EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at
Experience Project.
Joined: Aug 12, 2004 Posts: 5 Location: Connecticut
Posted: Fri Aug 13, 2004 7:30 pm Post subject: Hi Everyone
Hi everyone! My name is Jenni. I am 14 and I was diagnosed about two months ago. If anyone wants to chat I'm always up to metting new people. Hope to hear from you all soon. _________________ ~>*>Jenni<*<~
Hi, Jenni! So happy to see you here! I'm working on getting more people your age to the site, so if you find anyone in your internet adventures, please let them know about this board. I know your story, but I'm sure others who use this message board in it's entirety would like to hear more about you!
For those of you who don't know me, I have a 16 year old son who was diagnosed with MS 3 years ago, at age 13. And as soon as I can get him to sit still long enough, I will ask him to post his story here!
I am so thankful to Arron for adding this forum. Ever since my son was diagnosed, I've searched for other young people, and my hopes are to bring everyone together here, on this forum. We all need support and friends who understand where we are coming from, people we can count on to understand our ups and downs, and just to listen. And I've never believed young people with MS belong in a regular MS message board with the majority of the people posting there being older. I think the young people with early MS diagnosis' are looking at an entirely different future than some of the MSer's who waited years and years for a diagnosis. There is so much hope on the horizon for you!
I think you will enjoy utilizing this web site. I certainly have. It is truly user friendly, and full of important information that will provide optimism and hope for all who take the time to browse around and read a bit. I hope that you will also encourage your parents to use this site. I think it is important that we all learn all we can learn about the different treatment options, and about each other.
I will be the moderator for this forum, so if anyone has any questions or would like to get in touch with me directly, please send me a private message. I'm looking forward to hearing from you, and please help spread the word!
Joined: Feb 02, 2004 Posts: 864 Location: California, USA
Posted: Thu Aug 19, 2004 6:29 pm Post subject:
Hi Jenni, welcome to our site. Your journal entry was great-- I hope you continue to find the community useful and please let us know if we can do something better.
Posted: Mon Dec 13, 2004 4:37 pm Post subject: MS in Kids and Teens
Hi all...
I just posted a long response (to Kim) in the general discussion section before I noticed the 'under 25' forum below.
I linked to some resources for kids and teens with MS, including a link to the NMSS site where you can get the Parent Handbook "Kids Get MS Too" I don't want to cross post, so find my other comments there!
I went on the site and read the two MS stories - they remind me of so many of the sites flogging dodgy supplements etc etc. I couldn't see any price list but assume we get this when we call you.
If the product is so great -why do we not hear about it at neurology conferences etc. Why has it not been trialled?
Let's come clean - what are you asking us to buy and how much is it?
This site is for people with this disease to share their experiences / talk about future treatments etc. It is not intended for salesmen to prey on the desperation of those with chronic diseases in order to make a profit.
You are either selling a supplement, or a book telling us what to avoid, or you services (whatever they are).
I have notified the site administrator to have your post removed.
I havent actually been to this messageboard for a while so was quite suprised to discover someone from here had sent me a PM.
Didnt know what to make of it but then I realised that it was pretty much identical to what had been said here.
Like Bromley I have no idea what the Witters agenda is but what worries me is that I suspect its highly unlikely I was the only person PM'd.
There are a lot of people out there willing to try and scam MSers and other people desperately searching for answers and so we all have to be so careful and question anything that seems too good to be true... because it most likely is
Joined: Feb 02, 2004 Posts: 864 Location: California, USA
Posted: Mon Nov 28, 2005 10:28 am Post subject:
James, the ad on the screen is paid for by you to Google in a section sanctioned for advertising.
This bulletin board is NOT and it is obviously unacceptable for you to come here and mine business in this fashion. I also do not appreciate you sending private messages to members attempting to sell your goods. I think you know very well that this is not OK-- the private messages are intended for personal communication of a non-commercial nature.
Your posts will be deleted. Thanks for your understanding. _________________ Disclaimer: Any information you find on this site should not be considered medical advice. All decisions should be made with the consent of your doctor, otherwise you are at your own risk.
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We encourage you to also visit our Multiple Sclerosis story and support community on Experience Project.
Experience Project is a vast and powerful community where people connect anonymously through life experiences. It's made by the same people who built This is MS,
on the premise that no one life experience-- like having MS-- defines a person. It now covers over 2 million life stories. Find and share yours!
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