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Joined: Feb 10, 2006 Posts: 769 Location: Northern Virginia
Posted: Thu Dec 10, 2009 11:11 pm Post subject:
Lyon wrote:
Awesome Rob. Keep doing what you're doing!
Taking antibiotics or using the bathroom?
Robbie,
This is really terrific. I'm not sure exactly how you're planning on ramping the protocol up, but I suppose it might be a good time to ask if you're thinking about the next ingredient in the recipe. Please keep it up and keep posting videos.
Ken _________________ My Starting Point
Understanding MS 101: Doctor Talk and People Talk<br /><br />
Joined: Jul 12, 2005 Posts: 256 Location: North Carolina USA
Posted: Sat Jan 02, 2010 12:48 pm Post subject: abx - staying with it
Robbie
Typical of my computer skills, I just finished a long letter to you privately and lost everything. Please wite to me again.
Rica _________________ 2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to flagyl. 90% normal good days-50% normal bad days. That is a good thing.
Joined: Jan 28, 2005 Posts: 1047 Location: Northern Ontario, Canada
Posted: Sun Jan 03, 2010 8:35 am Post subject:
Hi terry nothing good is happening right now , the improvements i did see have fadded, it was like the movie Awakinings. I applogize for posting those improvements so soon ,that was kind of a false sense of hope felt by me.I was thinking for a time i might have the future i want.Take care all and thanks for your support.Will keep taking them for now. _________________ Your never as good as you think you are and never as bad as you think you are
Oh Robbie. Please do keep it up. Others have reported two steps forward, one step back.
I didn't see awakenings, but I just read about it. I see the correlation.
Hoping for two more steps forward, Robbie. You are in my thoughts.
Terry
Joined: Jun 18, 2004 Posts: 1707 Location: Bedfordshire UK
Posted: Sun Jan 03, 2010 10:11 am Post subject:
Robbie, yes you must keep it up and preferably with a synergistic antibiotic n addition to the doxycycline. Many people do report two steps forward, one step back as Terry said. Also, Rica (Katman) went for months getting worse before she turned the corner. Write to her again as she asked.
Start the new year as you want to continue.
Sarah _________________ An Itinerary in Light and Shadow Completed Stratton/Wheldon antibiotic regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. EDSS was 7, now I could pass for perfect most days.
Robbie
PLEASE continue with the doxy. And I think you should do as Sarah and Rica suggest and add the additional antibiotics. The improvements were not your imagination-you have the videos to prove it! For most everyone it is one step forward and two steps back for a while. Please keep at it!
Lori
Joined: Jan 28, 2005 Posts: 1047 Location: Northern Ontario, Canada
Posted: Mon Jan 18, 2010 12:12 pm Post subject:
I am having a PT come to the house and help with movement and build some strenth in my legs, they are bad! the clonus that was so bad for many years has pretty much dissapered and that has abled me to move so much better. I was really discourged by the two steps forward one step back thing, thinking that i would return to my old self but more and more i know that this is really working..thanks for all your support _________________ Your never as good as you think you are and never as bad as you think you are
Joined: Jul 12, 2005 Posts: 256 Location: North Carolina USA
Posted: Mon Jan 18, 2010 1:11 pm Post subject:
Robbie
At some point soon, I think, you will shrug off the days when you feel horrible and seem to have lost the gains you made. But it turns out that they are like our children - they will be back and they will bring more!
The tape is wonderful - I wish I had made even one a year - though several are better! Thank you.
Do you take plenty of Vit D3? I take 8000 iu day.
Rica _________________ 2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to flagyl. 90% normal good days-50% normal bad days. That is a good thing.
Robbie
If your clonus has disappeared that is a BIG improvement. I know it is hard to be patient when you do start to see this work. It is only natural to want it to work RIGHT NOW and make you all better. But hang in there-it takes time. Are you keeping a log? Even now I go back and see what I wrote in the past. It makes me realize how much improvement I have had.
Lori
Joined: Jan 28, 2005 Posts: 1047 Location: Northern Ontario, Canada
Posted: Fri Feb 12, 2010 8:02 am Post subject:
hi Terry, doing ok working hard at trying to get my legs working. it is really up and down but over all i am much better than 6 months ago.i was in the same condition for so many years and gradualy getting worse so it's easy to see the differences.it has been just over 5 months now on the doxy an i have added some vitamins to try and help rebuild. my legs, after years of being in the chair they are like straws so i hope i can just keep getting stronger. thanks for asking. _________________ Your never as good as you think you are and never as bad as you think you are
Joined: Jul 12, 2005 Posts: 256 Location: North Carolina USA
Posted: Fri Feb 12, 2010 8:39 am Post subject:
Robbie
You are doing the "hard stuff", entering the unknown, and benefitting from it. Speaking from my own vantage point of five years ahead of you, I am cheering you on, knowing that times can become difficult. On the "other site", we often talk about two steps forward and one back. I have walked like that from the beginning, and I say still: "Take all your stuff!". These are not dangerous drugs and none of us knows, without trying, as you are doing, how far we will go. I have come miles further than I ever believed possible, and will continue. Wishing you the courage it takes to go as far as you can.
Rica _________________ 2010 5 years 4 months Now on Amoxicillin, Doxy, Rifampin, Azith, and caffeine in addition to flagyl. 90% normal good days-50% normal bad days. That is a good thing.
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