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Joined: Jul 30, 2009 Posts: 862 Location: Slovakia, Europe
Posted: Thu May 13, 2010 2:06 am Post subject:
Joan and Jeff!
Congratulations from Slovakia!
Erika _________________ LUCKY GIRL, Aug. 7, 09 Doppler Ultras. made by Dr. Simka in Poland, left Jugularis valve problem, RRMS since 1996, EDSS 5,5, Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, IBT-for 3 months, never on DMDs
Joined: Nov 08, 2004 Posts: 1202 Location: Colorado
Posted: Thu May 13, 2010 8:21 am Post subject:
Congrats to you and Jeff and to Dr. Dake!
No new lesions - what wonderful news. And, no enhancement - I can't remember, but didn't Jeff have enhanced lesions on his pre-op MRI? If he did, and now there is none ---WIPEE!
The Stanford stenters are starting their one year trek back to California---to my knowledge, none of us have reported any major setbacks....so, I think we will be reading about positive follow-up postings similar to Jeff's. Keeping my fingers crossed for everyone.
Joined: Oct 01, 2007 Posts: 3 Location: Farminton, NM
Posted: Thu May 13, 2010 1:44 pm Post subject:
Thank you Jeff for posting this. And, Thank you so much for being so generous with your wife's time and help. What a gift she is to all of us, You and your son are lucky indeed. Keep getting better and keep us posted as time rolls on.
Jeff and Joan.....so so so very happy for the 2 of you. You have both touched so many lives in ways that you many never completely see, but they are good changes.
I'm a little nervous about the pain during the procedure, I have terrible head aches and can usually tolerate quite a bit, but I guess it's just wearing me down. I may have to go abroad for treatment, but it will only energize me and better lift my brain fog to fight for all my MS brother's and sisters.
Joined: Sep 12, 2006 Posts: 2096 Location: Dayton, Ohio USA
Posted: Fri May 14, 2010 10:18 am Post subject:
Great news Jeffrey! I go on July 13 for my one year. It's funny you say he still deals with headaches somewhat. I have been too, but only since my lower stent area has been a little tender (it's been that way for a bit now). So I expect the same thing! I think I'm flowing well but just am dying to make sure the flow is good.
Joined: Sep 11, 2007 Posts: 3223 Location: southern California
Posted: Fri May 14, 2010 10:56 am Post subject:
Loobie wrote:
Great news Jeffrey! I go on July 13 for my one year. It's funny you say he still deals with headaches somewhat. I have been too, but only since my lower stent area has been a little tender (it's been that way for a bit now). So I expect the same thing! I think I'm flowing well but just am dying to make sure the flow is good.
And as always when I'm out there, I'm going to have them triple check the azygous area. Good report you two.
yeah, Lew- these are new headaches since last November...like chronic cluster headaches, they come and go. Dr. Dake has taken him off caffeine and making him hydrate more (which is huge, since Jeff became a coffee fiend in recent years, to deal with his MS fatigue), and he's feeling really good today --no headache!...maybe with new blood flow, the vascular affects of caffeine have been stronger? I have no idea. Dr. Dake is on it. The good news is that his brain and stents look good, his energy and symptom relief are still here, so- onward! Certainly never dull with you guys--hope you get great news in July!
j _________________ Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS
Joined: Nov 27, 2009 Posts: 234 Location: Melbourne, Australia
Posted: Fri May 14, 2010 4:19 pm Post subject: switch caffeine...ginger tea
I reckon the porous blood-brain barrier makes an MSer more suseptible to the effects of caffeine. Anyway, I gave up caffeine too as I get too meany headaches when I consume it. I switched to ginger tea (just a slice of fresh ginger...lasts several cups). It has the benefit of improving circulation.
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Congratulations!!!!! Good things.. Good people !!
