EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at
Experience Project.
Posted: Tue Dec 11, 2007 10:16 am Post subject: Hello! Newbie here!
Hi,
My name is George, I'm 25 and I am in the process of being diagnosed. I have been told to expect a diagnosis of MS but have not had the diagnosis because the neurologist I first saw didn't want to get involved as I was moving.
I first developed Optic Neuritis in my R eye in April and in October I developed a number of other symptoms which can be summed up as my R leg and arm are problematic, I have occassional difficulties talking/ slurred speech and I have balance problems. I'm finding this all very frustrating.
In a nutshell I am scared by all this and feel very alone at the moment as the people I am close to don't understand and this means I don't really talk to them. Also, I don't know very much about MS.
Hi George
I'm sorry you are finding yourself here but this is a great place to learn. I know it is a really scary time but the best thing you can do is to research and learn as much as you can. Knowledge is power, so the saying goes, and it is so true. The more you know and understand the better able to handle this whole thing.
Lori
Joined: May 04, 2006 Posts: 3372 Location: Mid-Michigan
Posted: Tue Dec 11, 2007 11:38 am Post subject:
Welcome to the site George! You'll find people here who know exactly what you're going through.
Beyond that, I can only emphatically second what Lori said. In your knowledge quest, keep in mind that medically accepted opinion isn't fact. Do your best to keep an open mind but question everything you read and hear.
Bob _________________ Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
Joined: Nov 08, 2005 Posts: 275 Location: wisconsin
Posted: Wed Dec 12, 2007 7:39 am Post subject:
GEORGE,
welcome to the site..i know what you are going thru..i have been dealing with it for awhile....so i know the being scared and stuff like that.but this is a wonderful site and they all make you feel better no matter what kind of day you are having.....good luck and hope you find out soon...
Joined: Mar 26, 2005 Posts: 592 Location: Northamptonshire, England.
Posted: Fri Dec 14, 2007 7:55 am Post subject:
Welcome George, and ditto what the others said. This is not only a frightening time for you, but bewildering as well: bucketloads of information to try and understand, and just when you think you're beginning to grasp it, someone comes along with a new piece of information or the latest research and seemingly proves it's not what you thought at all! The uncertainty of MS is hard enough to cope with, but the feeling that even the experts aren't certain is unnerving to say the least.
But little by little words like "oligodendrocyte" will become part of your lexicon *, and you'll see that, in the fog of confusion, some lights are appearing to show us the way out.
* assuming, of course, you're not already a neuroscientist. _________________ Dom
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