antibiotic treatment for teen with mild RRMS

chalam

My 17-yr-old daughter was diagnosed with RRMS 18 months ago. She is on Copaxone now and doing alright. However, I'm much more interested in the CPn ideas relating to MS, as she has asthma too. Is Wheldon's antibiotic regimen a possibility for early RRMS with few symptoms?
She takes 100mg of minocycline per day for acne.
thanks
chalam

Anecdote · Posted: Fri Aug 11, 2006 2:11 am Post subject:

Hello Chalam,

To be very brief and to the point, the regime is more than a possibility at that stage, because the earlier it is started, the better. If your daughter just had RRMS, you might take longer to notice the change, because it might be years before you noticed that she just wasn't getting relapses any more, especially if she is on copaxone as well, which is supposed to lessen the rate of relapses. However, you should notice the difference sooner in the asthma. I had adult onset asthma, which although not particularly severe, was a definite hindrance. That was three years ago, but I now haven't had the need to use an inhaler for two years.

You can take the antibiotics alongside copaxone, but I guess you will find difficulties in getting your daughter's neurologist to prescribe them. Your GP is probably the person to try, armed with David's pdf file: http://www.davidwheldon.co.uk/ms-treatment.pdf and something else that I will soon be able to direct you towards. If your GP is a patient one, David's whole site gives much more evidence and is now much easier to navigate. His email address is at the bottom of page 1: An Overview of Evidence, if either you or your GP would like to write to him.

Best of luck to you both,

Sarah
_________________
An Itinerary in Light and Shadow
Completed Stratton/Wheldon antibiotic regime for aggressive secondary progressive MS in June 2007, after four years. Still slowly improving with no exacerbation since starting. EDSS was 7, now 2 or often less.

chalam

Thank you Sarah,
I went to see our GP who just happens to be English, young and cool! (we are a franco-american family living in Tokyo.) I printed out the cover page to your husband's MS-treatment site and asked her if she would be willing to study the site. I mentioned also that she could email with questions. She promised that she would read the info. I've chosen to interpret this initial receptiveness as a good thing! We'll see.
Thanks,
Laura

Anecdote · Posted: Sun Aug 13, 2006 7:19 am Post subject:

Hi, Laura, that does sound quite promising, and I have noticed over the last few months that more GPs are becoming a bit more adventurous and not just saying that they can't do anything without a neuro's approval. I'll keep my finger's crossed.

Sarah
_________________
An Itinerary in Light and Shadow
Completed Stratton/Wheldon antibiotic regime for aggressive secondary progressive MS in June 2007, after four years. Still slowly improving with no exacerbation since starting. EDSS was 7, now 2 or often less.