Welcome to This Is MS!

     Modules
· Home
· Content
· Downloads
· Encyclopedia
· FAQ
· Feedback
· Forums
· Journal
· Private Messages
· Recommend Us
· Search
· Site_Map
· Stories Archive
· Submit News
· Surveys
· Top 10
· Topics
· Web Links
· Your Account

     Google
Google
Web
This is MS
These ads help pay for the upkeep of our site. They are automatically served by Google and are not affiliated with This is MS.

     Languages
Select Interface Language:


     Who''s Online
There are currently, 195 guest(s) and 56 member(s) that are online.

You are Anonymous user. You can register for free by clicking here

     Next Step

From the creators of This is MS comes Experience Project

EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at Experience Project.

Get started by sharing your Multiple Sclerosis story.


     Donations

To remain unbiased, This is MS does not accept corporate sponsorships.

Therefore, we must rely on our users to help support us. Please donate to our upkeep if you have the means. Thank you!


This Is MS: Forums

View topic - AlmostClever is Liberated! | ThisIsMS.com
 Forum FAQForum FAQ   SearchSearch   UsergroupsUsergroups   ProfileProfile   Log inLog in 


AlmostClever is Liberated!

 
Post new topic   Reply to topic    ThisIsMS.com Forum Index -> Chronic Cerebrospinal Venous Insufficiency (CCSVI)
View previous topic :: View next topic  
Author Message
AlmostClever
Family Elder


Joined: Dec 22, 2009
Posts: 198
Location: Houston, TX

PostPosted: Thu Aug 26, 2010 8:10 pm    Post subject: AlmostClever is Liberated! Reply with quote

Hi all!

Got my plumbing checked today by Dr. S. I can't express how nice this guy and his crew are! My wife came with me and my Aunt came over from Manhattan to be with us. The weather is awesome here compared to the 100 degree hell I live in!

CHECK-IN:

Checked in around noon, Got prepped with an IV in my hand, did some paperwork and was off to the procedure room after 30 minutes or so.

PROCEDURE:

They transferred me to the main table, shaved me and opened up the IV juice. Last thing I remember is some sticking sensation in my groin and that was all.

When I came to, I heard the doc saying something about May-Thurner and we were done in a few more minutes. They bandaged me up and wheeled me back to the recovery room.

RESULTS:

Doc S. came in to discuss the results. Overall, my right jug looked decent but he ballooned it anyway to improve it some. The left jug had "mild" blockage and was ballooned. My azygous was questionable and was ballooned in 3 spots around the curvature portion.(14 mm balloon in the jugs and 10 mm balloon in the azy)

I asked him about the May-Thurner's and he said I definately had it but it did not appear to be affecting me - something about the alternate path the blood was taking... he seemed kind of surprised that I had heard and remembered this. My left leg does not or has never hurt because of this - in fact it is much stronger than my right!

I'll need to go back and read the May-Thurner threads now!

After a couple hours of rest, my incision was checked and I was free to go! Told to take 325 mg aspirin for 3 months.

EFFECTS:

It has only been a few hours and at this report and I cannot determine if anything of significance has happened- no drastric operating room improvements. My head maybe feels a bit clearer if anything...
My MS was very bad this morning (took a hot bath last night - wiped me out! stupid,stupid,stupid!!!) so it may be at least a few days before I'll be able to asses my condition.

MISC:

They are treating up to 4 patients per day - 2 at each location.

I was number 2 of the day at the hospital.

At the end of this month, they will have done 178.

The waiting list is over 700.


I am staying at the hotel across the street from the hospital. It is very nice and convenient with the skybridge! (Note: bring someone strong to open the room door for you! It has to be 1,000 pounds!)

We ate the Recovery Room last night which was nice. For dinner today, we went to Lombardo's (Italian) which came highly recommended by the nurses and was excellent!

THANKS TO EVERYONE HERE FOR YOUR HELP! GOOD NIGHT!!!
_________________
Life's tough... it's even tougher if you're stupid. - John Wayne
Back to top
View user's profile Send private message
PCakes
Family Elder


Joined: Dec 14, 2009
Posts: 486
Location: Canada

PostPosted: Thu Aug 26, 2010 8:22 pm    Post subject: Reply with quote

faaaantastic!! congratulations!! I could read this stuff all day Smile
ooh right ..i do Shocked

hey.. a thought.. couple years from now.. The CCSVI reunion!! how fun might that be Cool

Good healing A.C.!
Back to top
View user's profile Send private message
hannakat
Family Member


Joined: Jan 11, 2010
Posts: 38

PostPosted: Thu Aug 26, 2010 8:50 pm    Post subject: Reply with quote

Awesome! Thank you for the details... really helps those of us still waiting. Sending ++++vibes for healing.

