EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at
Experience Project.
Posted: Sun Aug 29, 2004 5:24 pm Post subject: Dear Jenni
I have had ms sense 1997. I have been treated at 2 major ms centers and have been treated with several different treatments (trial and approved).
I will tell you anything I know, that you think may help. There is alot of information available both good and bad. Feel free to p/m me and I will pass along anythig that I have learned.
As Steve mentions a lot of people here have vast experience and information about MS and I think you will find quite a lot to get you started on the website.
Anything you don't understand just post up a message and lots of people will reply giving you a whole range of opinions to help you make up your own mind about what will work for you.
You haven't got back since yesterday so I do hope you are ok. Do let us know how you are doing.
Posted: Mon Aug 30, 2004 6:30 am Post subject: Hey, Jenni
I emailed you yesterday and haven't heard back from you. I hope you are feeling better. Those steroids really wreak havoc on your body, emotionally and physically, and my son says that sometimes coming off of them is worse than taking them.
I'm glad you moved out into the other forums here. Great bunch of people, huh? Please let me know how you are. I know that school countdown is stressing you a bit, too, so take some deep breaths and talk about it with your Mom, and us!
1 more thing, Jenni. I believe you will be starting your Copaxone this week. Have you had your training on the injections yet? This might be causing anxiety for you, and anxiety also plays a huge part in your hormones and that other question you had! I thought I would suggest that you make a list of your questions regarding Copaxone and post them in the Copaxone forum here, and hearing from others might help. Colby never used Copaxone, so I can't be much help in that area! The more you know, and the more you research, the easier all these things are to deal with. I think you know that!
Joined: Aug 12, 2004 Posts: 5 Location: Connecticut
Posted: Mon Aug 30, 2004 9:51 pm Post subject:
Hello everyone. I only have a minute but I jsut wanted to stop in and let you know that I'm doing a bit better. I start a new baysitting job in the morning so I have to get to bed. Sweet dreams to all of you. Goodnite. _________________ ~>*>Jenni<*<~
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at 2 major ms centers and have been treated with several different treatments (trial and approved).
