EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at
Experience Project.
Posted: Sun Aug 03, 2008 4:58 pm Post subject: Started Novantrone
I started Novantrone this past week. My MS was progressing so fast, and after 18 months of Betaseron, my doctor felt it was time to add another drug. I am 37 years old, and I am physically healthy--weight, bp, etc.
I would love to hear from people who have taken this drug, and I have noticed strands of my hair are starting to fall out. Losing my hair is a small price to pay to slow down the progression of my MS.
my story is much the same as yours, dx in 2005, fast accumulation of disability, except I have just finished 2 years of Mitoxantrone (what Novantrone is called in Australia). I would say if things are moving to fast and your neuro suggests Novantrone, do it. Which you are.
It's not as bad as everyone makes out, by any stretch of the imagination. Actually, in 2 years, I threw up once and drove myself to and from every infusion. You do feel quesy for a while, and worn out for a few days but it's a small price to pay. I never felt like it was doing anything, but everyone seems to get caught up in the hope that the next treatmnt they try will be the magic cure. Fact is that MRI's speak volumes, and the MRI's i had showed considerable and significant improvement as a result of being on the chemo (i was also on Betaseron at the same time).
At the end of the day, what small bit of inconvinience or discomfort is not worth it to help improve the long term picture? Good luck with your treatment, I hope all goes well and as smooth as it did for me. Oh yeah, everything I was able to find out about, and was told about Mitoxantrone/Novantrone said that hair loss isn't usually a side effect, so hopefully you won't have any probs there.
You cannot post new topics in this forum You cannot reply to topics in this forum You cannot edit your posts in this forum You cannot delete your posts in this forum You cannot vote in polls in this forum
We encourage you to also visit our Multiple Sclerosis story and support community on Experience Project.
Experience Project is a vast and powerful community where people connect anonymously through life experiences. It's made by the same people who built This is MS,
on the premise that no one life experience-- like having MS-- defines a person. It now covers over 2 million life stories. Find and share yours!
Forum FAQ
Search
Usergroups
Profile
Log in to check your private messages
Log in
