Hoping to try aimspro

Ellenem · Getting to Know You... Joined: Nov 20, 2004 Posts: 10

Im just wondering how many people out there (well on this board at least lol) have tried aimspro and what their experiences were.

Im trying not to get caught up with the miracle stories floating about but Ive come to a point where I feel that I have little choice other than to at least try aimspro.

Ive been on avonex (that was when my condition deteriorated substantially), Ive tried diet (didnt do a lot), tried the antibiotics (didnt do anything for me either) and Ive been on LDN coming up 3 years (isnt doing a lot to improve things but I seem to remaining reasonably stable at least) Oh and Ive also been turned down for campath as Im not suitable.

My neuro is about as helpful as a chocolate teapot so Ive researched and tried all this off my own back as Im not about to sit back and let this MonSter take over any more of my life than it has already.

Back to the point lol... Ive sent some aimspro info off to my gp to see of shes willing to rx it, if not then I'll go to one of the private gps that is rx it. Basically Ive made up my mind to try it but was just interested in hearing the experiences of anyone else thats tried it

E

CureOrBust · Posted: Thu Nov 16, 2006 2:25 am Post subject:

you can find my peronal account: http://www.thisisms.com/ftopict-1407.html

I see you have also been trying every angle. have you given lipitor a go?

Ellenem · Getting to Know You... Joined: Nov 20, 2004 Posts: 10

I havent tried lipitor but I have to confess thats one treatment option I dont really know anything about. Is it meant to stabilise the MS or have people had symptom improvements as well? Also, is it available in the UK?

E

CureOrBust · Posted: Fri Nov 17, 2006 2:35 am Post subject:

Some people have had a major portion of their symptoms go (almost symptom free). Personally, i have noticed that it reduces my MS symptoms, but does not stop a relapse. I have a very clear trigger for a relapse (a cold/flu).

Current research has shown it to have anti inflamatory properties as well as effects on the bbb. So possibly a double whammy. The original article i read on this site (for simvastatin) found a 44% reduction in MRI activity or something.

JFH · Posted: Fri Nov 17, 2006 7:59 am Post subject:

Ellenem · Getting to Know You... Joined: Nov 20, 2004 Posts: 10

Hi John

What dose of simvastatin do you take and what effects has it had on your MS?

E

CureOrBust · Posted: Fri Nov 17, 2006 8:52 pm Post subject:

Anecdote · Posted: Fri Dec 01, 2006 5:34 pm Post subject:

Good lord, I think if the antibiotics hadn't worked so well for me, I would be more tempted to try snail poison. I remembr my mother and aunt were trying to get me to try aimspro at the time..........Sarah
_________________
An Itinerary in Light and Shadow
Completed Stratton/Wheldon antibiotic regime for aggressive secondary progressive MS in June 2007, after four years. Still slowly improving with no exacerbation since starting. EDSS was 7, now 2 or often less.

JFH · Posted: Sat Dec 02, 2006 3:59 am Post subject:

CureOrBust · Posted: Sat Dec 02, 2006 7:40 pm Post subject: