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ThisIsMS.com :: View topic - Progressive MS Pipeline
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Progressive MS Pipeline
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shah
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Joined: Sep 01, 2008
Posts: 1
PostPosted: Mon Sep 01, 2008 6:00 pm    Post subject: Reply with quote
ladystewart wrote:
I am SPMS and sent information to go to Johns hopkins for Cyclophomide. They sent me information that showed a lot of SPMS individuals but--JH told me that they were accepting RRMS. What?? They could not explain.

I am a female and I have 2 sons-my mom had MS--but I don't want my sons to go through what I did. I don't want them to wipe my butt etc. HELP Exclamation

Sharon


I did 6 months of Cyclophosphamide at a monthly rate of 1000mg, while dignosed as a RRMS case that failed TY. Since I hardly showed any improvement after the 6 month treatment, I was upgraded to SPMS.
I'm currently taking Copaxone+4-AP+Rilutek+LDN+IVSM (monthly) and seem to have been stabilized. The next big gun for me will be novantrone,
which has shown to be more effective in progressive forms of MS.

what a ride..

Regards,
Shah
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