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Joined: Jul 12, 2005 Posts: 247 Location: North Carolina USA
Posted: Tue Jan 10, 2006 7:17 pm Post subject:
Hi Karen
Congratulations! Very exciting! What are you taking? Have you been to www.CPn Help? You are so fortrunate to have an enthusiastic partner in your undertaking.
Looking forward to hearing from you.
Rica _________________ EDSS at beginning of 43 months of antibiotics 6.7 now 2 - on good days almost normal
Joined: Jan 03, 2006 Posts: 13 Location: Philadelphia area
Posted: Thu Jan 12, 2006 1:47 pm Post subject: Herx Already??
The doc just stuck with the basic Wheldon protocol of Doxy and Azithromycin and the supplements. Will add Flagyl in 3 months.
His thought was if it didn't work and I became resistant to them, there were others that could substitue for them in the event of an infection.
Today I am having severe L leg muscle spasms. It hurts to walk and even stand in the shower. I only had mild ones in the past. Is it too soon for a J-H reaction? _________________ Karen
Age 50
Sinus Symptoms dizziness/MRI shows multiple lesions 2002,
"Wait and See."
Dx 3/05
Rebif 4/05
David Wheldon Protocol 1/06
Joined: Jun 18, 2004 Posts: 1482 Location: Bedfordshire UK
Posted: Thu Jan 12, 2006 2:23 pm Post subject:
Hello Karen,
You doctor's reasoning is perfectly valid, but resistance is unlikely taking the two together.
A Herxheimer reaction can start nearly as soon as you start the abx. Mine, which just took the form of a fluey feeling and an incredibly runny nose, started the day after. I also felt very sleepy: in fact I slept a lot of the day for the first couple of weeks. Everyone is different though, probably because everyone's lesions are in different places.
Keep us informed, and the very best wishes,
Sarah _________________ An Itinerary in Light and Shadow
Completed Stratton/Wheldon antibiotic regime for aggressive secondary progressive MS in June 2007, after four years. Still slowly improving with no exacerbation since starting. EDSS was 7, now 2 or often less.
ABX is not my forte but even Betaseron Rebif and Avonex have the flu like symptoms and they proclaim you are being helped. Just a point to take into consideration. Also the first time John took Copaxone he nearly passed out he was sore for a few days and was scared to even do another shot. He is fine now. Just some comparisons. _________________ John was diagnosed Jan 2005. On lipitor 20mg .On Copaxone since July 4,2005. Vitamin D3 2000iu-4000iu (depending on sunshine months)June 10 2005(RX:r. O'Connor) Omega 3 as well Turmeric since April 2005. Q10 60mg. 1500mg liquid Glucosamine Nov 2005.
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r. O'Connor) Omega 3 as well Turmeric since April 2005. Q10 60mg. 1500mg liquid Glucosamine Nov 2005.