LDN and primary progressive MS

NINOU · Newbie Joined: Mar 11, 2008 Posts: 4

Hello everybody !
I'm living in France and I have a primary progressive form of MS.
I would to know if anyboby on this forum has used LDN with a progressive MS.
It's very difficult to get a such information on the french forum.
I already have tried all treatments like betaferon, endoxan and mitoxantrone.
Doctors said me there is nothingelse to try. I think that's wrong and maybe LDN is one good chance.
I'w waiting for yours comments
And sorry for the faults ....

JoyceF · Posted: Tue Mar 11, 2008 3:14 pm Post subject: I think it's an excellant idea...

I've been taking LDN for over 5 years myself. I remember someone saying that Dr. Bihari, the discoverer of LDN, said that it doesn't matter which type of MS you have. That it should work on any type. I say try and get it and as quick as you can. It may just be the best thing you can do for yourself. Good luck to you.

DIM · Posted: Tue Mar 11, 2008 3:24 pm Post subject:

Allo Ninou!
As Joyce said Dr Bihari suggests LDN for every type of MS and obviously the sooner you'll start it the better the results regarding it's progression.
You should also change to BBD, follow a nutrition therapy etc.
Have a look at www.ms-diet.org, www.ldnresearchtrust.org and you will find much more about what is good and bad for MS while on LDN.
In my humble opinion start with 1.5 mg for some days and gradually go to 4.5 mg cause many peolpe experiences introductory problems as my wife did.
Good luck.
Jim (or Demetre if you prefer it Wink

)

Andy · Posted: Mon Mar 17, 2008 4:05 am Post subject: LDN & PPMS

Hi Ninou, I also have PPMS dx in 1995 and found out about LDN and have been on 3mg fo about 4 years now and have no intension of stopping, although I have progressed I feel that the LDN has slowed the progression down. There is not alot of alternative out there so if I was you I would go for it.....

RuSmolikova · Posted: Mon Mar 17, 2008 5:53 am Post subject:

Italian clinical trial of LDN and PP-MS:

http://www.unitedspinal.org/publications/action/2008/02/25/multicenter-clinical-trials-of-ldn-for-ms/

More details will be published in the mid of April in Chicago (at the 60th annual conference of AAN.

pegs · Posted: Tue Mar 25, 2008 3:44 pm Post subject:

Reading the book "up the Creek with a Paddle" the author quotes Dr. Bihari as saying 85% of his 4,000 some patients (since 1988 and onward)respond to ldn favorably with a daily dose taken between 9pm and 3am..of 3.5mg and the other 15% with 4.5mg. He stated that all his patients had the progression of ms halt....some regained what they lost if it hadn't been years of disablity prior. I just started ldn 4 days ago...looking for any and all input...I have no reaction to it as stated the possible bad dreams and poor sleep for the first 2 weeks.

NINOU · Newbie Joined: Mar 11, 2008 Posts: 4

Thanks a lot.
do you the date of this article and studies ?
Mid April 2008 ?

RuSmolikova · Posted: Sun Mar 30, 2008 2:22 pm Post subject:

Dr. Maira Gironi and colleagues of Milan, Italy have been invited to announce the results of their recently completed pilot study to the American Academy of Neurology in April in Chicago, that will be held on April 12–19, 2008 (see: http://www.aan.com/go/am). The six-month, multi-center trial was carried out in 40 patients with primary progressive multiple sclerosis. Safety and efficacy of LDN on spasticity, pain and fatigue were the major outcome measures of the study.
I am also looking forward to another interesting source of new information (October 2008):
http://www.lowdosenaltrexone.org/conf2008.htm