~^,,^~
Back to top
View user's profile Send private message Visit poster's website
Cece
Family Elder


Joined: Jan 05, 2010
Posts: 1644

PostPosted: Thu Aug 26, 2010 9:23 pm    Post subject: Reply with quote

Congrats & healing thoughts to you!

When I read your bit about the 100 degree hell, I had a flash: the reason people with MS are disproportionately from geographically cold climates is simply because heat intolerance drove us here.

Also: aspirin only? Someone else had reported that he was using blood thinners for angio cases, but apparently not always.
Back to top
View user's profile Send private message
blossom
Family Elder


Joined: Dec 04, 2009
Posts: 212
Location: south western pa.

PostPosted: Fri Aug 27, 2010 6:31 pm    Post subject: ccsvi Reply with quote

very happy for you. take care and heal.
Back to top
View user's profile Send private message
Shea
Getting to Know You...


Joined: May 28, 2010
Posts: 12

PostPosted: Fri Aug 27, 2010 7:41 pm    Post subject: AlmostClever is Liberated! Reply with quote

Congrats and take time to rest. I had the procedure done on Monday and had blockages in the jugulars and azygos.... Angioplasty of the three blockages, with no stents. I am on Plavix for three months. Another patient of Dr.S is on Plavix for 6 months and she had less blockages so I'm not sure the criteria for blood thinners or aspirin. I had my follow-up ultrasound done after the procedure and others had to return the next day. I was fully awake for the whole procedure.
Best wishes for continued improvements and a speedy recovery.
Back to top
View user's profile Send private message
BadCopy
Family Member


Joined: May 24, 2010
Posts: 99
Location: 10,000 Lakes

PostPosted: Fri Aug 27, 2010 10:30 pm    Post subject: Reply with quote

The best to you Almost. Wish you the best!!!! REST.
Back to top
View user's profile Send private message
lovebug
Getting to Know You...


Joined: Jan 02, 2010
Posts: 21
Location: calgary

PostPosted: Sat Aug 28, 2010 12:38 pm    Post subject: CCSVI surgery Reply with quote

All the best to you! Keep us posted with your progress in the next day, weeks and months. I am so happy I discovered TIMS months ago so that we MS patients are kept on top of things. I find people here seem to me to be more educated on MS than most drs. I have encountered. Keep up the fine work folks. We are all benefiting from your experiences. I am scheduled in 2 weeks in California. Oh am I nervous!!!!!!!!!
Back to top
View user's profile Send private message
burg
Family Member


Joined: May 10, 2010
Posts: 31
Location: New York City

PostPosted: Sun Aug 29, 2010 8:13 am    Post subject: Reply with quote

Congrats AllClever..Great to hear good news. I'm sure you'll improve as time goes on..
Back to top
View user's profile Send private message
L
Family Elder


Joined: Oct 21, 2007
Posts: 638
Location: The United Kingdom

PostPosted: Sun Aug 29, 2010 10:29 am    Post subject: Reply with quote

Great!
_________________
A film about someone over coming the odds.
Back to top
View user's profile Send private message
Display posts from previous:   
Post new topic   Reply to topic    ThisIsMS.com Forum Index -> Chronic Cerebrospinal Venous Insufficiency (CCSVI) All times are GMT - 6 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum





We encourage you to also visit our Multiple Sclerosis support community on Experience Project. Experience Project is a vast and powerful community where people connect anonymously through life experiences. It's made by the same people who built This is MS, on the premise that no single life experience-- like having MS-- defines a person. EP now covers over 5 million true stories about every possible life experience. Find and share yours!


Network Sites: Secret Confessions | Dream Meanings | Question and Answer | Song Meanings | Baby Name Meanings
Site Map

This site does not offer medical advice. All treatment decisions should always be made with the full consent of your physician.

 


All logos and trademarks in this site are property of their respective owners. The comments are property of their posters, quoted articles are © referenced source, all the rest © 2002-2010 by thisisMS.com.