EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at
Experience Project.
Posted: Sun Nov 01, 2009 12:29 pm Post subject: Re: What do the MRI show?
pgy wrote:
What do followup MRIs show after commencing LDN? Do lessions disappear of just no new ones? Any info would be appreciated.
Hi pgy,
I don't think there has been enough real research to give you a definite answer for that one. I don't think I've ever posted my LDN experience on here yet, but I did a 1 year + experiment with it - as carefully and scientifically as I could.
After much difficulty getting a prescription for it, I finally got my neuro to at least order an MRI, and I started my LDN prescription the day after. I took LDN for one year, keeping detailed daily charts of every symptom and more notes. At exactly one year, I got another MRI, ordered by my cooperative neuro. She said she could NOT prescribe LDN, but didn't mind if I took it. I'm the only person I know of who has had such precise MRI evaluations of their LDN results - exactly 1 year. They're not doing extensive clinical trials or anything.
The MRI reports (same MRI equipment, same radiologist) showed no change whatsoever from one MRI to the next, and no enhancing lesions. There had also been no change from my very first MRI about a year before that one either. I had no noticeable flares/exacerbations. If I had been taking any other meds, they would have been declared a resounding success for me.
I thought LDN was GREAT for my innumerable symptoms. And...it seemed to promote healing in many non-MS ways. But...the main problem was that my slight walking difficulties continued to progress slooowly through the entire year, at the same speed as before LDN, and I ended up using a cane about halfway through it.
It's difficult to evaluate that kind of success/failure... I kept taking LDN until my PCP at the time decided to freak out about it like my other ones had and fired me as a patient with a certified letter. I'd try it again - if only for symptom relief.
Good luck to you! _________________ Dx with MS & HNPP (a hereditary peripheral neuropathy) July '03, but had probably had MS 30 yrs. I've never taken any prescription meds for MS or MS symptoms (except 1 year experiment on LDN, but I don't consider it an MS med anyway ).
You cannot post new topics in this forum You cannot reply to topics in this forum You cannot edit your posts in this forum You cannot delete your posts in this forum You cannot vote in polls in this forum
We encourage you to also visit our Multiple Sclerosis support community on Experience Project.
Experience Project is a vast and powerful community where people connect anonymously through life experiences. It's made by the same people who built This is MS,
on the premise that no single life experience-- like having MS-- defines a person. EP now covers over 5 million true stories about every possible life experience. Find and share yours!