studies on discontinuing therapy

pschenken · Newbie Joined: Mar 21, 2005 Posts: 4

This is just a hope that someone has heard of a study on the impact to an individual when stopping therapy after over 4 years of treatment. I have asked my neurologist and he was not aware of any.

Is there any evidence supporting increased disease activity or accelerated loss of capability after the therapy is terminated?

The primary reason for the question is that it appears upon retirement I will either have to stop the therapy, change to a minor health plan with high co-pay and deductibles or continue working just for an insurance benefit.

This (along with many other factors) is part of the decision process that will be necessary

LindaR · Posted: Mon Mar 21, 2005 2:42 pm Post subject:

Don't foget that the drug companies also offer assistance in helping to pay for copays.

treez · Posted: Mon Mar 21, 2005 3:03 pm Post subject:

Wouldn't a cure be a blessing from above..................I'd part with all my material objects for a cure for my family and I, remember all, it's not just us that have to deal with this day in and day out.

Don't forget your families and greatly supportive friends who try to understand.

Treez

P.S. And sorry, I've never seen a study regarding discontinuation of therapy.

Katman · Posted: Sun Dec 25, 2005 1:21 pm Post subject: discontinuatoon of interferon

Interferon in its several forms, including Avonex, is a SYMPTOMATIC treatment of MS. I am PPMS and for nearly 10 years went inexorably downhill. My little sister found David Wheldon's website and he directed me to ThisisMS. Then began www.CPn Help. By then I was off and running and now after 15 months of devoted antibiotic and supplement use I have not had my Avonex shot for almost 2 weeks and probably won't have any more because I don't need it. I have not deteriorated ANY since it was time for my shot. In the past I wished I could get it early more and more often because I could get around less and less. I would be in a wheelchair or dead by now if I had not begun abx. I have said before that I know in my bones that I will never be completely well but now instead of my big event of the day being staggering to the bedroom, I go for 12 or 14 hours at a stretch: no cane, no walker, no wheelchair, clear of mind. If you want to try treating the underlying infection of at least some MS, join us.

Rica
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EDSS at beginning of 43 months of antibiotics 6.7 now 2 - on good days almost normal