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ThisIsMS.com :: View topic - Just switched to Rebif
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Just switched to Rebif

 
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haywood
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Joined: Aug 26, 2008
Posts: 7
PostPosted: Tue Aug 26, 2008 4:29 pm    Post subject: Just switched to Rebif Reply with quote
Hello, I was dx in Feb this year. I went to sleep one night fine and when I woke up in the morning for work I got out of the shower and was sweating profusely and was extremely dizzy. I couldn't move and was out of work for about 4 weeks during which time I went to a doctor who dx me with vertigo, from there I went to an ENT (ear/nose/throat) who sent me for an MRI/Spinal tap and long story short...........here we are. I started with Avonex which seemed fine for a while but then things got worse. I got bells palsy and my whole right side of my body got numb so my doctor put me on Rebif. At the end of this week it will be 1 month on Rebif. Just wondering if anyone else has made the switch from Avonex to Rebif and how is it going. So far I don't see any change. it's very hard to walk and I've been using my left hand for everything (I'm right-handed) I'm just trying to stay positive but its pretty hard Sad
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Lyon
Family Elder


Joined: May 04, 2006
Posts: 3151
Location: Mid-Michigan
PostPosted: Tue Aug 26, 2008 4:56 pm    Post subject: Re: Just switched to Rebif Reply with quote
haywood wrote:
I'm just trying to stay positive but its pretty hard Sad
My wish is not to hype any specific treatment, but you are right about it being hard to stay positive and my intention is to show that there are reasons to remain positive http://tinyurl.com/5ntyqe

Additionally Raven wrote this recently http://www.thisisms.com/ftopict-5870.html which hints that once the MS disease process is stopped the healing process continues long after the quick improvements due to the control of inflammation have ended.

Welcome to the site!

Bob
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
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haywood
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Joined: Aug 26, 2008
Posts: 7
PostPosted: Tue Aug 26, 2008 5:22 pm    Post subject: Reply with quote
Thanks for the post!! It does help. I have kinda been reluctant to go online and look for a forum but recently I've just been having a really rough time with all this and its just good to see there are people and hope out there. Its just hard going from doing whatever to being limited ya know. I can't play guitar anymore or anything really using my right hand Crying or Very sad Hell this post took me about 10 min to type left-handed Smile
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Lyon
Family Elder


Joined: May 04, 2006
Posts: 3151
Location: Mid-Michigan
PostPosted: Tue Aug 26, 2008 5:33 pm    Post subject: Reply with quote
Wow, I guess I don't know how my wife and I would have gone through this without the internet for research purposes and ThisIsMS.

I guess a person could tough it out in an isolation chamber, but why?

In that light I can easily see why it's hard to stay positive.

Trust me, the history of MS, everything you've ever read about MS, ISN'T the future of MS.

Bob
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
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haywood
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Joined: Aug 26, 2008
Posts: 7
PostPosted: Tue Aug 26, 2008 6:07 pm    Post subject: Reply with quote
Lyon wrote:
I guess a person could tough it out in an isolation chamber, but why?

Trust me, the history of MS, everything you've ever read about MS, ISN'T the future of MS.

Bob


Yeah I guess I just didn't want to hear the negatives. You do have a way of making things seem positive. Your wife is lucky to have you for support. Again, thanks for your reply Cool
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Lyon
Family Elder


Joined: May 04, 2006
Posts: 3151
Location: Mid-Michigan
PostPosted: Tue Aug 26, 2008 6:25 pm    Post subject: Reply with quote
haywood wrote:
You do have a way of making things seem positive.
Hang around.........optomism is contagious.....if you let it be.

Welcome to the site and I look forward to seeing you around.
Bob
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
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