
Hello,
I'm a french 57 years old man, with RRMS since 1992, EDSS about 3 today. I have been taking LDN for a few 3 weeks, and I'm happy to tell you that I feel rather better in my body and in my head. A little bit hope after 13 years without it. Please to pardon the weak quality of my English.
One of my best friend's 31 years old daughter has just started a MS (spasmodic mild palsy in lower limbs, and a huge fatigue). Despite the fact it's her first clinical "attack ? relapse ? !!! vocabulary ?", no doubt about the diagnosis with MRI. Doctors want to expect for remission.
I would like her to have the best very first drug, before the doctors prescribe her the C or any ABR. My own experience of betaseron makes me try to avoid it for anybody, as so long as I'm not acting wrong.
That is the reason why I add the followings to my demand :
I'm sure finding testimonies of people having had LDN for very first drug. But the problem still remains the same, i.e. that the doctors wont believe me. Could you e-mail me a scan of any medical recent document that could confirm the diagnosis and your today's state of health ?
We've "connected"in another thread so you may know that LDN is the first and only drug I've taken for MS. I too was diagnosed after just one attack based on MRI results (August '04). I found out about LDN on the internet and took the info to my doctor who (somewhat reluctantly) prescribed it for me. The neuro is kinda ambivalent about what I do (although he was favouring Avonex) and he seems a little skeptical about LDN, but agreed to scheduled another MRI for August '05 which will give me six months on LDN. Based on the results of that MRI I will decide what to do next.
I haven't been on LDN long enough to offer much feedback. I feel no real outward effects from it and at this point I'm just trying to find the dosage that best suits me.
I'm coming up on 2 years now and LDN is the only med I've taken in years, other than antiobiotics and Advair 100/50
I had an MRI in an open machine in 1/03, 3 months before I started, and had an MRI in a closed Tesla 1.5 last August. They were identical except for finding a small 7mm lesion that didn't show on the open scans. _________________ -- LarryGC/LarryLDN http://www.larrygc.com/ms
-- My LDN journal http://www.larrygc.com/mystory
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