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Joined: Jan 30, 2004 Posts: 85 Location: Devon - England
Posted: Fri Feb 06, 2004 1:20 am Post subject:
Hi Linda hotpepper
Welcome to the family and congratulations on your recent marriage. I can't help you much on meds, because I've never taken any, but I'm sure someone will.
Two posts for the price of one, that has to be a good thing because they're a little low on the ground at the moment. I've tried to get a few discussions going, but no luck as yet - people seem so shy
Hello everyone! I am a caregiver of someone with MS. My husband was dx's almost one year ago. I can't believe that it has been that long already. We've had a pretty good year, some minor relapses, but mostly acceptance has been the hard part. I think that we might still be in denial (not that that is a bad thing!). He is currently on Swank diet, supplements, excercise, and rest. No CRAB's yet. Anyway, I really like this site and hope to learn alot.
Joined: Jan 30, 2004 Posts: 85 Location: Devon - England
Posted: Fri Feb 06, 2004 11:37 am Post subject:
Hi Tara,
Welcome and thanks for sharing your story with us. As a carer I think you often have a harder time of things, at least if you are to believe what my wife would tell you
The time just flies by, doesn't it? I've been with it for more than 11years now, but life goes on - at least you haven't got crabs to worry about
I really like this site too, so please come back, when you get the chance, to tell us how things are going.
Joined: Feb 06, 2004 Posts: 10 Location: Sheffield UK
Posted: Sat Feb 07, 2004 5:13 am Post subject: This is me
Hi everyone
I go under the name Aikika as a rememberance of the one I used to be. An Aikika, as I'm sure you know, is someone who practices the ancient Japanese art of Aikido - a beautiful flowing form of the martial arts. I used to run my own club in Sheffield UK.
I was diagnosed originally at the age of 17 (I'm now 4 and for 25 years I was in glorious denial, doing as much physical activity as I could fit into my busy life. Then one day I had an accident and all had to stop and the MS just stepped in and took over. At present I'm still mobile - just - and have never taken any medicines. Until this week that is, when I had my first jab of Caprivax. No effect yet, but I'll keep trying and let you know if it really is a miracle cure they claim.
I've seen this mentioned on numerous posts but I'll say it too - it is refreshing to access an independent and well-organized website about MS.
I was diagnosed with RRMS on Nov. 1st, 2000. Autoimmune diseases, including MS, have been part of my family for three generations now.
Initially I took Avonex and after a relapse tried Rebif. I hate the injections and have stopped taking drugs altogether. I am trying diet and exercise instead, but truthfully I am lacking discipline with both. My neurologist thinks any diet-related therapy, including the recent study about vitamin-D, is "hypothetical" but I would rather try a hypothetical treatment than take those injections.
Posted: Sat Feb 07, 2004 11:46 am Post subject: My intro
Hi, I've been here for awhile but not with an intro. My daughter-in-law has had RRMS for about 6 years. She and our son are in their early 30's. I am here to find out as much as I can in order to do whatever I can to support them both. Usually that means just treating them as all other loved ones, and understanding when they have to change plans. Flexibility is not a problem. When she has a severe relapse, we do what we can to provide emotional support and to help with whatever little chores we can. Son works full time and wants to spend what time he has left with her. Wish we lived closer as we are about 5 hours away. Also wish that love could cure you all - then this disease would not exist. It is frustrating for a parent to know that love is not enough. _________________ loving relative
Joined: Jan 30, 2004 Posts: 85 Location: Devon - England
Posted: Sat Feb 07, 2004 12:48 pm Post subject:
Hi Suzy,
Glad to meet you and learn about your family. I expect you have already spotted the latest post to the 'Diet? What Colour' thread (in your case I guess that should be 'color') it certainly sounds as though diet is one way to go when dealing with RRMS.
Thanks again for the intro, and the best of luck to you all
Posted: Sat Feb 07, 2004 9:38 pm Post subject: Getting to Know You
Hi! I'm Sharon, 57, dx'd RRMS in 8/03, have done Avonex 8 times now and still feeling the side effects. Still getting used to the idea that I have MS too as a matter of fact...
My major problem is walking, altho I'm still on my feet and still working.
I'm avidly pursuing info on women diagnosed at a later age and whether or not there was any association with being taken off HRT for menopause and the "appearance" of MS in all it's lovely iterations.
I'm quite impressed with this site and those of you who have introduced yourselves! I look forward to "participating", but since I'm still on "dial-up", it's sure to be intermittent...
So nice to be chatting with someone in England. I'm in Richmond, Virginia and altho I'm not a native of Virginia, many Virginian's are "close" to all things English.
This site is so sophisticated I'm going to have to get myself up to speed "technologically", as well as in my walking.
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sorry, I'm not a guest, I'm a member-- I'll get used to doing these post eventually. Linda
Hi Linda hotpepper 
Hi everyone
and for 25 years I was in glorious denial, doing as much physical activity as I could fit into my busy life. Then one day I had an accident and all had to stop and the MS just stepped in and took over. At present I'm still mobile - just - and have never taken any medicines. Until this week that is, when I had my first jab of Caprivax. No effect yet, but I'll keep trying and let you know if it really is a miracle cure they claim. 
