EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at
Experience Project.
Posted: Thu May 17, 2007 10:13 pm Post subject: looking for testimonies
hello everyone.... i was just wondering if i could get anyone to give me some feedback about tysabri. my wife melissa has been diagnosed with ms for almost 3 years now and has gotten pretty bad within the last 6 months. she cannot move her legs at all and its slowly creeping up her body. her dr. has finally suggested tysabri and we are both concerned. she is willing to do it because she wants to get better. her will is strong and faith is as well. she is currently on copaxone and other meds for her nerves,depression and seizures. has anyone out there taken this drug and what are your results? do you recommend it? we pray that all that are affected by ms have enough strength and will power to overcome your situations. keep fighting everyone!
rene
Rene,
I am glad you are so optimistic about Melissa's situation. That is most of the battle! Hope all is well? I did try Tysabri, but felt that I was getting worse. I gave the drug 5 infusions to do some magic or stabilize me somehow... nothing. I stopped Tysabri and my neuro suggested IV-Ig. That is a biweekly infusion over 5 hours... it didn't work for me. Now I decided to try LDN 2 weeks ago (you can read about it at www.ldn.org) and I am "on hold"and waiting. Haven't gotten worse yet. I have concluded that all the meds don't work with my body, so now I'm back to basics... exercises (what I can), diet, happiness, LDN. Good luck!
lollipop
You cannot post new topics in this forum You cannot reply to topics in this forum You cannot edit your posts in this forum You cannot delete your posts in this forum You cannot vote in polls in this forum
We encourage you to also visit our Multiple Sclerosis story and support community on Experience Project.
Experience Project is a vast and powerful community where people connect anonymously through life experiences. It's made by the same people who built This is MS,
on the premise that no one life experience-- like having MS-- defines a person. It now covers over 2 million life stories. Find and share yours!
Forum FAQ
Search
Usergroups
Profile
Log in to check your private messages
Log in
