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Experience Project.
TWG, I'm glad to hear that a vaccine can be made for you right away! I got the same news. My last appointment for the phase IIb trial was 5/5/08. I received an e-mail from my trial coordinator on 6/2/08 telling me that my information had been faxed to Opexa and that Life blood will be contacting me shortly. Now, I am still waiting for Life blood to contact me.
Just to update everyone on my site change, there has been one small problem that has come up. I go in for my last visit of this phase on the 24th of this month at the new site. Well the new site coordinator called me the other day and said that Opexa needs me to go back to the original site to get the last MRI on the same machine that I had the first MRI on.
So now I have to fly back to Colorado Springs just for an MRI, it is a pain, but what can you do. They did say the company was going to pay me back for any travel expense, so that is a plus.
Joined: May 04, 2006 Posts: 3371 Location: Mid-Michigan
Posted: Wed Jun 11, 2008 6:50 am Post subject:
Aggie03 wrote:
They did say the company was going to pay me back for any travel expense, so that is a plus.
Hi Brad,
I can see why it would be important to start and end with the same MRI. The trip is a pain but I'm surprised that Opexa is going to cover the travel costs...that's good!
Bob _________________ Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
Joined: Mar 22, 2007 Posts: 273 Location: Durango, Co
Posted: Mon Jun 30, 2008 12:04 pm Post subject:
In the spirit of "keeping the site informed", which may not always be my strong suit, my last IIb appointment is tomorrow. Wish me luck on the elusive, positive MRTC report for the extension.
Lars
Hey, by the way, who else hasn't moved into the extension phase? I hate to always be the last in line.
Joined: Sep 12, 2006 Posts: 865 Location: Dayton, Ohio USA
Posted: Mon Jun 30, 2008 2:36 pm Post subject:
I had my fourth extension dose on Wednesday the 25th. From what I've been reading, everyone seems to be on schedule and not experiencing delays like were present around X-mas. _________________ "When you're in jail, a good friend will be trying to bail you out. A best friend will be in the cell next to you saying, 'Damn, that was fun.'"
Joined: May 04, 2006 Posts: 3371 Location: Mid-Michigan
Posted: Tue Jul 01, 2008 7:28 am Post subject:
Best of luck to you Lars!
Best of luck to you too Lew....regarding the hearing thing. What you mention isn't a commonly heard of side effect of MS so hopefully it is just allergies or something.
Bob _________________ Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
Joined: Sep 12, 2006 Posts: 865 Location: Dayton, Ohio USA
Posted: Tue Jul 01, 2008 2:03 pm Post subject:
You know I thought the same thing. There isn't even a trace of it today. Weird, but I don't think it was probably connected either. It was weird though because it was full hearing loss. I mean no warning, no easing into it, just wake up and can't hear out of one ear. Well it's over now and my GP didn't see anything in my ear. He said it looked fine so I'll just chalk that up to weird stuff. By the way, I still have two bruises where I got my shots. No tenderness, but also a change. This happened after the first one also, but not the next two. Hopefully that means there was some good stuff in there! _________________ "When you're in jail, a good friend will be trying to bail you out. A best friend will be in the cell next to you saying, 'Damn, that was fun.'"
Joined: May 04, 2006 Posts: 3371 Location: Mid-Michigan
Posted: Tue Jul 01, 2008 2:13 pm Post subject:
Loobie wrote:
No tenderness, but also a change. This happened after the first one also, but not the next two. Hopefully that means there was some good stuff in there!
Hi Lew,
Can you better explain what you mean by that?
Bob _________________ Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
Joined: Sep 12, 2006 Posts: 865 Location: Dayton, Ohio USA
Posted: Tue Jul 01, 2008 3:18 pm Post subject:
That sentence is a little goofy. What I meant is that it is a change from absolutely no shot site ANYTHING. My nurse also told me that he noticed a slight flushing around the area that he has to photo, but that it is gone by the time he has to take the pics at the end of an hour. So I was pointing out that the change was that the bruising is a new change for me. Especially since it doesn't hurt at all, yet has been there since last Wed. morning. _________________ "When you're in jail, a good friend will be trying to bail you out. A best friend will be in the cell next to you saying, 'Damn, that was fun.'"
Joined: May 04, 2006 Posts: 3371 Location: Mid-Michigan
Posted: Tue Jul 01, 2008 3:27 pm Post subject:
Loobie wrote:
That sentence is a little goofy. What I meant is that it is a change from absolutely no shot site ANYTHING.
Thanks Lew,
Maybe a little goofy but at least now I understand!
Bob _________________ Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial.
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