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ThisIsMS.com :: View topic - Any others on Ty with these problems
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Any others on Ty with these problems

 
Post new topic   Reply to topic    ThisIsMS.com Forum Index -> Tysabri (Antegren or Natalizumab)
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sammy67
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Joined: Jun 19, 2007
Posts: 9
Location: SFV - So, Cal
PostPosted: Thu Oct 02, 2008 5:07 pm    Post subject: Any others on Ty with these problems Reply with quote
Hi,
I have been on Tysabri for 14 mo now. it has been a god send has changed my life... untill 2 mo ago...

I also happen to have Crohn's disease, so this med was made for me....
I started just not feeling well at first... more tired then normal.... then muscle and joint pain... feeling like i had a cold orr flue too.... i just had my infusion friday and now i am not in good shape.... i think i have ear infection or clogging, the joint pain and muscle pain is terrible, it hurts to walk... i called my nureo yesterday and she felt none of this has to do with the tysabri, she could offer me steroids but that wa that.....

from what i have read, these could be from tysabri..... i know if i go to a general dr. they wont know tysabri at all...
has anyone else had any of these side effects?

thanks
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HarryZ
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Joined: May 26, 2004
Posts: 1340
Location: London, ON, Canada
PostPosted: Thu Oct 02, 2008 5:39 pm    Post subject: Re: Any others on Ty with these problems Reply with quote
Sammy,

Now let me get this correct....you have been on Tysabri, an immune system altering drug for 14 months. You think you have an ear infection and are experiencing severe joint and muscle pain...and your neuro doesn't think it's Tysabri related and is offering you steroids!!!! Am I to presume she hasn't had you in the office to check you out, either? Hmmm....why do I think your neuro needs replacing?

Harry
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naspass
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Joined: Oct 29, 2007
Posts: 5
PostPosted: Thu Oct 02, 2008 8:46 pm    Post subject: Reply with quote
Here is a thread from a different forum which might be helpful with your question

http://www.msworld.org/forum/showthread.php?t=84794
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sammy67
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Joined: Jun 19, 2007
Posts: 9
Location: SFV - So, Cal
PostPosted: Thu Oct 02, 2008 9:21 pm    Post subject: Reply with quote
thank you, to both of you... Yes, i am seeing a different neuro hopefuly tomorrow....
and thank you for the site suggestion. that has been very helpful....
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