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ThisIsMS.com :: View topic - Tovaxin Users
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Tovaxin Users
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Lyon
Family Elder


Joined: May 04, 2006
Posts: 3371
Location: Mid-Michigan

PostPosted: Thu Jun 05, 2008 6:16 pm    Post subject: Reply with quote

Thanks for the good news TWG!
Bob
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
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flipflopper
Family Elder


Joined: Nov 10, 2005
Posts: 127

PostPosted: Thu Jun 05, 2008 7:52 pm    Post subject: Reply with quote

TWG, I'm glad to hear that a vaccine can be made for you right away! I got the same news. My last appointment for the phase IIb trial was 5/5/08. I received an e-mail from my trial coordinator on 6/2/08 telling me that my information had been faxed to Opexa and that Life blood will be contacting me shortly. Now, I am still waiting for Life blood to contact me.
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Lars
Family Elder


Joined: Mar 22, 2007
Posts: 273
Location: Durango, Co

PostPosted: Tue Jun 10, 2008 8:26 am    Post subject: Reply with quote

TWG,
I am really happy for you! I hope I am able to join the "family" with you in Colorado Springs for another year.
See You Soon,
Lars
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Aggie03
Family Member


Joined: Apr 29, 2008
Posts: 28
Location: Wylie, TX

PostPosted: Tue Jun 10, 2008 9:17 pm    Post subject: Reply with quote

TWG, that is good to hear that you are able to get to go back right away. It will be nice to know that the real thing is getting put in you.
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Aggie03
Family Member


Joined: Apr 29, 2008
Posts: 28
Location: Wylie, TX

PostPosted: Tue Jun 10, 2008 9:23 pm    Post subject: Reply with quote

Just to update everyone on my site change, there has been one small problem that has come up. I go in for my last visit of this phase on the 24th of this month at the new site. Well the new site coordinator called me the other day and said that Opexa needs me to go back to the original site to get the last MRI on the same machine that I had the first MRI on.

So now I have to fly back to Colorado Springs just for an MRI, it is a pain, but what can you do. They did say the company was going to pay me back for any travel expense, so that is a plus.

Brad
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Lyon
Family Elder


Joined: May 04, 2006
Posts: 3371
Location: Mid-Michigan

PostPosted: Wed Jun 11, 2008 6:50 am    Post subject: Reply with quote

Aggie03 wrote:
They did say the company was going to pay me back for any travel expense, so that is a plus.
Hi Brad,
I can see why it would be important to start and end with the same MRI. The trip is a pain but I'm surprised that Opexa is going to cover the travel costs...that's good!
Bob
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
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Lars
Family Elder


Joined: Mar 22, 2007
Posts: 273
Location: Durango, Co

PostPosted: Wed Jun 11, 2008 10:35 am    Post subject: Reply with quote

Aggie,
Sorry to hear about that but welcome back to Colo. one more time. Say hi to Bob at Colorado Imaging for me.
Lars
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Lars
Family Elder


Joined: Mar 22, 2007
Posts: 273
Location: Durango, Co

PostPosted: Mon Jun 30, 2008 12:04 pm    Post subject: Reply with quote

In the spirit of "keeping the site informed", which may not always be my strong suit, my last IIb appointment is tomorrow. Wish me luck on the elusive, positive MRTC report for the extension.
Lars
Hey, by the way, who else hasn't moved into the extension phase? I hate to always be the last in line.
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Loobie
Family Elder


Joined: Sep 12, 2006
Posts: 865
Location: Dayton, Ohio USA

PostPosted: Mon Jun 30, 2008 2:36 pm    Post subject: Reply with quote

I had my fourth extension dose on Wednesday the 25th. From what I've been reading, everyone seems to be on schedule and not experiencing delays like were present around X-mas.
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"When you're in jail, a good friend will be trying to bail you out. A best friend will be in the cell next to you saying, 'Damn, that was fun.'"
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Lyon
Family Elder


Joined: May 04, 2006
Posts: 3371
Location: Mid-Michigan

PostPosted: Tue Jul 01, 2008 7:28 am    Post subject: Reply with quote

Best of luck to you Lars!

Best of luck to you too Lew....regarding the hearing thing. What you mention isn't a commonly heard of side effect of MS so hopefully it is just allergies or something.

Bob
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
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Loobie
Family Elder


Joined: Sep 12, 2006
Posts: 865
Location: Dayton, Ohio USA

PostPosted: Tue Jul 01, 2008 2:03 pm    Post subject: Reply with quote

You know I thought the same thing. There isn't even a trace of it today. Weird, but I don't think it was probably connected either. It was weird though because it was full hearing loss. I mean no warning, no easing into it, just wake up and can't hear out of one ear. Well it's over now and my GP didn't see anything in my ear. He said it looked fine so I'll just chalk that up to weird stuff. By the way, I still have two bruises where I got my shots. No tenderness, but also a change. This happened after the first one also, but not the next two. Hopefully that means there was some good stuff in there!
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"When you're in jail, a good friend will be trying to bail you out. A best friend will be in the cell next to you saying, 'Damn, that was fun.'"
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Lyon
Family Elder


Joined: May 04, 2006
Posts: 3371
Location: Mid-Michigan

PostPosted: Tue Jul 01, 2008 2:13 pm    Post subject: Reply with quote

Loobie wrote:
No tenderness, but also a change. This happened after the first one also, but not the next two. Hopefully that means there was some good stuff in there!
Hi Lew,
Can you better explain what you mean by that?
Bob
_________________
Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
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Loobie
Family Elder


Joined: Sep 12, 2006
Posts: 865
Location: Dayton, Ohio USA

PostPosted: Tue Jul 01, 2008 3:18 pm    Post subject: Reply with quote

That sentence is a little goofy. What I meant is that it is a change from absolutely no shot site ANYTHING. My nurse also told me that he noticed a slight flushing around the area that he has to photo, but that it is gone by the time he has to take the pics at the end of an hour. So I was pointing out that the change was that the bruising is a new change for me. Especially since it doesn't hurt at all, yet has been there since last Wed. morning.
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"When you're in jail, a good friend will be trying to bail you out. A best friend will be in the cell next to you saying, 'Damn, that was fun.'"
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Lyon
Family Elder


Joined: May 04, 2006
Posts: 3371
Location: Mid-Michigan

PostPosted: Tue Jul 01, 2008 3:27 pm    Post subject: Reply with quote

Loobie wrote:
That sentence is a little goofy. What I meant is that it is a change from absolutely no shot site ANYTHING.
Thanks Lew,
Maybe a little goofy but at least now I understand!
Bob
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
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av8rgirl
Family Elder


Joined: Apr 04, 2008
Posts: 164

PostPosted: Thu Jul 24, 2008 8:09 am    Post subject: Reply with quote

Lew

How are you doing? I posted that on another post but it probably got buried.
_________________
Tovaxin Lab Rat
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