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i have been taking ambrotose for six months. i stopped taking my therapy end of december 06 at which time i started increasing my ambrotose doseage significantly. went to neurolgost march 07 and complained symptoms were worse. he recommended chemo to calm down my immune system. it occured to me then that the Ambrotose was for immune support. I DO NOT RECOMMEND AMBROTOSE FOR ANYONE WITH MS. It made my symptoms worse. I stopped it immediately and slowly my body is returning to the pre-ambrotose state. I am not losing balance and falling as much, and so many others symptoms have calmed down. I had to find out for myself. they at mannatech don't, not recommend it for anyone they just want to SELL SELL AND MAKE MORE MONEY! Heck i was beginning to think my MS was very progressive in nature.
I am sorry....but I have to dissagree with what you are saying. I have been on the products for a little over 2 years, it takes time, this product has changed my life. My MS symptoms have dissapeared 80%. Before you judge, do your research. Being blind to the science and technology of Ambrotose is ignorance. I am not in it to make money, I am in it to help people!! Open your eyes, the answer is right in front of you if you do your research!!
I tried this when my diagnosis was peripheral neuropathy.
I took about 40 tablets (of the 60 in the bottle @ 150mg), and didnt notice any changes, so gave up on them.
But, this does not mean they will do nothing for you.
With all due respect, you need to stay on the products longer than 40 tablets. You need to give it at least 4 months. The body takes time to respond. Go on glycoscience.org and do your research!! It has changed my life!!
Posted: Fri Jun 01, 2007 8:59 pm Post subject: Ambrotose on 20/20
How timely to find this posting only MINUTES after watching a segment about Ambrotose on ABC's 20/20!!!
About a girl named Angie who has a brain tumor; she is foregoing the doctors' recommendation of chemo and using only Ambrotose--$200 per month!!! After much time, another MRI shows the tumor is still there--same size.
Film from inside the associates' meeting talked of "targeting" such illnesses as cancer, multiple sclerosis, rheumatoid arthritis, cystic fibrosis, even Down's syndrome! The leader's question to the associates was "Do you want to be rich?"
I'm as desperate as anyone; I tried this once--no help; I will NOT be trying this again, especially after seeing this TV program!
Joined: Feb 09, 2008 Posts: 1 Location: Melbourne, Australia
Posted: Fri Feb 08, 2008 11:25 pm Post subject: Thanks for the input on Ambrotose
I googled Ambrotose because it has been recommended to me by a couple of (caring and close) friends. In doing so, I came across this website and this forum discussion.
I wanted to say thank you for all the input and reading matter. Thanks especially go to Napay/'notasperfectasyou' for your thorough research and helpful comments. You've made me think twice about all of the posts and info I have read that report that Ambrotose is great for people with MS. I'll be doing some more research and talking to my doctors before I let Ambrotose free on my macrophages!
Joined: Feb 10, 2006 Posts: 394 Location: Northern Virginia
Posted: Mon Feb 11, 2008 8:50 am Post subject: What a sticky Name
First of all........WELCOME to TIMS!!!
I hope you come back here and get to know us. While I appreciate your compliment, you'll find if you spend some time here that TIMS is a very unique collective of very smart folks. There is a lot of research, thought and debate here. You won't find this much knowledge on most other sites.
Regarding Glyconutrients. I just don't know. You should also read up on N-Acetyl Glucosamine. Sometimes called NAG but often called GlcNAc. Right now Kim is off glyconutrients. Perhaps we will try them again, but right now, we don't want to do anything that might disrupt her current treatment. The last time we tried a Glyconutrient, GIcNAc, we got an unpleasent surprise.
Now I will say I'm not totally down on the stuff. It's possible that Kim had a negative response to something else or the reletively small dosage she was taking. My advice is to have a solid understanding of why you are taking things before you take them. Please don't take things because others think you should. You need to take the thinking one step further to have your own logical understanding and TIMS just happens to be a great place to work through that need.
