Lipoatrophy Survey

MattB · Posted: Wed Mar 05, 2008 9:50 pm Post subject: Lipoatrophy Survey

Of all of you who are on Copaxone and how old you are and if you're male or female. I've heard that males tend to get it less, or not at all, and I was just wondering.

Loriyas · Posted: Thu Mar 06, 2008 7:28 am Post subject:

I am 46, female, and I definitely have lipoatrophy. Thighs, stomach and hips. Although Teva says it is not that common I would disagree.
Lori

cheerleader · Posted: Fri Mar 07, 2008 9:21 am Post subject:

husband is 44, male, no lipo. Copax one year since dx.
One year MRI, no new lesions, none enhancing, no flares.
-AC
_________________
Husband diagnosed RRMS March 2007
pursuing endothelial healing
Copaxone, Swank, supplements, laughter

Hockey4usVT · Newbie Joined: Mar 12, 2008 Posts: 3

Can someone tell me what lypo is, please?

harryn · Newbie Joined: May 31, 2004 Posts: 5 Location: florida

60 y/o male copaxone for 9 years - no lipoatrophy harry

glorialynn · Newbie Joined: Mar 08, 2008 Posts: 2

female, 36, on copaxone for 2 months now... no lipo...
if you do develop it, how long does it take to develop?
thanks gl....

NHE · Volunteer Moderator Joined: Nov 21, 2004 Posts: 760

DizzyDean · Family Member Joined: Jun 02, 2007 Posts: 30

At the risk of whistling on the way past the graveyard, I'll mention that
the studies I've read have only found lipoatrophy to occur in females.

One example of this is in the link below (take a look at the p-value
associated with the 10 males in the study NOT having lipo - its stronger
than the clinical trial evidence in favor of using the drug in the first place ... )

http://www.mult-sclerosis.org/news/Apr2004/FullTextLipoatrophyinPwMSUsingCopaxone.html

Wonderfulworld · Family Elder Joined: Aug 28, 2006 Posts: 291

Hi
on Copaxone 5+ yrs, aged 35, extensive lipatrophy of thighs, upper butt/lower back and some stomach areas.

777 · Family Member Joined: Mar 02, 2008 Posts: 83

I have been on copaxone for 10 years, just the last year I noticed a big dent in either thigh. Is there a way to fix this, maybe cosmetic surgery? Should I let my neuro know?

it's odd because it didnt show until after I had my baby and it just showed up in one day, so it seemed.

rasnet6 · Family Member Joined: Jul 13, 2004 Posts: 32 Location: uk

female aged 29, was on copaxone for 3 years, lipo started at 6 months and got progressively worse, so much that I ruined my leg and bottom sites... so was reccomended only to inject into stomach area

Stopped the copaxone a year ago (trying for a family)

lipo improved slightly, but still large areas affected.

Kerplunk20 · Newbie Joined: May 27, 2008 Posts: 7

I'm on Copaxone for 8 years and just one small spot of lipo on my left hip.

I'm 42 and female.

FIESTAFROG · Family Member Joined: May 31, 2008 Posts: 34

Please excuse me it my post is redundant but im new. So, witht this drug, you get bumps or fat loss in the injection area? Please be very specific and "elementary". I know NOTHING about anything!

David

daverestonvirginia · Posted: Sun Jun 01, 2008 12:49 pm Post subject:

If you look, there is a reference that apeared earlier in this thead.

problem with loss of fat under the skin.

http://www.mult-sclerosis.org/news/Apr2004/FullTextLipoatrophyinPwMSUsingCopaxone.html

This seems to explain it realy well, includes pictures.

I am male, on copaxine over two years, no problems.

FIESTAFROG · Family Member Joined: May 31, 2008 Posts: 34

I saw that but didnt scroll down far enough. Thanks! I was interested in pictures of the "damage areas". Its hard to tell from those pictures. The womans figure. hard to tell what is normal and what is not!

Long article! I'll be back in a couple hours! lol

David