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Artifishual
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Joined: Mar 10, 2008
Posts: 428
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 Posted: Thu Jul 03, 2008 5:38 am Post subject: does rrms lead to ppms? |
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I know this question has been asked before , but being new to the whole ms thing. Do you think that rrms leads to ppms? how many of you started out w/ rrms and then later were told it was ppms? I am only looking for answers as to what to my future holds. I know everyone is different, just looking for the general consensus. Thanks, arti
Robbie did you start out w/ rrms? hope your doing better. |
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carolew
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Joined: Nov 06, 2004
Posts: 365
Location: Ottawa, Ont. Canada
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| Posted: Thu Jul 03, 2008 7:05 am Post subject: |
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| I was rrms and may have moved to spms, not ppms. The later I thought meant that the progression was steady right from the start of the illness, with no breaks. |
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robbie
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Joined: Jan 28, 2005
Posts: 735
Location: Northern Ontario, Canada
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| Posted: Thu Jul 03, 2008 7:19 am Post subject: |
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| Quote: | | Robbie did you start out w/ rrms? hope your doing better. |
Hi arti just had two bouts of ON in the beginning and then just a slow progression. It’s funny cause I think if I had lost the use of my legs in a car wreck I would accept the chair and get on with my life, work out the upper body play wheelchair sports ect but now it is getting to my arms to the point that it’s getting hard to move myself around. A power chair is next I guess I’m trying to say that there doesn’t seem to be an end to it and that is so hard. I hope this isn’t taken as whining but if some think it is oh well thx for asking
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~i guess i know i just hate how it sounds~
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Artifishual
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Joined: Mar 10, 2008
Posts: 428
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| Posted: Thu Jul 03, 2008 7:32 am Post subject: |
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| Thanks Robbie and Carolew, I have just been having some strange thoughts lately, about the future, no progression as far as I can tell. It just worries me that I am only 35 w/ a wife and 5yr old son. At this moment I am the sole bread winner. My wife has stopped working (she hates Wachovia) she has her BBS in marketing and wants to get her masters. I am all for it but I have worked my ass off for what we have and worry that I may come to a point that I will not be a good provider. Always about money for me. I guess I really need to get my priorities straight and be thankful for the now and let God handle the future. Thanks guys. Shannon |
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syckbastid
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Joined: Jan 04, 2007
Posts: 46
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| Posted: Thu Jul 03, 2008 7:40 am Post subject: |
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Don't feel guitly,Arti. I have the same worries. 29 with a one year old daughter...
Don't think you were whining at all Robbie. Whining is me complaining about going bald at 26. Okay, I'm lying... I was 23... Sorry you got unlucky, even within the subset of unlucky people that get MS (hope that doesn't come off as condescending). |
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Artifishual
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Joined: Mar 10, 2008
Posts: 428
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| Posted: Thu Jul 03, 2008 7:50 am Post subject: |
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Bald, REd hair, and unkept and portly, but who gives a shit, I'm sexy
I once had flowing brown hair and abs of steel, yeah right
thats why I wear a hat, LOL |
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gwa
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Joined: Dec 02, 2005
Posts: 847
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| Posted: Thu Jul 03, 2008 8:06 am Post subject: |
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| Artifishual wrote: | | It just worries me that I am only 35 w/ a wife and 5yr old son. At this moment I am the sole bread winner. My wife has stopped working (she hates Wachovia) she has her BBS in marketing and wants to get her masters. I am all for it but I have worked my ass off for what we have and worry that I may come to a point that I will not be a good provider. Always about money for me. I guess I really need to get my priorities straight and be thankful for the now and let God handle the future. Thanks guys. Shannon |
Shannon, I would encourage your wife to get her Master's degree so that she might be able to support you if needed. In my own case, I was able to teach school for two years,sell real estate for 7 years and then run a small business for another 6 years before my health got so bad than I quit working.
If not for my husband, I would have starved by now after not working for over 20 years. There are many spouses who have come to the plate and are now taking care of all financial responsibilities for the family. It is not possible to guess when or if you might be in a situation similar to many of us on this forum.
You are indeed sexy!
gwa |
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Artifishual
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Joined: Mar 10, 2008
Posts: 428
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| Posted: Thu Jul 03, 2008 8:17 am Post subject: |
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Thanks GWA, she is now considering teaching full time (only having to take a few courses to get teaching cert.) and then going back for masters in counseling. She is super smart, she was accepted into university of Houston law school ,but declined to start a family.
I was not always this sexy it took alot of beer and corn bread to get rid of my 34" waist. I was 207lbs at 6'4" when we got married ,now I will tip the scales at around 280lb. Man she is smart and she can cook good!!!