Posted: Sat Mar 15, 2008 11:08 pm Post subject: Ambrotose and MS
I noticed this forum on MS and wanted to comment on the use of Ambrotose in MS. There are 2 types of Ambrotose. The original Ambrotose, Classic, is an immune modulator, which means it balances the immune system. This is the Ambrotose that is recommended for auto-immune diseases of which MS is one. The other Ambrotose is Advanced. This is an immune stimulator and is not recommended in the use of MS as the immune system does not need further stimulation. I know of the testimony of one man that was on Ambrotose for 5 years and is now completely healed. He has helped others with learning about it as well and asks for the same commitment from others. Not everyone has to wait that long to see results, thankfully. I would suggest starting out with a scoop (1/4 tsp) morning and night and working up to 1 tsp morning and night. The Classic is also less expensive to use than the Advanced. I personally do not believe I can put a price on health.
I would also check the alternative medicine and MS websites for further info. Vitamins along with antioxidants are making huge headways in healing.
I am an RN who has chosen to go the alternative medicine route although I know there is a place for western medicine. But I have seen so much more healing with the use of alternative medicine and especially with the use of glyconutrients.
Oh, and the piece on ABC was not an accurate interview. The real interview of Angie Rhodes along with Sam Castor's interview at one point was posted on youtube.com. Check it out. Big Pharma is down on this company as their products are making a huge difference. The pharmaceutical companies are spending megabucks to come up with a synthetic version of these sugars without success. What they do have is VERY expensive and not effective. So this was no surprise.
For those that are interested in more of the science, there is alot of info from 3rd party companies with no interest in the business side of things.
Check out the individual sugars on pubmed.org. You can also do an internet search of glycobiology. I will never get through all the postings on the internet about this subject! They are too vast! This is legitimate...I've done the research. Check out youtube.com on the inner life of the cell as produced by Harvard University. http://www.youtube.com/watch?v=aco3Xwy6dew
It may help to know that each cell has protein and fat hairs that are necessary for communication. These hairs are all coated with these essential sugars. When the sugars are missing, the cells are unable to communicate, hence disease. By restoring the sugars to the cells, they are able to properly communicate. I was fascinated to see a picture of these glycoproteins (protein/sugar hairs) in my daughter's anatomy book!
It has also been written in Harper's Biochemistry Medical Textbook which many of the medical students are currently using.
Hello to all of you on the forum. I've been reading this (and other threads) with interest having stumbled upon the site in the course of my research on the internet. I should make it clear to everyone from the outset that i do NOT have MS, nor do i know of anyone suffering from MS.
I do, however have a scientific background and specialised in the immune system and it's recognition of glycoproteins for my PhD.
I just wanted to say that having done a (admitedly) cursory search of these 'glyconutrients' over the last half hour, I am shocked that some people appear to be insisting that you need to take a pill whose only stated ingredient is sugar, for more than 4 months to experience an effect!
There are so many obvious problems with this stuff, I don't know where to begin...
First of all, these "8 essential sugars". Yes, sugars are very important molecules and are used by the body in a variety of different ways and it is important to make sure that people are getting enough of the right types. The thing is that I cannot imagine a situation where anybody in a developed country would NOT be consuming these in an average diet. You don't even need to get some of these molecules from your diet. For example, if you have glucose in your diet, your body MAKES its own N-acetylglucosamine (NAC or GlcNac) naturally.
I'd like to ask exactly how a previous poster can say that these pills don't have an LD50? And why they aren't subject to approval by the FDA (or other bodies). If you are advocating their use to treat a disease, then there should be SOME evidence that they work. If it is as good as all these advocates are saying why can't i find a single study of it? surely someone can design a robust and controlled trial? Of course the placebo arm might present some difficulties. A placebo is, by definition, a treatment which appears identical in every way to the study treatment, but is known to be inert and to have no physiological effect. Now normally a placebo pill would conatin just sugar or starch, but in this case that is the "active ingredient" in the treatment under investigation. Hmmmm.... Anyone else thinking that this 'magic pill' might just be using a placebo effect? And how on earth would you control for variations in diet etc?
I'd like to re-iterate the advice that NAPAY posted here earlier. By all means have an open mind to therapies to help with your condition (not just in MS, but your total health). But please, please remember that although some people will be very vocal in their opposition against 'Big Pharma' and the cynical way they extort money from people for treatments that don't always work (true), they are NOT the only ones trying to get their hands on your money! All you can do is ask yourself, does this make sense? How reliable is the evidence and is it independently verified?
Joined: Feb 10, 2006 Posts: 394 Location: Northern Virginia
Posted: Tue Jun 03, 2008 9:02 am Post subject: glucose
ElmerPhd wrote:
For example, if you have glucose in your diet, your body MAKES its own N-acetylglucosamine (NAC or GlcNac) naturally.
