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ThisIsMS.com :: View topic - LDN very first impressions
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LDN very first impressions

 
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stsolakos
Family Member


Joined: Oct 25, 2004
Posts: 28
Location: Greece

PostPosted: Thu May 19, 2005 1:23 am    Post subject: LDN very first impressions Reply with quote

Hi all.

Thanks to this great community and a very friendly person that I have met here, I heard about LDN and decided to give it a try.

Yesterday I got my very first dose (3 mg at 23:00). I don't know whether it will work for me or not but I am feeling GREAT at the moment. Despite the fact that I managed to sleep just for a couple of hours, my energy levels are near their maximum. In addition, I feel easier to control my right hand and a little dark spot in my vision has gone away. I wish it is not the placebo effect!

The only negative I can find is the fact that it has increased my spasticity a little. However this can be corrected. It may resolve in a few hours.

LDN has nothing to do with Rebif (which I used to take for 4 years.) or chemo (which my doctor wanted me to do). Even if it does not work, it worths a try.

I am posting this message because I feel the obligation to thank this great community. Thank you all.

I would also like to hear about your very first impressions on LDN.

Stavros
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If God created MS, Devil would create Rebif to treat it!
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Arron
Site Admin
Site Admin


Joined: Feb 02, 2004
Posts: 864
Location: California, USA

PostPosted: Mon May 23, 2005 7:16 pm    Post subject: Reply with quote

Stavros, good luck with your new treatment. Please keep your doctor informed of your progress and situation, as of course, LDN is not technically "approved" for MS treatment.

Your signature is hilarious by the way-- I wonder how many people here agree with you! Smile
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Disclaimer: Any information you find on this site should not be considered medical advice. All decisions should be made with the consent of your doctor, otherwise you are at your own risk.
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CCmom
Family Elder


Joined: Apr 26, 2004
Posts: 118

PostPosted: Thu Jun 02, 2005 12:26 pm    Post subject: Reply with quote

My 17 year old son went from Rebif to LDN, and I'm sure he would agree totally with that signature, Stalvos! Good for you! Hope you have nothing but improvements from here on in!

My son is starting LDN again next week, his neuro had requested that we try Copaxone alone, which we did, and now we are all in agreement that he does better on LDN.

Take care!

Kim
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Kim R.
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