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ThisIsMS.com :: View topic - new here - scared, lonely, and depressed.
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new here - scared, lonely, and depressed.
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jimmylegs
Family Elder


Joined: Mar 12, 2006
Posts: 1998

PostPosted: Wed Apr 30, 2008 8:13 pm    Post subject: Reply with quote

so what the heck? ohhhhhhh i wrote it out my bad hahaha! lol at first i didn't even see your bold vs b suggestion bob! just noticed it now. ya i've been skipping the buttons coz they no so worky in firefox. a handcoding brainfart!
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Lyon
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Joined: May 04, 2006
Posts: 3372
Location: Mid-Michigan

PostPosted: Wed Apr 30, 2008 8:28 pm    Post subject: Reply with quote

jimmylegs wrote:
so what the heck? ohhhhhhh i wrote it out my bad hahaha! lol at first i didn't even see your bold vs b suggestion bob! just noticed it now. ya i've been skipping the buttons coz they no so worky in firefox. a handcoding brainfart!
Embarassed I had to edit it later because when you do it correctly it just turns to code, making it impossible to demonstrate. That's why I change it to the "b" vs "bold"

You're not going crazy... I had to edit it after you first read it.

Bob
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
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jimmylegs
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Joined: Mar 12, 2006
Posts: 1998

PostPosted: Wed Apr 30, 2008 8:58 pm    Post subject: Reply with quote

lol ya i thought you were just showing off at first ;D but i got it anyway Wink
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Lyon
Family Elder


Joined: May 04, 2006
Posts: 3372
Location: Mid-Michigan

PostPosted: Wed Apr 30, 2008 9:08 pm    Post subject: Reply with quote

jimmylegs wrote:
lol ya i thought you were just showing off at first ;D but i got it anyway Wink
Nah, not showing off.

Hey, I use firefox and the buttons work fine. Do you have Windows Vista?
I'm not crazy about Vista but it also spell checks any application I'm in. It puts a little red line under anything I misspell! I right click and it gives me choices of the correct spelling. And here you just thought I was smart.....DIDN'T YOU??

Bob
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
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jimmylegs
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Joined: Mar 12, 2006
Posts: 1998

PostPosted: Wed Apr 30, 2008 9:57 pm    Post subject: Reply with quote

lmao! ya weird my newest machine is running vista. this just in: it kind of blows.
i guess FF and this editor like to give only me a hard time hehe! right now i'm on the '98 dinosaur and it gives me the same runaround.
i haven't spent any time on the network here so to avoid crawling into the back to get the cable i was just using the relic.
i DID think u were smart, but now your secret is out.

funny quote of the day, from a non-spell-checked environment:
"i can't believe i got strait As this semester!"

and my other brain fart of the day... "piece" of mind. hehehe
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Lyon
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Joined: May 04, 2006
Posts: 3372
Location: Mid-Michigan

PostPosted: Thu May 01, 2008 7:17 am    Post subject: Reply with quote

jimmylegs wrote:
i DID think u were smart, but now your secret is out.
Embarassed Embarassed Aw geez Jimmy you're being too kind....but don't stop! (my best attempt at feigned modesty!)

I have to admit that I don't have much control of what this computer does at this point. I do remember starting it when I got it and Vista running me through a bunch of steps, and it seems that one of those steps was asking if I wanted it to check my spelling. I couldn't direct someone how to turn the spell check on for anything.

I do know that before I got this desktop with Vista I had occasionally used my laptop with Vista and was convinced that Arron had put spellcheck on thisisms forums and drove myself nuts for the longest time trying to figure out why the spellcheck wouldn't work on my Windows ME desktop Sad

Bob
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
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jimmylegs
Family Elder


Joined: Mar 12, 2006
Posts: 1998

PostPosted: Thu May 01, 2008 9:33 am    Post subject: Reply with quote

lol! i'm pretty sure even '98 has a spell checker of sorts running for me at this forum. it doesn't like lol or i'm for instance. or hwiaopvw for that matter!
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Lyon
Family Elder


Joined: May 04, 2006
Posts: 3372
Location: Mid-Michigan

PostPosted: Thu May 01, 2008 9:54 am    Post subject: Reply with quote

jimmylegs wrote:
lol! i'm pretty sure even '98 has a spell checker of sorts running for me at this forum. it doesn't like lol or i'm for instance. or hwiaopvw for that matter!
I noticed! I bared my soul to you in an earlier post and your response was "lmao".

I'm not up on these new fangled abbreviations and almost asked you what it meant, but being the sweet girl you are I'm confident that "lmao" is Canadian for something like "I have such deep sympathy for you!"

Otherwise you'd be as mean as my dear Mom, whom I had always been convinced loved me, until I regained consciousness to find her laughing hysterically because I'd been peeled off my mountain bike by a half lowered garage door that the bill of my cap hid from my view.

I know you're busy, but when you have time you'll have to tell me what lmao is in French. I don't speak French, but it's such a romantic language that I'm sure I'd enjoy hearing the meaning.

My point? Every lmao above has a red line under it.

Bob
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EyeDoc
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Joined: May 12, 2006
Posts: 89
Location: Texas, USA

PostPosted: Fri May 02, 2008 3:53 pm    Post subject: Reply with quote

This thread split two ways earlier, and as unsoclicited as it may be, I have an opinion on both topics Smile

1. Migraine - What you are describing is called an acephalagic migraine. More commonly, it is called a visual or optic migraine. This is when you have the visual aura of a classic migraine without the headache. You can also experience a blackening of vision as opposed to the light sensations.