Elmer,
I am most particularly interested in your statement I have quoted above. On a number of fronts.
First, thank you for coming here. Although you are not an MS'er, it's wonderful to have someone around who has a scientific background and I hope you'll stay and visit with us for a while.
There are a number of us following the antibiotic protocol for MS who take Glucose. We find that it benefits us by reducing porphyria, increasing energy, reducing brain fog and settling upset stomach that can occur while taking some of the ABX. Most of us who use Glucose get the chewable horse pills at the pharmacy.
Our group is also taking n-acetyl-cysteine (NAC) as a key part of the protocol. Does glucose convert, in part, to NAC? If so, how much NAC would one ingest from a gram of glucose? I can get you a link to info about why we are taking NAC if you want to see it.
I've also been very interested in n-acetyl-glucosamine (NAG). When my wife (who has MS) took NAG, within a few days she started a downward spiral of increased disability. When we halted the NAG, she stabalized. I realize it's anecdotal, but it happened. But, yet I read about a lot of potential benefits of NAG. I wonder if it's action and composition would have triggered CPn bacterial activity. I'm wondering if NAG really is good for MS and we just didn't wait long enough. Does Glucose also convert to NAG?
First of all, these "8 essential sugars". Yes, sugars are very important molecules and are used by the body in a variety of different ways and it is important to make sure that people are getting enough of the right types. The thing is that I cannot imagine a situation where anybody in a developed country would NOT be consuming these in an average diet. You don't even need to get some of these molecules from your diet. For example, if you have glucose in your diet, your body MAKES its own N-acetylglucosamine (NAC or GlcNac) naturally.
I'd like to ask exactly how a previous poster can say that these pills don't have an LD50? And why they aren't subject to approval by the FDA (or other bodies). If you are advocating their use to treat a disease, then there should be SOME evidence that they work. If it is as good as all these advocates are saying why can't i find a single study of it? surely someone can design a robust and controlled trial? Of course the placebo arm might present some difficulties. A placebo is, by definition, a treatment which appears identical in every way to the study treatment, but is known to be inert and to have no physiological effect. Now normally a placebo pill would conatin just sugar or starch, but in this case that is the "active ingredient" in the treatment under investigation. Hmmmm.... Anyone else thinking that this 'magic pill' might just be using a placebo effect? And how on earth would you control for variations in diet etc?
I'd like to re-iterate the advice that NAPAY posted here earlier. By all means have an open mind to therapies to help with your condition (not just in MS, but your total health). But please, please remember that although some people will be very vocal in their opposition against 'Big Pharma' and the cynical way they extort money from people for treatments that don't always work (true), they are NOT the only ones trying to get their hands on your money! All you can do is ask yourself, does this make sense? How reliable is the evidence and is it independently verified?
Posted: Tue Jun 03, 2008 10:21 am Post subject: Re: glucose
notasperfectasyou wrote:
Our group is also taking n-acetyl-cysteine (NAC) as a key part of the protocol. Does glucose convert, in part, to NAC? If so, how much NAC would one ingest from a gram of glucose? I can get you a link to info about why we are taking NAC if you want to see it.
I think that there might be some confusion here. N-acetyl-cysteine is a derivative of the amino acid cysteine not glucose.
Quote:
N-acetyl-L-cysteine (NAC) is a derivative of cysteine wherein an acetyl group is attached to the nitrogen atom.
First of all, thanks for making me welcome and appreciating the good intentions behind my posting.
Second, i realised I'd made a wee spelling mistake in my post. I mistakenly used NAC as an abbreviation for N-acetylglucosamine, when it ought to be NAG of course. Sorry if that's caused any confusion and thanks to NHE for helping sort it out.
NAPAY, concerning your question, I'm going to have to go back to my first year Biochemistry course books to remind myself of what NAC does. I may be some time, I'm afraid (it was more than 10 years ago!).
In the meantime, I thought that any of you interested in making evidence-based judgements on alternative therapies and willing to do a bit of reading, might find the PubMed website a useful source of information.
