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ThisIsMS.com :: View topic - no ice - lipoatrophy
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no ice - lipoatrophy

 
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smyelin
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Joined: Jul 12, 2005
Posts: 10
Location: Sydney, Australia

PostPosted: Tue Jul 12, 2005 10:06 pm    Post subject: no ice - lipoatrophy Reply with quote

neuro told me not to ice the injection site before or after - wish he'd mentioned before i started looking like moon crater girl ! Shocked
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HarryZ
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Joined: May 26, 2004
Posts: 1383
Location: London, ON, Canada

PostPosted: Fri Jul 15, 2005 7:53 am    Post subject: Re: no ice - lipoatrophy Reply with quote

Smyelin,

smyelin wrote:
neuro told me not to ice the injection site before or after - wish he'd mentioned before i started looking like moon crater girl ! Shocked


The MS Clinic in Ottawa did a study involving Copaxone users. They found that 45% of the users ended up with various levels of lipoatrophy, a number they stated was excessive and much higher in comparision to what Teva (makers of Copaxone) give in their literature.

It amazes me that some MS docs still don't warn their patients about this possibility and how to take steps to avoid it. You unfortunately, found out the hard way.

Harry
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eric
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Joined: Sep 19, 2004
Posts: 10

PostPosted: Mon Jul 18, 2005 3:37 pm    Post subject: Reply with quote

How does one take steps to avoid it (besides no icing)?
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Melody
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Joined: Apr 04, 2005
Posts: 431
Location: Ontario Canada

PostPosted: Sun Jul 31, 2005 12:10 pm    Post subject: Reply with quote

Hubby was never told about it at all this is the first time I've heard of it. He started on copaxone on July 4 2005. Here is a good link for other's like myself who had not heard about it.

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