2. Optic Neuritis - This is a tough one. You certainly describe symptoms of ON and it is possible to have mild ON without us being able to see inflammation when we look in your eyes. The Uthoff's sign you describe is classic for inflammation of the nerve. All that being said, nothing is 100%. I would be curious to know what the ophthalmologist you visited saw with your peripheral vision.

The other vision problems you describe sound pretty nonspecific. I'll tell you that I experience some strange symptoms like that myself. I don't have a good "eye doctor" explanation for it. it just is Smile

Keep your chin up. There are other things out there that cause wonky problems with our eyes that are not MS. Sometimes we have things we cannot explain. Try to not self diagnose yourself to the point of worrying yourself sick.
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SallyDC
Getting to Know You...


Joined: Apr 29, 2008
Posts: 15

PostPosted: Fri May 02, 2008 5:11 pm    Post subject: Reply with quote

Thanks EyeDoc! I did in fact have my peripheral vision tested by the doc and he said it was perfectly normal- and he used some new special machine or something to test it. In fact, I passed every test with flying colors - the red/green tests, the visual acuity test (my prescription for glasses hasn't changed), pupils dilate normally, nothing he says seems out of the ordinary except for the fact that I can just sense something is off, and that it gets blurry after i'm hot. I have an app't. with him again monday morning (his receptionist said that i have to go back to see him again to make sure that i do indeed in fact need an MRI) so we'll see how that goes! If he still doesn't see anything - well, at that point i must just break down and beg for the MRI. I know i need to get one. I just know somethings off.
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Lyon
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Joined: May 04, 2006
Posts: 3372
Location: Mid-Michigan

PostPosted: Fri May 02, 2008 6:17 pm    Post subject: Re: new here - scared, lonely, and depressed. Reply with quote

Hi Sally,
I don't have MS so I obviously don't know firsthand what you're going through but you are young, have a lot going for and are just getting ready to start your life and you are letting this worry dominate your life before you are diagnosed or even have direct proof that you have either optic neuritis or MS.

If the monster is going to knock your plans askew, make it earn it. At least wait for a diagnosis or strong signs before you go into disaster mode. I feel strongly that the patient knows their body better than a doctor does. If you think there is something wrong, there probably is, but not necessarily MS or optic neuritis.

Of course you've got to continue pursuing this thing until you find acceptable answers, but don't let it shape your future until you have reason.

This seems like a helpful article for someone in your situation http://www.neurology.wisc.edu/publications/07_pubs/Neuro_2.pdf

Bob
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Andesine
Newbie
Newbie


Joined: Apr 30, 2008
Posts: 8
Location: Berkshire, UK.

PostPosted: Sat May 03, 2008 6:26 am    Post subject: Reply with quote

I had 4 medical eye tests and there was nothing wrong with my eyes, which is when I got the MRI and the MS diagnosis, however, this morning I've been talking to someone who has the same symptoms and it could well be down to the drugs he's taking, either a reaction to the drugs or a Herx effect as a result of the drug.

As previously mentioned Sally, don't panic until there's reason to panic, and even then, don't panic. MS isn't necessarily a life wrecker. I know a lot of people who have it and it really doesn't affect them much at all.
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robbie
Family Elder


Joined: Jan 28, 2005
Posts: 735
Location: Northern Ontario, Canada

PostPosted: Sat May 03, 2008 6:59 am    Post subject: Reply with quote

Quote:
MS isn't necessarily a life wrecker. I know a lot of people who have it and it really doesn't affect them much at all.


For those of us that ms has affected our lives greatly, all I can say is really live for the now and if you do happen to get bad you have used up all your good time to the fullest.
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~i guess i know i just hate how it sounds~
I see seven towers
But I only see one way out
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kyleb
Newbie
Newbie


Joined: May 03, 2008
Posts: 7

PostPosted: Sat May 03, 2008 3:12 pm    Post subject: Awaiting MRI Results Reply with quote

Hey Sally, I'm awaiting MRI results too, although I haven't suffered any consistent vision problems one thing that stood out in your original note that when the lights were out and there was a bright light in the microwave the light source "moves". I believe I've experienced that last year when I would drive home on the highway at night I'd see what I described as "trails" off the brake lights. I went to an eye doctor and they only said I needed to get a weak prescription.

I too work on computers all day and I'm concerned that if I get diagnosed (had brain and spine MRI last week) that my typing skills will be affected.

Most of my afflictions have to do with running/walking right now, which is why I saw the Neurologist and posted here: http://www.thisisms.com/ftopict-5509.html

Hope to be an active member of this forum. Seems like a great community!
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EyeDoc
Family Member


Joined: May 12, 2006
Posts: 89
Location: Texas, USA

PostPosted: Sun May 04, 2008 6:47 pm    Post subject: Reply with quote

SallyDC wrote:
Thanks EyeDoc! I did in fact have my peripheral vision tested by the doc and he said it was perfectly normal- and he used some new special machine or something to test it. In fact, I passed every test with flying colors - the red/green tests, the visual acuity test (my prescription for glasses hasn't changed), pupils dilate normally, nothing he says seems out of the ordinary except for the fact that I can just sense something is off, and that it gets blurry after i'm hot. I have an app't. with him again monday morning (his receptionist said that i have to go back to see him again to make sure that i do indeed in fact need an MRI) so we'll see how that goes! If he still doesn't see anything - well, at that point i must just break down and beg for the MRI. I know i need to get one. I just know somethings off.


Well, other than the Uthoff's sign, you seem to be completely negative for optic neuritis. This is a good thing!

Yes, it is strange to have the heat sensitivity, but keep your hopes up Smile Nothing is proven until it is proven!
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