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Posted: Sun Jul 18, 2004 8:26 pm Post subject: New member
Hello, my name is Hilda. My 19 year old daughter was diagnosed with MS 2 years ago. She was very sick when she was 1st diagnosed. She spent 26 days in the hospital. She was unable to move her arms, legs, unable to swallow and talk. Treatments were massive doses of IV steroids, blood plasma exchange and finally chemo. That seemed to do the trick for almost 2 years. Had a couple of flare ups in the last 2 months and the IV steroids have not helped so she decided to do another chemo treatment (Novantrone) since she really wants to go back to college in Aug. I have found great info on this site. Thanks to all !
Joined: Jun 28, 2004 Posts: 32 Location: South Louisiana
Posted: Mon Jul 19, 2004 6:51 am Post subject:
Hello Hilda and Welcome!
I am sorry to hear of your daughter's dx with MS but, glad she has found a trtmt that is working for her. I hope she will be back in full swing in her life soon.
You may want to look up another member CCMom as she has a son that was dx'd and is also on the same med I believe. She is a wonderful woman who is also experiencing some of the things you are. Lots of wonderful ppl and info here on this site. Glad you found us.
Hi, Hilda. I responded to your private message, so I hope you got it. My son isn't on Novantrone, but it sounds like they both started out very similar to each other.
Thank you for the kind words, Dawn.
Aaron, if you're reading this, maybe that forum for teens/parents of teens with MS is going to eventually be necessary!
This board is fantastic, Hilda. You will find a wealth of information here. I am really excited about it!
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We encourage you to also visit our Multiple Sclerosis story and support community on Experience Project.
Experience Project is a vast and powerful community where people connect anonymously through life experiences. It's made by the same people who built This is MS,
on the premise that no one life experience-- like having MS-- defines a person. It now covers over 2 million life stories. Find and share yours!
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I think it may indeed need to be set up (unfortunately...).