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Joined: Mar 26, 2005 Posts: 590 Location: Northamptonshire, England.
Posted: Sun Nov 04, 2007 7:58 am Post subject: Article on research by Michael J Fox
It would be nice to think that this article by Michael J Fox would prick a few consciences, and lead to a shift in the structure of funding and medical research:
Joined: May 26, 2004 Posts: 1356 Location: London, ON, Canada
Posted: Sun Nov 04, 2007 12:59 pm Post subject: Re: Article on research by Michael J Fox
TwistedHelix wrote:
It would be nice to think that this article by Michael J Fox would prick a few consciences, and lead to a shift in the structure of funding and medical research:
Fox certainly knows how to call it as he sees it. MS research needs to join together to pool resources and ideas but if you look at its history, you'll see the 4 main pharmas involved competing with one another. One will come out with something new and the other 3 will do their best to discredit them. And I wonder how much these companies have spent in head-to-head trials against one another to try and get that slight edge in market share.
I've looked at the MS research situation for a few decades now and see little if anything of real promise. Marg fought and suffered for years against the disease and found her best relief from a alternative use drug that has been shunned by the established MS medical world. I hope the current group of MS patients don't have to wait anywhere near as long to get the result we all want to see.
What Michael J Fox says about the state of research today is exactly the reason my husband and I became involved with Acclerated Cure Project for Multiple Sclerosis. The waste of time and resources is staggering in the current MS research climate. With ACP, if a researcher wants the samples (tissue, blood whatever) in order to do the research they must agree to share their results. Hopefully, then, no more duplication. Then maybe we'll get somewhere instead of going around and around in circles.
Lori
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