Tovaxin and LDN

av8rgirl · Family Member Joined: Apr 04, 2008 Posts: 99

I don't know if this question has been asked before so smack me if it has...but...is LDN allowed if you are in the trial for Tovaxin?

I am so tired of all these drugs I am taking that aren't working that I am ready to stop taking everything except the Topamax for my migraines and try LDN....seriously. But, I cannot find anything about whether or not it is approved....

anyone know?

I am tired of hurting, tired of the pain, tired of being sick...

yes, I am having a bad day, week, month. I just want off the merry go round.
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Tovaxin Lab Rat

Loobie · Posted: Thu Jun 19, 2008 4:36 am Post subject:

It's not approved by the FDA, but you can check out the LDN thread on here and there are many pharmacies in there that you can get it from with an Rx from you Doctor.
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"When you're in jail, a good friend will be trying to bail you out. A best friend will be in the cell next to you saying, 'Damn, that was fun.'"

Loobie · Posted: Thu Jun 19, 2008 12:57 pm Post subject:

Not approved for MS that is.
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"When you're in jail, a good friend will be trying to bail you out. A best friend will be in the cell next to you saying, 'Damn, that was fun.'"

av8rgirl · Family Member Joined: Apr 04, 2008 Posts: 99

Thanks!!!!!

I know that it's not approved by the FDA for MS. My non-clinical trial neuro will write me a script for it. But will the clinical trial people allow it????

Does anyone know?

I am taking Provigil, which is off label for MS fatigue. No one objects to that .

I also took Sinemet for spasticity. It's a parkinson's drug for tremors, not MS spasticity; if you really want to get technicial....just playing devil's advocate here.

Wasn't there a small LDN clinical trial for MS symptom management ----

By the way, after I posted this I did find the other thread... Embarassed

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Tovaxin Lab Rat

Loobie · Posted: Fri Jun 20, 2008 4:42 am Post subject:

I called Dr. Garces (med. director at Opexa) and asked him about another drug I was going to try. He is pretty easy to get a hold of and he has full access to the 'banned drugs list'. I would start by just giving them a shout down there. I got Dr. Garces's voice mail, but he called and left me a message, so he will get back to you. I would just ask and find out.
_________________
"When you're in jail, a good friend will be trying to bail you out. A best friend will be in the cell next to you saying, 'Damn, that was fun.'"

av8rgirl · Family Member Joined: Apr 04, 2008 Posts: 99

Thanks! I just didn't know where to start!
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Tovaxin Lab Rat

patrickm · Posted: Sat Jun 28, 2008 8:33 am Post subject:

av8rgirl · Family Member Joined: Apr 04, 2008 Posts: 99

Clinical trial doc said NO!!

End of story.

He said if I want to try something that is not approved for MS, then I am out of the trial. My choice.

I don't want out of the trial.
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Tovaxin Lab Rat

JanethePain · Posted: Sun Jul 06, 2008 8:53 am Post subject: