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ThisIsMS.com :: View topic - Baclofen for spasticity
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Baclofen for spasticity

 
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Lainie
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Joined: Feb 07, 2007
Posts: 13
Location: near Chicago, IL

PostPosted: Thu Nov 15, 2007 9:47 am    Post subject: Baclofen for spasticity Reply with quote

I just started this a couple of days ago. For those who don't know, it is a muscle relaxant prescribed for MS or people with spinal injuries. I am amazed at the benefits I am getting. I didn't realize how stiff my legs were and how much it has been contributing to my difficulty walking until I got on this relaxant. It has definitely changed my ability to get around for the better!

So, my regimen is Tysabri and Baclofen. I really love the baclofen and can't imagine doing without it now.
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gwa
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Joined: Dec 02, 2005
Posts: 847

PostPosted: Thu Nov 15, 2007 12:15 pm    Post subject: Reply with quote

Glad it works for you. I tried it once and could barely move due to the relaxation in my muscles.

gwa
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Toyoterry
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Joined: Apr 20, 2005
Posts: 107

PostPosted: Thu Nov 15, 2007 3:34 pm    Post subject: Reply with quote

I take 90mgs a day and still have some stiffness but it does help.
Terry
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missvicki
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Joined: Nov 20, 2006
Posts: 53
Location: Denver

PostPosted: Thu Nov 15, 2007 7:33 pm    Post subject: Reply with quote

Does it make you tired? When do you take it? Twice a day? I too have been recently prescribed this medication but I work 4 hours a day and don't want it to make me tired. Thanks!
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Toyoterry
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Joined: Apr 20, 2005
Posts: 107

PostPosted: Fri Nov 16, 2007 1:44 am    Post subject: Reply with quote

I've been on it for three years and it still makes me tired, just not as much as at first. Thank goodness for caffiene.
Terry
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Lainie
Getting to Know You...


Joined: Feb 07, 2007
Posts: 13
Location: near Chicago, IL

PostPosted: Fri Nov 16, 2007 11:39 am    Post subject: Reply with quote

missvicki wrote:
Does it make you tired? When do you take it? Twice a day? I too have been recently prescribed this medication but I work 4 hours a day and don't want it to make me tired. Thanks!


The doctor aknowledged that it would make me incredibly drowsy (which it does) so as a solution he has me take it before bed only. (I take it once a day only.) It helps me sleep, and although it does take a while to shake off the effects in the morning, I am able to function during the day.
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laura55
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Joined: Oct 07, 2007
Posts: 15
Location: Southsea, UK

PostPosted: Fri Nov 23, 2007 4:18 pm    Post subject: Reply with quote

Hiya, I started baclofen a week ago. I'm still on a really low dose so perhaps thats why I haven't seen the effects you have yet. I started on hALF a tablet 3 x a day, I've gradually gone up to 1 tablet 3 x a day. The first time I took it I pretty much fell asleep straight away at 2 in the afternoon lol Smile hoping I get the benefits you are soon. Take care, Laura x
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Andy
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Joined: Jan 08, 2004
Posts: 40
Location: England, UK

PostPosted: Tue Dec 11, 2007 3:37 pm    Post subject: Reply with quote

I have been on LDN now for almost 4 years and have just been prescribed Baclofen..........is there anybody out there taking this combination and if so when do you take them? I take the LDN at bedtime, is it OK to take them both at bedtime?
Thanks Andy Smile
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wiggy
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Joined: Feb 04, 2006
Posts: 118

PostPosted: Mon Dec 17, 2007 9:09 pm    Post subject: Reply with quote

Andy,
I am also on this combination LDN and Baclofen - I just started baclofen and I take a dose an hour before I take my LDN and so far - 3 weeks - no problem. I am not aware of any problem taking them at the same time - good question.
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Andy
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Joined: Jan 08, 2004
Posts: 40
Location: England, UK

PostPosted: Thu Jan 17, 2008 5:53 pm    Post subject: Baclofen..... Reply with quote

Hi Wiggy, I've tried twice now to take Baclofen at bedtime with my 3mg of LDN but after 1 day I have to stop as my legs refuse to take my weight without stumbling..........what to do?
Will try again sometime but I havent alot of hope....... Mad
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wiggy
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Joined: Feb 04, 2006
Posts: 118

PostPosted: Fri Jan 18, 2008 7:36 am    Post subject: Reply with quote

Hi Andy,
Can you try your baclofen 2 hours prior to bedtime or does it make you too tired? How much baclofen are you taking? Than take LDN right before you go to sleep? My legs are always tight in the am but they do not collaspe.
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Andy
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Joined: Jan 08, 2004
Posts: 40
Location: England, UK

PostPosted: Wed Feb 13, 2008 3:45 pm    Post subject: Reply with quote

Hi Wiggy, sorry for not replying sooner but thats a good sugestion, I will try it.
Andy Smile
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Cleremond2000
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Joined: Oct 24, 2008
Posts: 15

PostPosted: Mon Oct 27, 2008 12:10 pm    Post subject: Reply with quote

Had been on Zanaflex, but it knocked me out during the day and I couldn't work while taking it. I would take it at night, but it would make me have REALLY weird dreams and disrupt my sleep. So I asked for a different muscle relaxer to be prescribed so doc wrote the Rx for Baclofen.

I have only been taking it at night for the time being and it really helps me sleep. I haven't gotten brave enough to take it during the day yet, so I don't know how well it will help me with my leg spasticity, but I have an "at home" day on Wednesday so I might give it a go and see how it affects me during the day.
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