Basically, PubMed is an online database (run by the NCBI, a US gov. funded body) of a huge amount of scientific information. Most of it is probably indecipherable to most people, but the section i think might be most useful to non-scientists wanting to understand things is the Books part. Essentially, you can search a large number of textbooks for keywords of interest and find out a lot of the background to it. The advantage of this is that all of the information is trustworthy and can be supported by evidence. (Although wiki is a fantastic resource for getting a rough idea about particular things, you should NEVER take what it says as gospel!)
One of the books i just found on the PubMed books site is this one:
Alternative Medicine and Rehabilitation: A Guide for Practitioners
Wainapel, Stanley F.; Fast, Avital, editors
New York: Demos Medical Publishing, Inc. ; c2003
And here's a link that SHOULD allow anyone to browse the book itself
I haven't had time to look at it in any detail, but I hope it gives some idea of the stregth of evidence for different therapies and helps you make an informed decision on what's right for you.
One of the books i just found on the PubMed books site is this one:
Alternative Medicine and Rehabilitation: A Guide for Practitioners
Wainapel, Stanley F.; Fast, Avital, editors
New York: Demos Medical Publishing, Inc. ; c2003
And here's a link that SHOULD allow anyone to browse the book itself
I haven't had time to look at it in any detail, but I hope it gives some idea of the stregth of evidence for different therapies and helps you make an informed decision on what's right for you.
Ooops. It appears that you can only see the contents page of the book! Doh! In any case, most of the book seems to concern yoga and massage-type therapies. It's only really a few of the later chapters that might be applicable here:
12. Nutritional Therapy in Rehabilitation
Ronald L. Hoffman.
13. Research Program of the NIH Center for Complementary and Alternative Medicine in Stroke and Neurologic Disorders: 1995–2000
Samuel C. Shiflett.
14. Reading the Complementary and Alternative Medicine Literature
Mark A. Thomas.
15. Paying for Complementary and Alternative Medicine
James Dillard.
(and possibly)
19. Clinical Applications of Magnetic Therapy for Neuropathic Pain
Michael I. Weintraub.
Hey everyone... I'm 29 years old and was diagnosed with RRMS at 24 after experiencing some spasms in my left leg, arm & face. Although I've been to my neurologist to compare MRIs each year, I have never taken any type of injection as treatment (it could very well be something I'm going to regret later, but I just can't convince myself to do it, let alone trust that it's my only option & that it won't do more harm than good...especially considering the fatal consequence of Tysabri)
I just stumbled across this site after purchasing NAG from the link that a friend sent me. This is by far the best MS blog I've seen, yet. I recently purchased this bottle of 30 tabs for around $4- so I thought I'd give it a shot...everyone's input has been very interesting and helpful. I bought them from www.sourcenaturals.com
I'm currently taking Kalawalla and have been for about a year now. Has anyone heard of this or used this? If so, I'm curious to hear what you think of it so far. My personal experience with it has been great- the reviews seem to be very good across the board from different blogs I've seen. The problem is that RRMS is so unpredictable it's hard to say if I'm simply in remission or if a supplement is helping, but I have to say, I made it an entire year without any symptoms- besides occassional tingling (that irritating spiderweb across your skin feeling). I stopped taking Kalawalla briefly (only for about 2 weeks b/c I had run out) and right now my entire left leg and foot is numb and has been for the past month. I do have consistent problems with my back and especially my neck, so I'm also considering that it is a problem with my lower spine. I will be having a few spinal adjustments done throught the next week to see if it has any impact- so far (only two adjustments later) it has not.
Does anyone have any thoughts on the estrogen study? There is actually even an article on this site that suggests that pregancy can/will decrease your symptoms- which raises the question of so many more women being diagnosed than men. (http://www.thisisms.com/article151.html)
I will be seeing my neurologist on Monday and I plan to ask about the latest study on the new pill they are studying, "Laquinimod" (http://latestnews.virginmedia.com/news/health/2008/06/20/ms_pill_could_replace_jabs_study) and am planning to ask what the lastest is. If she gives me any interesting information on this drug, I will certainly post it for anyone that may be interested.
I apologize....my first blog on the site it is more comparable to a novel than a blog ...lol. Anyway, thanks to all of you that are taking the time to share your thoughts & experiences- all has been very interesting- especially all input from "notasperfectasyou"
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...lol. Anyway, thanks to all of you that are taking the time to share your thoughts & experiences- all has been very interesting- especially all input from "notasperfectasyou"