She was and still is out of my league. The prettiest woman I have ever seen. |
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Loobie
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Joined: Sep 12, 2006
Posts: 865
Location: Dayton, Ohio USA
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| Posted: Thu Jul 03, 2008 9:35 am Post subject: |
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Hey dude, either you are getting bigger or that's the smallest redfish I have ever seen  . Just kidding. I hope your brain comes to rest on that. Speculating about the future is something I think we all do. Our boats couldn't be any more similar in that I'm the sole breadwinner and have worked my tail off to get where I'm at as well. I also encourage Greta to get her Masters. My wife is one quarter away (she'd have it sooner, but they don't offer her 230 class in the summer) from her RN and the way things have been going, it may be just in the nick of time. Hey, if you never need it (I hope and pray) she doesn't have to use it, but it will be there if heaven forbid the need arose. I'm always pulling for you man.
Lew
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"When you're in jail, a good friend will be trying to bail you out. A best friend will be in the cell next to you saying, 'Damn, that was fun.'" |
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Lyon
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Joined: May 04, 2006
Posts: 3372
Location: Mid-Michigan
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| Posted: Thu Jul 03, 2008 9:55 am Post subject: |
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Not to try to put this thing back on topic because I obviously like it when threads go off topic, but in answer to your question, PPMS is exactly the same as SPMS when not proceded by RRMS.
That mumbo jumbo probably doesn't translate well into Texanese so the correct answer is that NOTHING precedes PPMS and RRMS can and often does precede SPMS.
My two cents worth is that there is no such thing as PPMS and what people think is PPMS is actually SPMS in which the RRMS phase was so mild that it wasn't noticed until MS became "progressive".
Since you're my buddy AND a Texan, I want you to have a safe holiday. When you're celebrating the fourth by drinkin' and shootin' the guns in the air, please exercise safety by holding the barrel of the gun at a slight angle so that when the bullets land, they land on someone else's head.
| NMSS Website wrote: | * Relapsing-Remitting MS
People with this type of MS experience clearly defined attacks of worsening neurologic function. These attacks—which are called relapses, flare-ups, or exacerbations —are followed by partial or complete recovery periods (remissions), during which no disease progression occurs. Approximately 85% of people are initially diagnosed with relapsing-remitting MS.
* Primary-Progressive MS
This disease course is characterized by slowly worsening neurologic function from the beginning—with no distinct relapses or remissions. The rate of progression may vary over time, with occasional plateaus and temporary minor improvements. Approximately 10% of people are diagnosed with primary-progressive MS.
* Secondary-Progressive MS
Following an initial period of relapsing-remitting MS, many people develop a secondary-progressive disease course in which the disease worsens more steadily, with or without occasional flare-ups, minor recoveries (remissions), or plateaus. Before the disease-modifying medications became available, approximately 50% of people with relapsing-remitting MS developed this form of the disease within 10 years. Long-term data are not yet available to determine if treatment significantly delays this transition.
* Progressive-Relapsing MS
In this relatively rare course of MS (5%), people experience steadily worsening disease from the beginning, but with clear attacks of worsening neurologic function along the way. They may or may not experience some recovery following these relapses, but the disease continues to progress without remissions.
Since no two people have exactly the same experience of MS, the disease course may look very different from one person to another. And, it may not always be clear to the physician—at least right away—which course a person is experiencing. |
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial. |
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Artifishual
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Joined: Mar 10, 2008
Posts: 428
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| Posted: Thu Jul 03, 2008 10:18 am Post subject: |
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Since we are off subject Bobby here is one for you.
Enjoy and you to have a safe holiday. We Texans exercise our secound amendment!!!! as often as possible ask Joe Horn. http://youtube.com/watch?v=_7jqLie6-Y0 |
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Lyon
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Joined: May 04, 2006
Posts: 3372
Location: Mid-Michigan
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| Posted: Thu Jul 03, 2008 1:13 pm Post subject: |
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I don't want to start a controversy but I do have a problem with the way Joe Horn conducted himself.
A properly raised Texan wouldn't call 911 until AFTER the situation was in control.
Joe Horn must have been raised someplace squeamish.
Bob
_________________
Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial. |
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Artifishual
Family Elder
Joined: Mar 10, 2008
Posts: 428
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| Posted: Thu Jul 03, 2008 1:22 pm Post subject: |
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Pasadena,Tx is more like a whole other country!!
I agree. |
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gwa
Family Elder
Joined: Dec 02, 2005
Posts: 847
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| Posted: Thu Jul 03, 2008 2:03 pm Post subject: |
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| Lyon wrote: | I don't want to start a controversy but I do have a problem with the way Joe Horn conducted himself.
A properly raised Texan wouldn't call 911 until AFTER the situation was in control.
Joe Horn must have been raised someplace squeamish.
Bob |
One thing I know for sure is not to mess with Big Bad Joe Horn.
gwa |
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Lyon
Family Elder
Joined: May 04, 2006
Posts: 3372
Location: Mid-Michigan
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| Posted: Thu Jul 03, 2008 2:31 pm Post subject: |
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| gwa wrote: | | One thing I know for sure is not to mess with Big Bad Joe Horn. |
He's probably a heck of a nice guy if you aren't robbing a house 
Judging from the looks of the houses in that neighborhood, Joe Horn is a responsible and successful citizen who has a problem with B and E's.
Bob
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Wife diagnosed with MS in Feb. 2006 and is a participant in the Tovaxin IIb clinical trial. |
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