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View topic - 5 days of doxy | ThisIsMS.com
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5 days of doxy
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Sneaky
Getting to Know You...


Joined: Sep 18, 2009
Posts: 19
Location: Cleveland OH

PostPosted: Mon Sep 28, 2009 7:30 am    Post subject: Reply with quote

Robbie,

Although we have not yet spoken, I have lurked for quite sometime and kind of followed your struggles. All I can say is this is awesome and wishing you even better days ahead!

Mike
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agatha
Family Member


Joined: Jul 05, 2009
Posts: 43

PostPosted: Mon Sep 28, 2009 11:38 am    Post subject: Reply with quote

Robbie

I've just got back from hols and seen this - well done you! I'm so pleased for you.
Agatha
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jimmylegs
Family Elder


Joined: Mar 12, 2006
Posts: 3678

PostPosted: Tue Sep 29, 2009 7:44 pm    Post subject: Reply with quote

damn robbie, video is somethin else. we have a kick ass online resource here, and i hope it only gets better.
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dignan
Family Elder


Joined: Aug 12, 2004
Posts: 1516

PostPosted: Tue Sep 29, 2009 8:33 pm    Post subject: Reply with quote

Robbie, it's great to see you on your feet. I don't know what all those other people are talking about, crying while watching your video. I just had something in my eye...both eyes...
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Chris55
Family Elder


Joined: May 25, 2004
Posts: 289

PostPosted: Thu Oct 01, 2009 8:02 am    Post subject: Reply with quote

Robbie, my daughter Suzy (who did the supplement treatment for a strep bacteria infection) had the "Herx" reaction also. There is a remedy she used..which of course I cannot remember!--but it involved sitting in a really hot bath with al kinds of "stuff" in the water. You might want to research something like "Herx reaction bath formula" and see if you can find it. It really helped Suzy! The bad thing is...you continue to go through this every several days as the bacteria die off but it does get less and less severe.

I just fell into this post...how are you doing with this AbX treatment???
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LoveActually
Family Elder


Joined: May 29, 2009
Posts: 181
Location: Southern California

PostPosted: Mon Oct 05, 2009 5:16 pm    Post subject: Reply with quote

That is fantastic! So happy for you Robbie. I love the part where you turn back to the camera and sort of throw your hands out like, "See! I CAN do it." Way to go! You're an inspiration.
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MacKintosh
Family Elder


Joined: Sep 25, 2005
Posts: 402
Location: Chicago area

PostPosted: Mon Oct 12, 2009 1:12 pm    Post subject: Reply with quote

Soap opera update, please? Wink How are you doing now?????
_________________
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
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Anecdote
Family Elder


Joined: Jun 18, 2004
Posts: 1707
Location: Bedfordshire UK

PostPosted: Wed Oct 14, 2009 6:30 am    Post subject: Reply with quote

Hi Mack, I'll stick my nose in here: at the moment Robbie seems to be suffering from the dreaded die-off reactions which are affecting his lower back. In a weird sort of way is good. Cpn tends to accumulate in joints, esprecially the sacroiliac joint, where the spine meets ilium of the pelvis. I think he has been hit quite soon because of previously taken minocycline, maybe only for immunomodulatory reasons, but the germs didn't know that.

Sarah
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An Itinerary in Light and Shadow Completed Stratton/Wheldon antibiotic regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. EDSS was 7, now I could pass for perfect most days.
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Needled
Family Elder


Joined: Jan 15, 2009
Posts: 309
Location: Connecticut

PostPosted: Wed Oct 14, 2009 6:46 am    Post subject: Reply with quote

Sarah, Thanks for the update!
Robbie, If you're reading, please know that I think of you often and I'm so hoping this works for you. Hopefully this is just a rough patch to get through and you'll continue to improve and feel better once you're on the other side of it.
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agatha
Family Member


Joined: Jul 05, 2009
Posts: 43

PostPosted: Wed Oct 14, 2009 11:29 am    Post subject: Reply with quote

Yes Robbie, I hope you're getting through - those die-off reactions can be hideous.

That's interesting about the sacro-iliac joint Sarah - I have had trouble with mine for years.
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robbie
Family Elder


Joined: Jan 28, 2005
Posts: 1047
Location: Northern Ontario, Canada

PostPosted: Mon Oct 26, 2009 12:00 pm    Post subject: Reply with quote

Been trying to do this every day, maybe i will even be able to turn the tread mill on in the future, it's to fast for now. my lower back has been out for the last couple weeks so i am going at it slowly.
[url][/url]
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Your never as good as you think you are and never as bad as you think you are
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agatha
Family Member


Joined: Jul 05, 2009
Posts: 43

PostPosted: Mon Oct 26, 2009 12:30 pm    Post subject: Reply with quote

Unbelievable Robbie! Very Happy
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Anecdote
Family Elder


Joined: Jun 18, 2004
Posts: 1707
Location: Bedfordshire UK

PostPosted: Mon Oct 26, 2009 12:59 pm    Post subject: Reply with quote

How is your back now, Robbie?

This is truly amazing and so is your new found persistence. I think it won't be long now until you turn on the treadmill!

Sarah
_________________
An Itinerary in Light and Shadow Completed Stratton/Wheldon antibiotic regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. EDSS was 7, now I could pass for perfect most days.
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Loriyas
Family Elder


Joined: Apr 03, 2006
Posts: 414
Location: Naples, FL

PostPosted: Mon Oct 26, 2009 2:47 pm    Post subject: Reply with quote

So happy for you Robbie!
Lori
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Needled
Family Elder


Joined: Jan 15, 2009
Posts: 309
Location: Connecticut

PostPosted: Mon Oct 26, 2009 4:40 pm    Post subject: Reply with quote

Robbie, Your first video was amazing, and you look so much steadier in this one! I'm so happy for you. Please keep them coming.
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