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Joined: Jul 28, 2005 Posts: 1331 Location: Sydney, Australia
Posted: Mon Oct 23, 2006 6:12 am Post subject:
and another point. Any step that isnt backwards, must be forward. Be sure to refresh.
I have been having problems with tremmors of recent, and I just ran out of mino, so I decided to go back to doxy until the spasicity/tremors reduce a little.
Joined: Jul 28, 2005 Posts: 1331 Location: Sydney, Australia
Posted: Wed Nov 29, 2006 5:05 am Post subject:
A couple of changes.
1. I have added another point
2. The last point meant I had to rescale the Y axis (it went off the graph woo-hoo!)
3. I added another graph (in green with the Y scale on right) showing how many "jumps on the spot" I can do in a row. The scale is simply the number I manage. It seems to help with the clonus/spacisity in my knees and my ataxia. I think anyway. It really made it clear how the last flagyl pulse (the red lines) hit me.
4. did I mention woo-hoo
I have done some off beat things in the last month, and I plan on updating this thread. Hopefully I will get a chance this weekend.
Joined: Jul 28, 2005 Posts: 1331 Location: Sydney, Australia
Posted: Thu Nov 30, 2006 1:52 am Post subject:
I have done 16 pulses but as you can see in the time since the last red line, I am on a long break from the flagyl right now; until my walking gets better. But continuing with the doxy and roxy.
Joined: Jun 18, 2004 Posts: 1482 Location: Bedfordshire UK
Posted: Sat Dec 02, 2006 8:22 am Post subject:
Quote:
"Any step that isn't backwards, must be forward."
Well, it could be sideways, but here it looks like forward to me. I think I might add jumping on the spot to my repertoire. It presumably isn't a solid floor that you jump on, though, because you might end up damaging your joints.
Sarah _________________ An Itinerary in Light and Shadow
Completed Stratton/Wheldon antibiotic regime for aggressive secondary progressive MS in June 2007, after four years. Still slowly improving with no exacerbation since starting. EDSS was 7, now 2 or often less.
Joined: Jul 28, 2005 Posts: 1331 Location: Sydney, Australia
Posted: Mon Dec 04, 2006 3:03 am Post subject:
Anecdote wrote:
It presumably isn't a solid floor that you jump on, though, because you might end up damaging your joints.
Nope, its carpeted. And just to be clear, I am holding onto the door frame to keep my balance. I notice more of a tight feeling in my leg muscles the next day, than anything in my joints.
Anecdote wrote:
I think I might add jumping on the spot to my repertoire.
Well, it may of helped the last point. And I truly think it has helped with the clonus in my knees.
I have added a point to the main graph, and one to the other graph. Both are big increases. I hope to stay at this level, because there just cant be an improvement continuation like this. I though I already started to plateau. I had to change the graph Y axis again to fit the new point! Be sure to refresh the page.
I still have problems with clonus in my knees, and my walking is not that great, but it is improving.
WOW!
I am amazed and delighted at your chart - not only the line of your MS progress but the interactivity of the graph updates. I'm afraid the technology has defeated me and I can only manage to upload an oversized photograph of my progress chart! Very impressive, Cureo. You deserve a few glasses of champagne and some mince pies.
Oh dear, oh dear. When I was first diagnosed in 2004 I went on a milk-free, gluten-free, fat-free, fish and rice, liver smoothie and raw beetroot type diet for 6 months. This did absolutely NADA for my steadily accumulating deficits and I lost so much weight that eating occassionally mince pies and drinking champagne have now become a necessity! Until New Year, that is!!!!!
Joined: Jul 28, 2005 Posts: 1331 Location: Sydney, Australia
Posted: Wed Dec 06, 2006 4:40 am Post subject:
I have plotted another point on the jump on the spot graph. I have also plotted my attempts of two more medications on the graph. Prozac and Kreppa. Be sure to refresh.
I took the kreppa in an attempt to reduce spasisity. But it didnt really seem to help me.
As for the prozac (28 days). I cant say that I felt it made a difference, however, the graph implies it did. Because of this I will be trying it again in the future if my GP is comfortable with prescribing it again.
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