EP is a community where members connect through shared life experiences-- like MS--and so much more. You are not defined by any one thing, so be your true self and find others just like you at
Experience Project.
Joined: Oct 10, 2008 Posts: 5 Location: Gatineau, QC, Canada
Posted: Fri Oct 10, 2008 6:15 pm Post subject: Hi from Quebec, Canada
Hi! I'm 29 years old. I was diagnosed with MS late June this year, after going through several tests and an MRI. What started the tests is that since January I had tingling that started on my legs, then went to my hands. I still have the tingling in my hands (especially the right one), and for the past month, I've had stifness in my left leg, which seems to have gotten worse this week.
After being diagnosed and reading up on MS, which I didn't know much about before, I suspect that I've had it for a couple of years already. The neurologist said that I have a lot of lesions on my brain showing up on the MRI, and she's surprised that I'm not showing more symptoms.
I've started taking Rebif 3 times a week three months ago, but I have not seen any improvements since, and I've actually had a relapse. Not sure if it's helping or not.
Posted: Sat Oct 11, 2008 7:28 am Post subject: Welcome, Shortcake
Welcome, Shortcake! This "world of MS" is filled with many questions, but a few true facts have emerged. THERE IS NO CORRELATION BETWEEN LESIONS AND SYMPTOMS. Many people with NO symptoms have been found at autopsy to have LOTS of lesions; there are people with severe MS symptoms who have few or NO lesions.
When you wrote:
Quote:
The neurologist said that I have a lot of lesions on my brain showing up on the MRI, and she's surprised that I'm not showing more symptoms.
I wonder if your physician is especially interested in MS or has made it a real area of concentrated study (as you will, by cirumstance!)
I recommend your personal library start with Multiple Sclerosis: The History of a Disease by T. Jock Murray, OC, MD. (By the way, he is in Canada, I believe.)
Joined: Jun 02, 2008 Posts: 73 Location: Mississippi
Posted: Sat Oct 11, 2008 12:00 pm Post subject:
Welcome Shortcake,
There are so many intelligent folks here and so much to learn from their experiences. I joined when I started rebif and have been helped by the words of the wonderful people here.
I have been on Rebif for 4 1/2 months and I think I am worse than when I started it. I go back to the DR in 1 month to see where we go from here.
Good luck!
CF _________________ Seriously..Do I really have to get up and go to work today? Do you know how tired I am?
I have MS as well, although an extreme mild case of it. Benign as far as I am concerned. Are you getting treatment at the General? Mondays or Thursdays? I am a test subject for teriflunomide. Maybe we'll meet up someday.
Joined: Oct 10, 2008 Posts: 5 Location: Gatineau, QC, Canada
Posted: Mon Oct 27, 2008 5:07 pm Post subject:
DM wrote:
Hi Shortcake,
I have MS as well, although an extreme mild case of it. Benign as far as I am concerned. Are you getting treatment at the General? Mondays or Thursdays? I am a test subject for teriflunomide. Maybe we'll meet up someday.
Danny
(Ottawa)
Hi Danny! I'm on the other side of the river, so I go to the Hull hospital and now they opened a neuro clinic in Hull as well, so that's where I go to see my neurologist.
You cannot post new topics in this forum You cannot reply to topics in this forum You cannot edit your posts in this forum You cannot delete your posts in this forum You cannot vote in polls in this forum
Forum FAQ
Search
Usergroups
Profile
Log in to check your private messages
Log in
