Copax+

OneEyeBlind · Posted: Wed Sep 08, 2004 8:47 am Post subject: Copax+

Hey everybody,

Copaxone
Multi-vitamin
Vitamin D+calcium
[b]B Complex (for energy) and B12 (for overall mental health)

I had a bout with ON in 6/03. I was diagnosed in 7/04 after a year of waiting and testing.

I started Copaxone on 8/30/04. Since I am only a week and a half into my C therapy I cannot really say if its working. I do feel the need to sleep in the afternoons and do not have as much energy as I used to. But with a FT job, a home and 3 kids it's hard to find the time to rest.

Hope everyone out there is well and wish you all the best!
_________________
Karen (OneEyeBlind) Wink

* I don't suffer from insanity, I enjoy it!

Xenova · Posted: Wed Sep 08, 2004 12:58 pm Post subject:

I don't know if you are expecting C to help your symptoms but it isn't prescribed for that purpose. It is prescribed to slow MS progression. Sleep and fatigue could be an effect of C but it is also a prevalent symptom of MS. You may want to ask your physician for his/her recommendations to fight fatigue. There are good medicines both prescribed and over-the-counter that will deal with the fatigue.

teachk · Getting to Know You... Joined: Aug 03, 2004 Posts: 11

I found that I had less fatigue with Copaxone than with the interferon drugs. I actually feel that I have more energy. I have been on Copaxone since 7/17/04. Xenova keep the faith. I truly think you will start to feel better. Do check with you Dr. about anti fatigue meds. Amatadine is one of them. I started taking it in March. You can build up a tolerance for it. I would like to go off and see if I still have the fatigue like I had in the spring. Best of health!

OneEyeBlind · Posted: Wed Oct 06, 2004 7:23 am Post subject:

Thanks for responding. I do acutally feel I have more energy since being on the Copaxone. I still feel a need to rest in the afternoons but I don't feel dead tired all the time. I am a little over one month into my treatment at this time.
_________________
Karen (OneEyeBlind) Wink

* I don't suffer from insanity, I enjoy it!

Stoli · Posted: Thu Oct 21, 2004 6:52 pm Post subject:

It took about 2 months for me to notice an improvement; that was abpout 18 months ago and all had been good up to about 3 weeks ago. Feeling like a great big sloth - very fatigued ! Hopefully it will pass quickly !
Good Luck
Stoli

OneEyeBlind · Posted: Wed Jan 05, 2005 9:07 am Post subject:

Stoli,

I am 4 months into my copaxone and I am feeling much better. I got thru the holidays with little fatigue.

I hope your fatigue is improved. If you read this please write back to tell me how you are doing.

Be well,
_________________
Karen (OneEyeBlind) Wink

* I don't suffer from insanity, I enjoy it!

Stoli · Posted: Wed Jan 05, 2005 4:04 pm Post subject:

Well hello there Karen

I am so glad to hear that you are feeling much better, I hope your positive karma rubs off on the rest of us !

After 18months on copax. I seem to be only OK. At first I felt a lot better-but I was also very good with the Swank diet. Now my will power has slipped, my energy levels are low. Don't know if it is the change in diet or MS. Now that xmas is over I will have to give it another try.

The heat (summer here) isn't helping but this fatigue issue has been around since winter. I really hope this isn't what it will be like forever more, I'm not sure i'm ready to deal with that possibility yet. Sheesh, I'm only 36 I'm meant to be able to walk up stairs - not move around like an 80 year old needing a hip relacement !

Take care of yourself.....
Stoli

PattiNJ · Newbie Joined: Nov 16, 2007 Posts: 3 Location: New Jersey

I have been on this drug after having a go=round with avonex. The Avon. left me with frequent episodes, so I dropped it and went to Copaxone. It has been three years since I started, and I have not had an episode. The MS is still here, I walk with a walker and use a transport chair to get out, but I do not feel I am getting worse. I am interested in seeing if Walkaide will help me. Short of a miracle, I am positive I'm not too bad. Be well my firnds, PattiNJ