EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at
Experience Project.
Joined: Mar 26, 2005 Posts: 3 Location: Central Florida
Posted: Sun Apr 10, 2005 10:00 pm Post subject: ms regimen
Betaseron ( for the obvious), folic acid 3mg (lg dose) for severe pain from elbows down to hands. Neuro said nerve pain but not carpel tunnel or cubital tunnel. He says it is still out in the medical world whether or not it is caused by the MS or by the Interferon.
B12, L-carnitine (for fatigue), Provigil (for fatigue), milk thistle (for my liver), cranberry extract (bladder infections, it helps), and Acidopholous (for intestional health). Most of all a super large does of humor.
I think that so far I am doing okay.
The dr wanted me to take one of the anti seizure meds for the neuralgia in my face and eyes and back of head...but I refused. I only get it for a few weeks every few months. I'd rather just deal with it with some Ibuprophen (although it does not work entirely) than to be subjected to any more body destroying medicine.
The only reason I take the betaseron is because my legs and the fatigue were the first problems I had. I am a runner and the thought of not having my legs is very scary. The meds have slowed me down though quite a bit. The day after my shots my legs feel like lead. But at least I still feel my legs, and at least I can still run.....even if it is not as fast or as far as before. I am just greatful.
You cannot post new topics in this forum You cannot reply to topics in this forum You cannot edit your posts in this forum You cannot delete your posts in this forum You cannot vote in polls in this forum
We encourage you to also visit our Multiple Sclerosis story and support community on Experience Project.
Experience Project is a vast and powerful community where people connect anonymously through life experiences. It's made by the same people who built This is MS,
on the premise that no one life experience-- like having MS-- defines a person. It now covers over 2 million life stories. Find and share yours!