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Experience Project.
Posted: Wed Mar 07, 2007 10:20 am Post subject: Re: LDN
Cathy wrote:
I have heard you can not take LDN with the interferons. I am not sure why. Maybe someone else who knows more can respond.
sorry, this may have been answered elsewhere, but the interferons supress the immune system and LDN stimulates the immune system, so the two work completely against each other. it's one reason why many dr.s won't perscribe LDN because the traditional line for tackling MS is to surpress the immune system, becasue it is faulty.
Posted: Wed Mar 07, 2007 7:21 pm Post subject: Update on my taking LDN
Like burntsienna, I have not noticed any changes since taking LDN these last several months. It didn't seem to decrease my insulin production (which was the effect I REALLY wanted). So I have stopped.
sorry lyndacarol if i implyed that i had been taking it. i've never been on it, i've just been researching it and trying to figure out what i have to do to get it.
Posted: Thu Aug 16, 2007 8:00 am Post subject: very supportive neuro
I have not yet started but will be soon and am very hopeful and encouraged...my neurologist was SO supportive. He knew all about LDN, has several patients on it, and just said, "Yes, it's a good idea....WANT A SCRIPT FOR THAT?" And I was like, "YES!!!"
I did not expect it to be that simple. I was SO happy when I left my appointment the other day!!!
Posted: Thu Feb 07, 2008 8:01 am Post subject: Re: Doctors that Prescribe LDN
Arron wrote:
The most common problem people interested with this treatment have is finding someone who will give them a prescription for it.
So with this thread, let's start a list of doctors (GPs or Neuro's or whatever) that have prescribed LDN.
If you're already on LDN, please help out those that want to try it
Just copy and paste the following into each of your posts:
Doctor Name:
Doctor Location:
Doctor Contact Info: (of course, do not post home numbers)
Dear arron and members my name is seeva from Sydney Austrstralia i like you infom you that we have found few nero. in SYDNEY who can give you the prescrition for LDN. so any one need nuros. details please contact me i can able to give you the details
1. NEUROLOGIST IVAN. T. LORENTZ
TEL.NO. 02 9633 4999
SPEIALIST MEDICAL CENTRE
151-155 HAWKESBURY ROAD
WESTMEAD NSW 2145
AUSTRALIA
2. NEUROLOGIST DR. HENTRY MILLER
EASTWOOD
AUSTRALIA
ALSO WE HAVE FOUND FEW OTHER NEUROLIST AUSTRALIA WIDE
WITH THE HELP OF DR.BOB LAWRENCE WHO IS LIVING IN SWANSEA U.K
he is very help ful DR. if any one need any infomations regarding LDN
PLEASE CONTACT DR. BOB LAWRENCE ON
bob.lawrence@ntlworrld.com
DR. LAWRENCE also a m.s sufferer and using LDN for about one year. his web site is www.lowdosenaltrexone you will find more infomations. if any one from other part of the world please contact DR. LAWRENCE he will help you find a DR. who can give a pescrition for LDN
WITH REGARDS
SEEVA
Thanks for helping make the lives of fellow MS'ers better.
Doctor Name: Steven Glyman
Doctor Location: Las Vegas, NV
Doctor Contact Info: UNIVERSITY HEALTH SYSTEMS, Suite 220, 1707 W Charleston Blvd., Las Vegas, NV 89102, 702/671-5070, fax 702/385-3932, or www.uhsnevada.org
I have read alot about this med and want so bad to give it a try. I have tried everything else and now my current neuro doesn't think the Copaxone alone is strong enough. They want to start me on steriods every month along with my Copaxone.
I know that is going to be very tough on me and I am not sure I can deal with it. I am still working and steriod treatments prevent my doing my job well. Heck, I can barely function while on steriods.
I would love to find a neuro that will prescribe LDN - I would actually like to switch neuros, I am not to fond of mine. I go back in March and plan on bringing up the whole LDN idea then.
