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ThisIsMS.com :: View topic - Burning
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Burning

 
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jana
Getting to Know You...


Joined: Nov 14, 2005
Posts: 15

PostPosted: Wed Mar 14, 2007 3:44 am    Post subject: Burning Reply with quote

Hello, 14 days ago I had terrible reaction on copaxone. Vomiting, problems with breath and so on...

From the time I have during a day problems with terrible burning (in my head especially, than my shoulder and chest) and with feeling of lack of air in my lungs, I am afrai of swooning but it never happens). Does anybody know this? Is it from MS, or from Copaxone? My doctor doesn´t know and I´am very nervous from it. Pleas write.
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Niko
Family Elder


Joined: Jan 12, 2004
Posts: 102
Location: New York, USA

PostPosted: Wed Mar 14, 2007 6:06 am    Post subject: Reply with quote

Jana,

Hi! I hope this message finds that you are feeling better.
When you started on Copaxone were you given any information on nursing/support that you could contact?

In the US you could call "Shared Solutions". I'm don't know if there's something similar to where you are in Europe.

Take care,

Niko
_________________
"Avoid making irrevocable decisions when tired or hungry." -- Robert Heinlein
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jana
Getting to Know You...


Joined: Nov 14, 2005
Posts: 15

PostPosted: Wed Mar 14, 2007 7:07 am    Post subject: Reply with quote

I didn´t here that there is a center or a telephone line to contact when having problems with copaxone, I know something is for Betaferon but not from copaxone. That´s why I´m trying to find help here. But thanks for your reaction!
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Manchester
Family Member


Joined: Feb 01, 2007
Posts: 46

PostPosted: Wed Mar 14, 2007 8:16 am    Post subject: Reply with quote

Hi Jana,

The shared solutions website says
Shared Solutions® representatives can be reached by calling 1-800-887-8100, Monday through Friday, from 8:00 a.m. to 8:00 p.m. (CT). MS-certified nurses are available after these hours for more urgent needs.

Best thing would be to call the number and ask to speak with a nurse.

Good luck
Manchester
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