EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at
Experience Project.
Joined: Jun 18, 2004 Posts: 1462 Location: Bedfordshire UK
Posted: Thu Jan 03, 2008 4:17 pm Post subject:
There, the same injury that I had as a teenager and I have never been bothered with it since, so glad you had it checked!
Sarah _________________ An Itinerary in Light and Shadow
Completed Stratton/Wheldon antibiotic regime for aggressive secondary progressive MS in June 2007, after four years. Still slowly improving with no exacerbation since starting. EDSS was 7, now 2 or often less.
Joined: Oct 10, 2005 Posts: 408 Location: Missouri, USA
Posted: Fri Jan 04, 2008 8:37 am Post subject:
True... I am glad I had it checked also. When you weigh as much as I do it is bound to do some damage eventually. I just hope they don't amputate instead of fixing my ACL
Joined: Jun 18, 2004 Posts: 1462 Location: Bedfordshire UK
Posted: Fri Jan 04, 2008 8:45 am Post subject:
Ha, I don't think they do amputations as an OP procedure!
Sarah _________________ An Itinerary in Light and Shadow
Completed Stratton/Wheldon antibiotic regime for aggressive secondary progressive MS in June 2007, after four years. Still slowly improving with no exacerbation since starting. EDSS was 7, now 2 or often less.
Joined: Oct 10, 2005 Posts: 408 Location: Missouri, USA
Posted: Sun Apr 27, 2008 3:51 pm Post subject:
Been a while since I last posted. I can report that I've had no issues still. Obviously I am hoping it stays this way.
I had knee surgery to fix the torn meniscus I had (they thought it was an ACL problem).
I am still on Minocycline 100mg twice daily. I miss doses from time to time, but still have had no adverse affects due to MS or otherwise. Aside from the fact that I get a reminder everytime I have to take my Minocycline, I forget I have MS. I hope it is the Minocycline that is doing me good, but who knows, it could be the natural course as well.
Joined: Oct 10, 2005 Posts: 408 Location: Missouri, USA
Posted: Wed Sep 10, 2008 3:05 pm Post subject:
Update:
Still relapse and MS symptom free... However! I have stopped taking minocycline for now.
I have been having some intestinal issues (I had one pale colored stool, however it could have been food too?), and I've also been having pain that feels like its coming from my liver. I went to the doctor and the took a ton of blood work and the only thing that was abnormal were my Liver Enzymes AGAIN. The nurse said they were "slightly" elevated. I would like to see the actual lab results (and will get them soon).
Of course I worry too much, and thats the one thing thats bad about the internet for me. I read way too much, and then I start thinking everything is wrong with me and that I have liver or pancreatic cancer.
To get back to the point though, I stopped taking mino and will see what happens. I went in today for a full abdominal ultrasound and nuclear functional scan of my gall bladder and liver. The US was negative for any problems (except for the fatty liver I am sure), but I don't have the results back from the 2nd scan.
I am hoping that stopping Mino will not cause me to have a relapse, however if it does I will know pretty quick what was preventing me from having a relapse before.
I have 10 pills a day. Buy some and do some experiments as to how many you need. My guess is probably that you'll need to really load up on them for a week or so before cutting down to about 5-7 pills a day.
Though maybe someone else might have a recommendation?
I think you should probably take these 2 hours away from the minocycline as with calcium supplements. _________________ 1st traceable symptoms Jan 01, last edss by doctor 6.5. Feeling better on salvia, capsaicin, curcumin, scutellaria. Interested in berberine, burburry, gingko, ginger, hersperidin, rhubarb
When I was on abx I took two a day after my evening meal, but now I still take one. The beauty of them is that they don't need to be kept refrigerated so you are less likely to forget to take them, but, as Gibbledygook says you should always take probiotics at least two hours apart from antibiotics.
Sarah _________________ An Itinerary in Light and Shadow
Completed Stratton/Wheldon antibiotic regime for aggressive secondary progressive MS in June 2007, after four years. Still slowly improving with no exacerbation since starting. EDSS was 7, now 2 or often less.
All times are GMT - 6 Hours Goto page Previous1, 2, 3, 4, 5
Page 5 of 5
You cannot post new topics in this forum You cannot reply to topics in this forum You cannot edit your posts in this forum You cannot delete your posts in this forum You cannot vote in polls in this forum
Forum FAQ
Search
Usergroups
Profile
Log in to check your private messages
Log in