Posted: Thu Apr 03, 2008 12:33 pm Post subject: Brokehalo
I hope you can find a doctor to prescribe LDN. LDN cannot be taken with immune supressing drugs and not with steroids. LDN is a slow an progressive improvement so stay with it when you start. The optimal dose is 4.5mg daily. If you wish to start slowly begin with 3.0mg for the first month and then increase to 4.5mg. GOOD LUCK!
I'm in day 4 of a water fast at the moment. Gonna see how far I can go.
Read a book by Dr Joel Fuhrman called "Fasting and Eating for Health".
Thought I'd give it a go.
Got some info sent to me from somebody I emailed about this. Gonna follow up and see if I can get a prescription.
Although we do not keep lists of physicians who might be open to prescribing LDN, here are two websites that should be of assistance in finding such a doctor in your area:
1) www.acam.org
Once there, just choose your state in the Find An ACAM Physician chart.
2) www.lef.org
Once there, click on Health Concerns at the top, then, on its page, click on Innovative Practitioners, and then on Innovative Doctors. Then choose your state or country.
Website editor -- www.ldninfo.org
P.S. - And, try asking the many members of the LDN-Yahoo Group.
Chicago IL 60640
US
David Edelberg MD
Phone number:
(773) 296-6700
(773) 296-6700
2522 N. Lincoln Ave
Chicago IL 60614
Robert Brossard
Phone number:
(312) 951-2727
(708) 763-6261
1730 North Clark Street, APT 4005
Chicago IL 60614
CHICAGO
Yaroslaw Bandura, MD
903 N. Western Ave.
Chicago, IL 60622
(773) 276-3573
Center for Integrated Health Care
111 North Wabash #1005
Chicago, IL 60602 4711
Phone #: 312-236-7010
Fax# 312-236-7190
e-mail wellness@cihci.net
website www.cihci.net
Andrew Gorecki, L.AC.
The Alternative Medical Clinic
3207 N. Clark St.
Chicago, IL 60657
(773) 477-1702
Nicole King, MD
Internal Medicine, Chelation Therapy, Diet Nutrition, Insulin Potentiation, Neural Therapy, etc.
1525 E. 53rd. St. Suite 530
Chicago, IL 60615
(773) 667-0768
website: http://abrahamsmark.meta-ehealth.com/
Razvan Rentea, MD
3525 W. Peterson #611
Chicago, IL 60659
(773) 583-7793
Paul Savage, MD
BodyLogicMD of Illinois
150 E Huron St, Suite 802
Chicago, IL 60611
(866) 535-2563
website: www.bodylogicmd.com
Specializes in bioidentical hormone therapy, nutrition and fitness for women and men.
Board Certified Anti-Aging, National Lecturer on hormone therapy
Zofia Stevanovic, MD
Internal medicine
3208 N. Major
Chicago, IL 60634
(773) 736-2772
Claude Williams, DC
Apollo Wellness Center
6262 N. Lincoln Ave.
Chicago, IL 60659
(773) 539-7400
David Zeiger, DO
healthWorks -Integrative Medicine Clinic
1030 N Clark Street, Suite 301
Chicago,IL 60610
email: zeigerd@healthworksimc.com
website: www.healthworksimc.com
Joined: Mar 26, 2008 Posts: 23 Location: Utah, USA
Posted: Thu Sep 11, 2008 7:01 pm Post subject: UTAH
John D. Steffens M.D.
University of Utah Neurology Clinic at CAMT
729 S. Arapeen Drive
Salt Lake City, Utah 84108
Phone: 801-585-6387
Toll Free: 800-824-2073 Ext. 6387 Fax: 801-585-2746
Saw him today and asked about the LDN. He is willing to prescribe it, but doesn't believe in its effectiveness as he bases his opinions on scientific evidence rather than "anecdotal" and testimonial comments. He prefers Rebif or Copaxone.
Jolley's Compounding Pharmacy is the only one I checked with (short notice) today, and it's $44 for a months supply of 30 capsules. _________________ Kim dx RRMS 10 April 08
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They want to start me on steriods every month along with my Copaxone.
