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ThisIsMS.com :: View topic - Inosine experiences
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Inosine experiences
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jimmylegs
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Joined: Mar 12, 2006
Posts: 1999

PostPosted: Tue Mar 18, 2008 1:05 pm    Post subject: Reply with quote

how interesting, what is her b12 level? i've never gotten mine over around the 600s yet.

pardon my asking but is your wife not taking any of the "usual" ms pharmaceutical products?
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DIM
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Joined: Feb 29, 2008
Posts: 214
Location: GREECE

PostPosted: Tue Mar 18, 2008 3:28 pm    Post subject: Reply with quote

908 pg/ml previously at 965 Jimmy!
She takes LDN and as have read it may elevate hepatic enzymes slightly as B12 or complex B can do while defficient in choline!
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jimmylegs
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Joined: Mar 12, 2006
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PostPosted: Tue Mar 18, 2008 7:20 pm    Post subject: Reply with quote

wow that's somethin. is that from diet, or supplementing?
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DIM
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Joined: Feb 29, 2008
Posts: 214
Location: GREECE

PostPosted: Wed Mar 19, 2008 2:15 am    Post subject: Reply with quote

jimmylegs wrote:
wow that's somethin. is that from diet, or supplementing?

Jimmy she takes Solgar B-complex 100 the last 4 months with one day per week brake but obviously she should take it every other day due to elevated hepatic enzyme ALT.
She isn't the case of MS with low B12 but as I mentioned she has low levels uric acid which means may benefit from inosine supplementation.
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jimmylegs
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Joined: Mar 12, 2006
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PostPosted: Wed Mar 19, 2008 10:31 am    Post subject: Reply with quote

i think when you see ms "and" low b12 it's more likely to just be low b12 than ms!

what initiated the liver enzymes testing?
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DIM
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Joined: Feb 29, 2008
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Location: GREECE

PostPosted: Wed Mar 19, 2008 11:10 am    Post subject: Reply with quote

I do regular blood tests to my wife just in case as she takes many supplements, better safe than sorry!
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Farah
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Joined: Apr 11, 2008
Posts: 1

PostPosted: Fri Apr 11, 2008 3:49 am    Post subject: Help ! Reply with quote

Hi all

I have recently been diagnosed with RRMS.

I have researched a lot about the benefits of Inosine.
My neurologist is not so keen on the approach though so am unable to obtain a prescription for this.

I am based in the UK, does anyone know where I can get Inosine or who I could see with a view to getting a prescription ?
I'm finding i'm hitting a brick wall each way I turn !
Any help would be much appreciated !
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schnittke
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Joined: Jan 07, 2008
Posts: 23

PostPosted: Fri Apr 11, 2008 7:22 am    Post subject: Reply with quote

You can order from iherb without a prescription but it is across the pond
from you. Here is a link.

http://www.iherb.com/ProductDetails.aspx?c=1&pid=1323
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DIM
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Joined: Feb 29, 2008
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Location: GREECE

PostPosted: Fri Apr 11, 2008 2:40 pm    Post subject: Reply with quote

Many food supplements sell inosine Farah, usualy the Source Natural 500mg Inosine, but you can also find the Ultimate Nutrition Premium Inosine that is also pure and the cheaper around, unfortunately I can't find a reliable e-shop that sends it here in Greece from USA.
What are your uric acid levels, wife's was on the lower side between normal levels so I'll try to increase it.
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g123
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Joined: Mar 27, 2008
Posts: 31

PostPosted: Sun Apr 13, 2008 8:25 am    Post subject: Reply with quote

Is there a big risk of gout? Would that be easily avoided by testing to make sure your levels don't get too high?
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jimmylegs
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PostPosted: Sun Apr 13, 2008 9:59 am    Post subject: Reply with quote

ms-ers average around 194, optimal is supposed to be 290 in healthy controls, gout can start as low as 350 or so, but in some patients it can get as high as 565 with no development of gout.
the test is no problem i've had it done four times now, about twice a year.
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g123
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Joined: Mar 27, 2008
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PostPosted: Sun Apr 13, 2008 11:35 am    Post subject: Reply with quote

jimmylegs wrote:
"average" level is 194. i've had that exact result twice. my third (middle) result was 188.
ms-ers in relapse average in the 160s.
remission is in the neighbourhood of 230ish??? can't remember that remission number exactly.
optimal for healthy controls is 290.
gout range is around 350 and up.


that is fascinating. where are these number (relapse vs. remission levels, ms vs. control levels, etc)?
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DIM
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Joined: Feb 29, 2008
Posts: 214
Location: GREECE

PostPosted: Sun Apr 13, 2008 11:52 am    Post subject: Reply with quote

jimmylegs wrote:
ms-ers average around 194, optimal is supposed to be 290 in healthy controls, gout can start as low as 350 or so, but in some patients it can get as high as 565 with no development of gout.
the test is no problem i've had it done four times now, about twice a year.

Jimmy where did you find these numbers, I thought optimal is 4 and above while these sites mention it around 5-5.5mg/dL?
http://www.dalesplace.net/lab_values.php#Hepatic%20Enzymes
http://www.bloodbook.com/ranges.html#BLOOD
Are you sure that optimal is so low, my wife's is 2.9mg/dL which is optimal according to what you say but low according to the above sites?
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jimmylegs
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Joined: Mar 12, 2006
Posts: 1999

PostPosted: Sun Apr 13, 2008 6:31 pm    Post subject: Reply with quote

depends on the units DIM, i will find the conversions for you... stand by Wink
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jimmylegs
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Joined: Mar 12, 2006
Posts: 1999

PostPosted: Sun Apr 13, 2008 6:34 pm    Post subject: Reply with quote

okay i was using µmol/L
1mg/dL=59.48 µmol/L
how do your wife's numbers translate into µmol/L
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