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Posted: Sat Jan 26, 2008 9:54 pm Post subject: New with questions!
Hi
The situation is that last March I was diagnosed as having CIS, one attack, one lesion at C4-C5, brain scan totally clear and a positive lumber puncture. No 'official' dx, just a 50 50 chance. My mum also has RR MS.
10 months on, I had another MRI 2 weeks ago, brain scan now has 8 lesions, neuro wants me on DMD's.
Obviously it isnt much of a surpise, but at the same time it is. I was fully expecting my brain scan to come back clear again. Even though MS was being looked at, I never really thought I would actually be diagnosed, and im not too sure how I feel about it all really. I haven't had any major attacks, apart from the one last year, just little niggles I guess. DMD's, hmmm I dunno, will I stay like this without them, or will I get worse anyway on them, who knows!!
I'm not sure what was better, probable MS and the limboland, or a dx of MS and the debate of DMD's. I must admit, I really am struggling with the new results. I just wasn't expecting it and I have no idea what I am going to do.
Obviously I don't want to become more disabled, but I can handle the way I am now, but will I stay this way without DMD's, will I get worse without? or would I get worse even on the DMD's. Looking at the DMD's there does appear to be only one which would suit me anyway. I have Bipolar, so all the others have 'mood swings and depression' as a side effect, not really what I need when I am already trying to control my Bipolar with Lithium. So Copaxone seems the only option, along with it's daily injections and what sounds like lovely skin reactions.
I'm not asking for anyone to tell me what to do, just thinking aloud on a forum I guess.
After having a clear brain MRI 10 months ago, is 8 new lesions alot? Does it mean anything?
Joined: Aug 02, 2006 Posts: 119 Location: S. California
Posted: Mon Jan 28, 2008 11:36 am Post subject:
Hello Charlie,
Sorry to hear about your situation. Your post mimics my thoughts when I was dx six years ago. I recommend that you start a DMD just because the statistical numbers show it helps. How much? Who knows. I am on Rebif and it sux, but who knows how I would be if I never started on it.
From zero to 8 lesions in a short period would be enough for me to start. True the correlation between lesions and symptoms and disability is not clear, or linear but the new lesions do tell me that the MS is active and I would try to slow it if I were you.
Good luck and stay strong. The initial dx is tough, but at least you know where you stand now, not that it is too comforting. This is a great place to discuss it all so keep posting.
Posted: Sat Feb 02, 2008 6:41 am Post subject: Re: New with questions!
charlie_ wrote:
Hi
The situation is that last March I was diagnosed as having CIS, one attack, one lesion at C4-C5, brain scan totally clear and a positive lumber puncture. No 'official' dx, just a 50 50 chance. My mum also has RR MS.
10 months on, I had another MRI 2 weeks ago, brain scan now has 8 lesions, neuro wants me on DMD's.
Obviously it isnt much of a surpise, but at the same time it is. I was fully expecting my brain scan to come back clear again. Even though MS was being looked at, I never really thought I would actually be diagnosed, and im not too sure how I feel about it all really. I haven't had any major attacks, apart from the one last year, just little niggles I guess. DMD's, hmmm I dunno, will I stay like this without them, or will I get worse anyway on them, who knows!!
I'm not sure what was better, probable MS and the limboland, or a dx of MS and the debate of DMD's. I must admit, I really am struggling with the new results. I just wasn't expecting it and I have no idea what I am going to do.
Obviously I don't want to become more disabled, but I can handle the way I am now, but will I stay this way without DMD's, will I get worse without? or would I get worse even on the DMD's. Looking at the DMD's there does appear to be only one which would suit me anyway. I have Bipolar, so all the others have 'mood swings and depression' as a side effect, not really what I need when I am already trying to control my Bipolar with Lithium. So Copaxone seems the only option, along with it's daily injections and what sounds like lovely skin reactions.
I'm not asking for anyone to tell me what to do, just thinking aloud on a forum I guess.
After having a clear brain MRI 10 months ago, is 8 new lesions alot? Does it mean anything?
Sorry for the ramblings
Charlie
hi members my name is seeva i want to know any one know about
1. sea minerals last week through one of my frieands came to know about this sea minerals this one made in GYMPIE QUEENSLAND AUSTRALIA
by GERRY AMENA acording him health from the OCEAN DEEP A NEW APPROACH TO HOLISTIC HEALING WITH SEA MINERALS& HERBS
thisis an industry in australia and this is virtually unknow in the USA.
ACCORDING TO GERRY he has treatedallkinds of disease such as PARKINSONS, ALZHEIMER'S, MULTIPLE SCLEROSIS,DIABETES AND LATERAL SCLEROSIS. HARD TO BELEVE BUT I WANT TO TRY THIS MINERALS SO LAST WEEK I HAVE SPORK TO GERRY. he is very good man
and explain to me the products he making and he toal me to take minerals in the night with meal. one called supa boost and other one called seamineral hawthon. half teasppon of each mixed with water or juice take with night meal. for 4- six months of using this two minerals my TYPE 2DIABETE WILL DISAPPEAR ALSO he told me after six month of use i do not go to my neuro for my M.S.THIS IS TRUE this is a miracle mineral
this incredible mineral works for our m.s then we all very greatful to gerry amena he gave a interview in the USA. he lookafter AUSTRALIA AND ASIS
HIS son distributes them in USA. from last week i am taking this minerals. after 4 months i will let our members know the results. if any one intersted you can contact GERRY on 07 5484 6555 AUSTRALIA, QUEENSLAND. ANY ONE FROM USA OR UK please go to his son's web site www.seamineral.com all the products are very cheap .whe we can try and see.
2'ANOTHER MINERAL MY FRIEND REGAMEND IS MIRACLE MINERAL SUPPLEMENT OF THE 21ST CETURY. ACCORDING THIS PRODUCT CHLORINE DIOXIDE ION IS THE MOST POWERFUL KILLER OF DISEASE THAT HAS EVER BEEN KNOWN. This supplement can cure AIDS, HERPES, HEPATITIS AND SO ON. ACCODING THE THE MANUFACURE YHIS MINERAL SUPPLEMENT WORKS NOT SEVERAL MONTHS BUT IN A FEW HOURS. THIS can be used for all kind of diseases.we can get this in VICTORIA AUSTRALIA. WEB SITE ww.jamiesonssanctuary.com TEL.NO. 03 5777 0717
PLEASE MEMBERS CAN COMENTS ABOUT MY RESEACH OF ALTENATIVE MEDICATIONS FOR M.S please give me your comments about all the supplements treatment for m.s
Posted: Sat Feb 02, 2008 7:57 am Post subject: Caution with alternatives
Dear seeva, I was reluctant to post a response, but can't help giving you this caution. With MS we are desperate for help and this makes us easy targets for schemes from unscrupulous people who us as a way to make money.
People can claim anything, but we should ask for proof! We must be skeptical and cautious--some of these "cures" could cause us even more damage and problems; we must balance the possible risks and benefits.
The contents shown for the sea mineral are pretty worthless. You would be better off just buying some sea salt at a fraction of the cost and using it on your food.
Sea salt has a lot of minerals in it, much more so than the product listed on the link that you posted.
You probably have a better chance of being abducted by space aliens than benefiting from this product.
MS is a horrible thing to have but there are many better treatments than this.
Sarah _________________ An Itinerary in Light and Shadow
Completed Stratton/Wheldon antibiotic regime for aggressive secondary progressive MS in June 2007, after four years. Still slowly improving with no exacerbation since starting. EDSS was 7, now 2 or often less.
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