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Thanks for the welcome, Bonnie! Hope you had a nece trip!
A bientot,
Brenda _________________ Brenda H.
Only one thing has to change for us to know happiness in our lives: where we focus our attention. -Greg Anderson
Posted: Mon Jan 26, 2004 2:44 pm Post subject: Marathon runner with MS
Hello everyone,
I am 26, female, from Vermont. I was diagnosed with RRMS about three years ago now, and have been on Copaxone ever since. I had ON and full-body numbness during two episodes which lead to my diagnosis. Luckily, since then I have been relatively symptom free, with only occasional bladder issues and numbness to deal with.
In order to deal with my worries, I guess I kicked my physical life into overdrive after I was diagnosed. I rode my first 'century' bike ride, which is 100 miles in one day! I started playing women's rugby, and currently I am training to run my first full marathon in May. I work out four days per week at least, soon to be five.
I always worry about what MS may do to me in the future, but for now I am not taking my physical health for granted and am determined to accomplish everything I can with this body of mine while I still can. My long term goal is to eventually attempt an Ironman triathalon, if I could ever get sponsorship so I can train enough. In a way I am thankful for MS giving me the motivation to accompish these things. I always think that I will have plenty of time later to watch TV or go back and get my Master's degree.
After reading in here about endorphines and all that, I am wondering if perhaps my extreme physical activity after diagnosis is one of the things that has kept me healthy for this time. If so, I had better keep it up!
Thank you so much for posting your stories here and I look forward to interacting with you all.
Joined: Jan 27, 2004 Posts: 14 Location: London, England
Posted: Tue Jan 27, 2004 5:18 am Post subject:
Hi, I'm Ann from south-east London, England, 47 years old. Diagnosed in 1994 after the birth of my third baby although first symptoms (ON) appeared when I was 21 (but nobody said anything about MS then). I have been married to Andy for 24 years and have three children, two girls 21 and 20 and one son 10. I was on Rebif from May 2003 until Christmas when I decided it really wasn't doing me any favours and stopped taking it. Since stopping the Rebif my mobility has improved and I can now walk (shakily) without my crutches. Before the Rebif I could walk about a mile or so very steadily.
LDN sounds interesting, but how does one go about getting it? Do you need a prescription?
Hi everyone, I'm new here. I was dx in Sept. 2002. Started on Avonex in Oct. Have change to rebif 6 months ago. I'm 34 married with 3 wonderful children! I'm a daycare provider and very busy with my 3 kids.
Posted: Fri Jan 30, 2004 8:26 pm Post subject: Hi from Amy
Hi All
My name is Amy. I have RRMS. My original attack was on September 21, 1997. My right leg was yucky, and then it went into my left leg. My MRI's showed a big nasty lesion on my spine and 3 little ones in my brain. 6 months later, the spine lesion was gone. The brain ones have remained. Seven years later on September 28, 2003, I had an attack of optic neuritis.
All these years I was on the Swank diet. In the last year, however, I fell off the wagon slightly (I ate half of a dove bar in August...) due to the tragic death of my Dad, who was my best friend. My neuro thinks this brought on this latest attack.
Anyway, my elderly mother recently had a set of MRI's and she has lesions in her brain, which they say looks alot like a demyelinating disease. She denies any MS-like symptoms.
I have a great husband and 2 beautiful babies, ages 5 and 2. I am 44. I hope this MS thing crawls back to hell where it came from, because I don't have time for it.
Joined: Jan 30, 2004 Posts: 85 Location: Devon - England
Posted: Sun Feb 01, 2004 2:00 am Post subject: An introduction
Hi all,
I have been hanging around in the background for a few days and thought it was about time I introduced myself.
My name is Chris and I'm 52 - I was diagnosed some ten or eleven years ago and was retired from my job as a Computer Programmer shortly afterwards.
I have never been told that I fall into the PPMS category but as I have never had relapses, just a continual progression of symptoms, I think that must be it. I have never taken any medication, or been offered any, but I am now pushing my GP to let me try LDN.
I am just about mobile around the house, though my wife Cathy claims that I roll around the walls rather than walk. Balance and fatigue are my worst problems, I consider myself very lucky not to have experienced much in the way of pain that I read others are having, just cramps and tenderness.
That's enough for now, I have to write to my GP again, trying to speed things up.
Joined: Feb 01, 2004 Posts: 6 Location: New Hampshire
Posted: Sun Feb 01, 2004 8:31 pm Post subject:
Hello! Hope no one minds but I have yet to be diagnosed....I will be 29 yrs old in 9 days! 3 babies...almost 7, 4 and 20 months. Happily married.
I found this site from Montel's site of which I visit when I want to be reassured I am NOT crazy! In my heart I believe I have MS but there has been no clinical proof fond. My Neuro believes it is probably MS. Instead I deal with attacks and no answers! Thanks!!
Hi I'm new here. I was dx in Sept. 2002. Have 3 wonderful children ages 12, 9, & 8. Married 14 wonderful years. I started on Avonex and have changed to Rebif.
What a surprise to see so many new intros on this thread.
mswp, fringedgention, annW, diehlbhg, Amy, september1968, crispy, aeroangel and dawny, nice to meet you all and I enjoyed reading all of your introductions.
BrendaH, thank you I did have a very nice trip. _________________ Bonnie
Posted: Tue Feb 03, 2004 8:59 am Post subject: well it is a mob scene, now
Garsh, a lot more people now than when I last peeked in the door. 315 registered, from all over the place, what a lot of stories and exerpiences to share. Dont be shy, belly on up to the board and meet-n-greet. Nice to see so many "faces".
Posted: Thu Feb 05, 2004 6:56 pm Post subject: Intro.
Hello fellow MS friends (FAMILY) My name is Linda. I am 52yrs. young and live in southern Louisiana. I was officialy diagnosed in Jan. 2003 after Years of classic? symptoms. My neuro says I have had ms for at least 10-probably more likely 15 yrs. I have 27 lesions on my tiny brain!!! I still work 40 hrs. a week as a Health Information Processor. I have horrible headaches, LOTS of dizziness, Legs feel like jello sometimes, but at least I am still walking. I take avonex because of the convienence, but I get really sick from the shot. Thinking of talking to my Dr. about changing. Appreciate all input I can get from all of you on different meds. Wishing and praying for all of you better health. ( Forgot to mention, I have a wonderful and supportive husband-- just got married in Oct. 2003.
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I'm a daycare provider and very busy with my 3 kids.
